How soon after having stomach fluid drained does the fluid build up again?

16 Posts | Page(s): 1 2  Next 

How soon after having stomach fluid drained does the fluid build up again?

by Steve_8310 on Wed Jan 28, 2009 12:00 AM

Quote | Reply
My son has Pancreatic Cancer and has now fluid which needs to be drained. Does anyone know HOW PAINFUL this process is and how often it needs to be done? His Cancer has been very painful even though he is on Pain Patches and Hydrocodone for breakthrough pain.

RE: How soon after having stomach fluid drained does the fluid build up again?

by donnany on Wed Jan 28, 2009 12:00 AM

Quote | Reply
Unfortunately, the fluid usually comes back within a week, sometimes two.   My dad had it done and it was not painful at all, and the relief he felt after was amazing, he could eat and breathe better. They basically use an ultrasound to determine where the majority of the fluid is and then  insert a needle in to the side of the belly with a catheter and drain the fluid into liter bottles. Some folks at my dad's oncologist come in to be drained weekly when they are having treatments. I think everyone is different. Wishing your son some relief from his pain.

RE: How soon after having stomach fluid drained does the fluid build up again?

by Steve_8310 on Wed Jan 28, 2009 12:00 AM

Quote | Reply

Thank you so much for that information. Although I was hoping he wouldn't need to have the draining done so often, I am so grateful for your telling me it was not a painful proceedure. He has had so many painful things happen to him since he was diagnosed including a cyst opened and removed on his chest. The pain medication wore off BEFORE they finished and that followed by needing it packed for 12 days and that is done with NO pain medication. THAT cyst has already come back!   It means another PAINFUL surgery and packing replay is also coming. As if that wasn't enough, he then took a fall and needed stitches in his face to close the wound. He just had the stitches removed yesterday and today his stomach swelled up and this draining is going to be necessary. He is getting so discouraged thinking he will never have a pain free day. He knows he is terminal of course, but just wants some PEACE to end his days. That is all I want for him too. I am his caregiver and I am grateful to be here for him Again, many thanks for your helpful answer and for your good wishes. I am sending YOU my good wishes too. That seems to be all we can do for each other, Just be HERE for each other.

RE: How soon after having stomach fluid drained does the fluid build up again?

by helgoland on Thu Jan 29, 2009 12:00 AM

Quote | Reply
I am sorry to hear about this pain that both you and your son are going through.  I, too, hope that the pain subsides or that proper medication will be provided to offer relief.   Please be there for your son and say and do everything you can.  As a caregiver for my Mom who passed away, this is my strength to carry-on.  I know I did everything humanly possible to help her through this dark period of her life.   Thinking of you.

RE: How soon after having stomach fluid drained does the fluid build up again?

by Steve_8310 on Thu Jan 29, 2009 12:00 AM

Quote | Reply
Thanks for responding. I am doing exactly as you did with your Mom. I am making sure he gets any little thing he wants to eat or drink, although he eats VERY little, ususally a couple of bites and the rest gets thrown away. I make at least 6 or 8 different small meals and since he does like his drinks with crushed ice I do that too. I would do ANYTHING to make him feel better. At bedtime we sit and talk until he gets sleepy which is not very long and then I usually rub his back or his feet until he drops off. Everyday is a LONG day and  I am grateful for every little thing that gives him a few moments of peace.His Pancreatic Cancer has NOT been PAIN FREE although I know some people who have it with NO pain. What I can't seem to do is accept the fact that he will die. That thought is with me every waking minute. He does not speak about it because her knows how I feel. We have been asked if we want to talk to SOMEONE that they think could help us through this. He does NOT want to talk to ANYONE. I feel the same way. There is no Psycologist who can make this any easier. The ONLY people who CAN help are people like YOU that have gone through the same thing with someone they LOVED.Thank you again for your kind concern. I am glad you answered. I am also sorry you lost your Mom but knowing YOU did everything possible to make her comfortable during her life gives you some comfort, doesn't it? I am hoping it does.

RE: How soon after having stomach fluid drained does the fluid build up again?

by donnany on Thu Jan 29, 2009 12:00 AM

Quote | Reply
I am so sorry that your son has had such a difficult journey.I hope that once he has the fluid drained he feels much better and can enjoy some good quality time. I know that is what my dad was looking for as well. I know that as I have been going through this with my dad who I just lost 10 days ago that this board and especially the John Hopkins Pancreatic Cancer board were lifesavers I still come here regularly as I feel I have gotten to know my cyber friends and can lend advice or support at times. I will keep you both in my prayers. 

RE: How soon after having stomach fluid drained does the fluid build up again?

by MikkiN on Thu Jan 29, 2009 12:00 AM

Quote | Reply

Donna, I am so sorry for your loss.  I just read your message.  I am so sorry.  Your father loved you so much.  You were there for him and He was better off because of it.  May god be with you.

Your friend Mikki

RE: How soon after having stomach fluid drained does the fluid build up again?

by donnany on Thu Jan 29, 2009 12:00 AM

Quote | Reply

Hi Mikki

 

Thanks so much for your thoughts and prayers. It means so very much. Although the end came quickly and unexpectadly we are so grateful for the time we had. Being with him when he peacefully passed was a priviledge. I just want you to know that I am thinking of you and your dad, and hope for great news in February that he can have the whipple and beat this beast!  With you and your families support, I just know he will do well. I will continue to pray for you and your family.

 

Donna

RE: How soon after having stomach fluid drained does the fluid build up again?

by Janets_husband on Thu Feb 05, 2009 12:00 AM

Quote | Reply

 

On 1/28/2009 Steve 8310 wrote:

My son has Pancreatic Cancer and has now fluid which needs to be drained. Does anyone know HOW PAINFUL this process is and how often it needs to be done? His Cancer has been very painful even though he is on Pain Patches and Hydrocodone for breakthrough pain.

I'm so sorry to hear about your son's condition and pain.  My wife Janet fought the demon for 20 months and passed away last month on January 9th.  despite the whipple, chemo, radiation, more and more and varied chemo (which stopped the migration in the lung and liver) the soft tissue remained active and in October she found that it had spread to the colon and subsequent chemo for this (oxalplatin and 5FU) were ineffective.  She began to rapidly fill up with fluid in the abdomen and required paracentesis (needle and vacuum bottle) five times at about a 4-5 day interval.  Just before she passed we were able to have a drain put in (pleur-x) which would have avoided the dreaded time spent waiting for a 20 minute procedure at the hospital (sometimes up to 10 or 11 hours) which drained so much energy.  We should have had the drain put in right away -

I pray that your son's pain and suffering will be small and that your own pain as a caregiver is manageable.  God works in strange ways - I was laid off in mid-November and was therefore able to stay with my wife full-time until her passing, which was peaceful.  She was determined not to let the cancer get her down and was especially thankful that it was her and not her sons that were afflicted.

God bless your son and yourself.

 Phil

RE: How soon after having stomach fluid drained does the fluid build up again?

by helgoland on Thu Feb 12, 2009 12:00 AM

Quote | Reply

Hello Steve,

Having any family member/ loved one suffer with a terminal illness is no easy feat.  Although I did do everything I believe I possibly could with my Mom...I still second-guess some decisions.  Should I have done this?  Should I have not done that?   Those type of thoughts still disturb me.  Also, just the idea that she would get this terrible disease bothers  me.   My Mom was one of the ones you described who experienced very little pain.   She took a Tylenol 1  on her final day but she had no pain...it was more of a preventative.  In fact, she was still walking around the house and eating very small amounts of food!   However, she was starting to throw-up small quantities of a brown liquid and therefore we decided to go to the ER the following morning.  Sadly, she passed away in the evening.   However, it was very quick, unexpected  and we believe painless.  She was at home in her favourite chair with all the Christmas decorations surrounding her.   I left the room to turn-down her bed and when I returned;  the Angels had been there for her.    I mourn and grieve her every day.   Yes, I did what I could to make the last 4 months more 'pleasant' for her; but the pain of my loss is very real.

I am relieved to hear all that you are doing for your loving son.  This will give you strength.  

P.S.   I am fortunate to have a collection of dvds of my Mom with family starting in 2003.   It is wonderful to see and hear my Mom when she is healthy and happy.  Our last dvd was on her birthday less than 2 weeks before she passed away.   What a memorable evening that was...

16 Posts | Page(s): 1 2  Next 
Subscribe to this message board discussion

Latest Messages

View More

CancerCompass Survey

If you were considering traveling for cancer treatment, which headline would you find more interesting?

Get $75 for taking a research survey

We care about your feedback. Let us know how we can improve your CancerCompass experience.