One patient with glioblastoma still alive nine years later
by CorriG on Sun Jan 18, 2009 12:00 AM
Well - time for me to do that Low Iodine Diet again... I have my scan coming up in March - and although my doc says I don't have to do that LID one day - and then I do the next... Confusing... The Metabolic Nurse says I definitely do - and so do the Nuclear Med folks... I am going with a yes on this one...
If anybody has any tips - tricks - recipes they would kindly share for this I would really appreciate it. This is my second time on this - and last time wasn't too pleasant... Of course - day one last time started with me starving on a road trip and hubby pulling into Mc D's and getting sausage Mc Muffins - which smelled SO good... I was so sad... Yeah.. It was a rough couple of weeks...
Anyway - I would like to be more prepared this time :-) So, I appreciate the help in advance...
by the_crog on Sun Jan 18, 2009 12:00 AM
Both the NIH (National Institutes of Health) and thyca (Thyroid Cancer Survivor's Association) have free publications that can be downloaded and printed. One has recipes (www.thyca.org) and both have lists of ins and outs. Thyca has 90 pages.
I have not gone on LID yet, but am looking at what I think I can eat and be satisfied with during the 12 days I will be on it.
by showihorses on Sun Jan 18, 2009 12:00 AM
I just started my LID. It was kinda incoventant for me to start the day I did! I had several doctors appt's that day the right before lunch was the Radiation one. The date set for LID was in two weeks to the day (on my birthday at that!) So I had to start the LID RIGHT THEN! Do you know how hard it is to eat LID when out and about? Not enough time to really go to a restaurant, only the hospital cafeteria. I ended up with a unsalted, lettuce, carrot shred and raisin salad, with oil and vinegar (BLEECH!)
I struggle when it comes to fixing meals here. I have to fix a different meal for my family then mine, as they will not eat the LID foods (my husband 'tries' some of it (rice cakes with PB and honey or Matzo with PB and Jelly), but proceeds to make a funny face and shake his head!
I had a chicken thigh baked with a touch of salt free Mrs. Dash's and a touch of Kosher salt, a sweet potatoes with a touch of honey and brown sugar and broccoli lightly salted with Kosher salt tonight. I miss being able to have bread, sandwiches are not possible! I would be fine if I could have a tomato and lettuce sandwich!
Dang, I need suggestions too!!
by CorriG on Mon Jan 19, 2009 12:00 AM
Last year - when I had to enjoy this process the first time - my husband made me bread in our breadmaker... (Felt guilty for the Sausage McMuffin in the car - and the Pizza Hut at lunch - you know...) Anyway - As long as you control the ingredients - you are able to make bread that you can have on the Low Iodine Diet. We used distilled water, non-iodized salt, unsalted butter, etc. - and it was good to have "real" food...
I also read something about potato bread... Did anybody else see that? I live in an area that doesn't seem to get much of that... But I did look for it. I have already started looking again.
by Murphy1 on Mon Jan 19, 2009 12:00 AM
You can look at the Thyca website (thyca.org) for bread recipes. I am starting my LID tomorrow, so I will be cooking everything today and freezing it. They have tons of recipes for bread (with or without a breadmaker). They also have recipes for cakes as well - I don't know how good they will be, but I will try it. I love sweets!
by ShaNicLow on Mon Jan 19, 2009 12:00 AM
Me again! The LID is really hard if you aren't prepared. My doctor put me on it the day that I saw her, so I was really unprepared. My suggestion is go through the cookbook and pick out things that you will actually eat. Makes lots of your own salad dressings. They are good on salad or to dip veggies or as a marinade. I plan on doing this after the LID. I really liked the New Vinegarette dressing. Also, the Chicken and Potato Casserole is soo good! It's a good filling meal. I added some carrots and celery to it too and a whole lot of Mrs Dash Italian Seasonings. A few people suggested the chocolate cake. Me and my boyfriend both agreed that it was not good at all. If you can jazz it up somehow it would be okay, but I didn't like it. The pretzels were really good too and easy to make. Have lots of salad on hand too! Since your meat is limited, I would make some chicken and season it and cut it into little pieces and toss it into my salad to give it a little something extra. The meatloaf also wasn't too bad! I made that with some potatoes made with lots of sauteed onions and garlic. I warn you, the meatloaf looks really unappetizing because it has oatmeal in it! Lol. It really wasn't bad, I just put a lot more onions in it than usual and added kosher salt to the ketchup to put over it. I also really liked the pasta salad. I put tomatoes and cucumbers instead of chick peas and green beans. Also, make some french fries! They're super easy. I have gone through 3 bags of potatoes! Remember, no skins though! Another easy meal, but gets boring fast, is pasta with sauteed garlic and oil. It's filling, but very bland. You could add veggies to it too if you wanted.
The diet was rough for the first few days, but after a few days you start to get it. I was very fortunate that I didn't get super hypo. I have been able to cook everyday and when you make alot of things, you can just reheat it again the next day. Hope this was helpful!! Good luck!!
by showihorses on Mon Jan 19, 2009 12:00 AM
I am going to look for that brand of bread here, we also have potato bread available. I wouldn't mind making the bread but I don't a good working relationship with yeast! I tried the beer bread, it doesn't require yeast, but it tasted like, well beer.
I just made the Cinnampn Bread listed in the cook book (pg. 70) it is pretty good.
by tink2002 on Mon Jan 19, 2009 12:00 AM
uh, oh...sounds like I am much lazier than the rest of you! getting ready for Christmas, chasing with the kids, and cooking a "regular" meal for them, I just didn't have the oomph for too much experimenting with new stuff. I had a meat every night and used no yolk noodles or baked potato and lots of veggies! I did try a rub from the thyca book that was VERY good. then I could broil the meat! Used salsa for the baked potat(hope it was okay) and made my own spaghetti sauce with the no salt tomato sauce (hunts, I think!) and added my no iodine salt. This was also good on chicken (chick parm??) and wasn't bad with the no yolks. I tried (and detested) the whites only egg beaters and a bread recipe that wasn't worth the effort. ugh. When I was desperate I tried the chocolate cake and enjoyed it (but never want to see it again!)....get some natural peanut butter and salt it yourself, It's good on celery for crunch.
Several nights desert was sliced banana, peanut butter and a drizzle of honey. good luck to you! I took great satisfaction in X-ing off the days on the calendar! hope it goes quickly!
by tracyonmaui on Wed Jan 21, 2009 12:00 AM
Prepared or not it still sucks!
Ok I've done it 4 times, the last one was 8 weeks long. I bake my bread and make PB & J's. At the health food store I found salt free peanut butter (It's a little dry) In the LID cookbook there is a wonderful banana muffin (very easy)
But the all time best was I found a chief that cooked for me. He charged me $60.00 a week for dinner every night but he cooked so much that I could have enough for lunch the next day. Now thats lazy but who cares it was wonderful. I got his number form my endo and I'm sure that I'll use him again. It was well worth it and it cut down my cheating. I find that I cook the same thing over and over so I get sick of it and cheat.
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