One patient with glioblastoma still alive nine years later
by browneyedgirl on Tue Jan 27, 2009 12:00 AM
by Omphalos on Tue Jan 27, 2009 12:00 AM
On 1/27/2009 Omphalos wrote:Tell your dad his first priority is LIFE. One day at a time. Best wishes to your family.
by Georgealbert on Wed Jan 28, 2009 12:00 AM
It is important that you visit www.yananow.net where you will find other men who have been through what your Dad is going through. Many of these men will correspond with you and answer your questions. These are the guys that have actual experience.
by DocTV on Wed Jan 28, 2009 12:00 AM
by browneyedgirl on Wed Jan 28, 2009 12:00 AM
by Gizmo1032 on Thu Jan 29, 2009 12:00 AM
I sympathize with your father's anxiety about these potential aftereffects. I have been dealing with the same concerns for more than 7 years. I have not had surgery but it has been hanging over my head. My PSA is 12 or higher but repeated biopsies find no cancer.
My advice is to be sure to find the best surgeon in the USA. Your local urologist is not the person to entrust with this issue. Be sure that he has done hundreds, if not thousands of these operations. It requires the utmost skill and that only comes from vast experience. Consider places like Johns Hopkins in Baltimore or the Mayo Clinic or the Cleveland Clinic. These are places with the experience and therefore the cutting edge skills. It was Johns Hopkins where they learned the techniques of "nerve sparing" that avoids impotence, and which everyone now tries to use.
In addition to the other web sites which have been suggested to you, I would also recommend one which is unusual but in my experience very helpful. It is the Yahoo Group called "Prostate Cancer And Gay Men" . I'm sure the very name will set your father's teeth on edge, but there is no group of men more concerned with the issue of impotence/incontinence then this one. The biggest advantage of this group is that they are not embarrassed or awkward or shy about discussing the nitty-gritty of this issue or their experience in dealing with it. There is even a lot of wisdom there as to the impact on, and the role of, the caretakers like your mother and yourself. They are very welcoming to non-gays and there have been a number of wives and daughters who have sought advice there, although if your father does not find it repulsive it might be best if he asked his questions for himself as I did.
Best of luck to your father and your family, and remember your father's well being is worth every penny of the cost to travel to a medical center of excellence to have his surgery.
by MigrationMike on Wed Feb 25, 2009 12:00 AM
That's good advice! I had psa readings of 6 then 12 then 18 then back to 12 over 6 years. Had three biopsies and an MRI with negative results. Was told I had prostatitis. A year ago I had another biopsy and low grade cancer cells were found in one of the samples. Surgeon told me it was not unusual in a man of my age (66) and to come back in a year. I returned in December with a psa reading of 27. Had radical prostatectomy (robotic) in January. Surgeon found quite a lot of cancer (Gleason 8) contained within the prostate. There was no prostatitis. I suspect the cancer had been there all along but the biopsies and MRI were unable to pick it up.
I've heard the Brits are developing a urine test to detect the presence of aggressive prostate cancer.
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