One patient with glioblastoma still alive nine years later
by torontoguy on Sun Jan 18, 2009 12:00 AM
Just thought I'd post my dad's story as a source of some encouragement to all sufferring with this disease.
In the fall of 2005 my father was diagnosed with bile duct cancer. It seemed localized and therefore resectable. The tumour occurred at the junction of the gall bladder and the common bile duct. As it seemed to involve the right side of the duct the right lobe of the liver was removed in addition to the common bile duct and gall bladder. Recovery was tough but all basically went well until September 2007.
At that point a new tumour was found in the liver. Again it semed isolated so they burned it out with radiofrequency ablation. December CT looked fine, but then two more lesions appeared on the April 2008 CT. One was about 2.5 cm diameter and the other just under 2cm diameter. At that point we were referred to medical oncology for palliative chemotherapy.
I am a dentist with a bacheors degree in nutrition and a masters degree in nutritional epidemiology. I guess out of desperation I turned to the nutrition journals and found that there are some supplements that might be of some value, many of which you all likely knew about before I did.
I started dad on maitake d-fraction and IP6 right away as well as 2000 IU of Vitamin D3 per day. I have no idea if any of this has helped but progress has been very encouraging. Initally on Gemzar and Cisplatin, shrinkage started right away, reducing the diameter of the lesions by 50% in the first three months. Due to hearing loss though, the cisplatin had to be stopped and gemzar has been his sole chemo drug since october. The latest CT now shows the smaller lesion to be completely gone and the larger one is now only 0.5cm in diameter. I have no idea if a true remission is possible or how long this success will last, but it is something to hold onto for now. He has lost no weight and only has a little abdominal cramping in the two days after chemo infusions. Maybe it's all due to the gemzar, but I wonder if the supplements may be helping too, as the track record for chemo and this cancer is not great, and that is being generous.
I'll keep you all updated as new findings occur.
by Gina1 on Mon Jan 19, 2009 12:00 AM
Good for you and for your Father. I to am a survivor of this radical little cancer. I was resectioned at 38, it will be three years this March. There is another really good book you and your Father might like to read "Anti Cancer - A new way of life". Sorry I don't have the Author in front of me as I gave it to a friend to read. Very good book! Good Luck to you and your Father, and God bless you for helping him sort through the array of medical information and treatments!
Gina in TX
by Flower1 on Tue Jan 27, 2009 12:00 AM
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If you were considering traveling for cancer treatment, which headline would you find more interesting?
Destination: HOPE. Cancer care that is worth the trip.
Over 84% of our patients travel to our hospital from another state
Neither headline is interesting
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