I just found this mesage board today, I am 41 yrs old , we found out my mother had PPC on my 40th birthday, she has undergone cemo from day one,a yr ago in Oct. I have read so many messages of surgery that was able to be done. My mother has not been a candidate for surgery. I think the most frustrating element of all of this , is not knowing what to look for , my mother is 75 yrs old and is so fatigued and sick from cemo, she wasnt able to do cemo today because the scans friday showed a serious problem with her esphagus, now she has to have a scope tomorrow. Then the Dr. wants to do Paxol again, This disease is so confusing, I find myself more confused with every web site I go to. Just reading this message board has given me more information than I have been able to find in the last yr. I guess I want to know : how long do i have with her? How will we know when it is getting close? she was diagnosed in stage 4.
We were hoping to have the debulking done, but the surgeaon said she not a candidate for it. I am so tired of getting text book responses to my questions from the Dr. I know it is in Gods hands, but we are going crazy.
Her scan showed tumors in lower abdomen unchanged , some fluid, but her markers went from 119 to 22. The doctor wasnt happy with the scans and my mother feels worse. So how are the markers so much better?
Please if anyone has and advice or somewhere to get information please let me know. My mother is my best friend and the strongest woman I have ever met , seeing her this way and in pain is killing me. I definelty will be looking at this mesage board regularly, I thought we were alone in this , i didnt realize that this is "not" an isolated disease. All we hear is how RARE it is. But i think we all agree there is nothing RARE to the loved ones affected by this monster!
Thanks for letting me vent , that helps alot,
My thoughts and prayers are with all who have been touched by this disease.
angielee