One patient with glioblastoma still alive nine years later
by In_the_dark on Mon Jan 19, 2009 12:00 AM
by Annie59 on Mon Jan 19, 2009 12:00 AM
On 1/19/2009 In the dark wrote:Hi mom needs a porta cath. How long does the operation take, do they put you to sleep, is there much pain, are there side effects, can you bath with it, tell me anything about your experiance.
by In_the_dark on Tue Jan 20, 2009 12:00 AM
by mrready on Wed Jan 21, 2009 12:00 AM
I was given something to relax me, but it put me completely out.
Mine is on the right side of my chest and doesn't bother me at all. I can do anything except lift heavy weights. I golfed with it last summer and I had no issues.
I have heard a couple of suggestions on other boards that might be helpful. Try and have placed on the right side if your mother will be driving. The seatbelt tends to push down on it when it is on the left side. Ask them to measure for placement while your mother is standing and has a bra on. Some women have had problems because it was placed exactly where there bra was. I also know of a woman who had it placed under her arm and absolutely hated it. I think the chest is the best place for it.
by jvbcancersurvivor on Thu Jan 22, 2009 12:00 AM
I had a double port a cath implanted in my upper left chest in Sept 2006. The proveedure took about 1 hour & I was sedated( asleep) for the duration. It was relatively painless & I went home about twp hours after the peoceedure. You can bath & do everything after the implant that you did before. I would stay away from any "contact" sports, but I play golf & garden & play tennis just fine. The only real inconvenience that ia have found is the car safety belt that comes over your sholder always rests on the port a cath, but I ger around that by running the sholder belt "under" my left arm pit rather than over my sholder & that works fine. Your mom will be just fine.
Still fine after 2&1/2 years.
by Kathryn_D_1 on Thu Jan 22, 2009 12:00 AM
Hi, I've had a port for 10 months...and its being removed tomorrow! The portacath is a good access for chemo. Its usually put in by a vascular surgeon, the procedure is about 40 minutes in length. It can be done with conscious sedation and local anaesthetic or a general anaesthetic, my surgeon does them under a general anaesthetic...bless him.There is some tenderness in the week following insertion but needs no more than Tylenol and rest. The port is completely under the skin so once the incision is healed showering is no problem, in fact, the manufacturer assures that it is safe for swimming and most other activities.When I was feeling well enough I was able to run, swim and do limited weights throughout treatment (6 months of aggressive chemo). The port allows the chemo nurses easy access and in my case, allowed me to go home with a pump for my 5FU (much nicer than staying in hospital, also cost effective). Once the port is not in use it needs to be flushed and heparinized every 4-6 weeks. This is usually done in an outpatient setting at your local hospital. Removal is about 15 minutes. The port will save your mom's veins (chemo can scar peripheral veins making them unusable) and will likely reduce the amount of pokes she receives. I guess its the "lesser of two evils"! I wish your mom all the best...fight hard! Kathryn
by In_the_dark on Thu Jan 22, 2009 12:00 AM
A BIG thank you to all that replied. She had the cath put in yesterday. Sore today, bra is a problem, I told her at 83 not to worry about it.
Start Chemo Monday. I hope she handles it. Thanks again and take care
by Papaike on Thu Jan 22, 2009 12:00 AM
by In_the_dark on Wed Mar 25, 2009 12:00 AM
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