Women who don't have BRCA mutations could have other high-risk genes that affect treatment choices
by Steve_8310 on Wed Jan 28, 2009 12:00 AM
by donnany on Wed Jan 28, 2009 12:00 AM
Thank you so much for that information. Although I was hoping he wouldn't need to have the draining done so often, I am so grateful for your telling me it was not a painful proceedure. He has had so many painful things happen to him since he was diagnosed including a cyst opened and removed on his chest. The pain medication wore off BEFORE they finished and that followed by needing it packed for 12 days and that is done with NO pain medication. THAT cyst has already come back! It means another PAINFUL surgery and packing replay is also coming. As if that wasn't enough, he then took a fall and needed stitches in his face to close the wound. He just had the stitches removed yesterday and today his stomach swelled up and this draining is going to be necessary. He is getting so discouraged thinking he will never have a pain free day. He knows he is terminal of course, but just wants some PEACE to end his days. That is all I want for him too. I am his caregiver and I am grateful to be here for him Again, many thanks for your helpful answer and for your good wishes. I am sending YOU my good wishes too. That seems to be all we can do for each other, Just be HERE for each other.
by helgoland on Thu Jan 29, 2009 12:00 AM
by Steve_8310 on Thu Jan 29, 2009 12:00 AM
by donnany on Thu Jan 29, 2009 12:00 AM
by MikkiN on Thu Jan 29, 2009 12:00 AM
Donna, I am so sorry for your loss. I just read your message. I am so sorry. Your father loved you so much. You were there for him and He was better off because of it. May god be with you.
Your friend Mikki
Thanks so much for your thoughts and prayers. It means so very much. Although the end came quickly and unexpectadly we are so grateful for the time we had. Being with him when he peacefully passed was a priviledge. I just want you to know that I am thinking of you and your dad, and hope for great news in February that he can have the whipple and beat this beast! With you and your families support, I just know he will do well. I will continue to pray for you and your family.
by Janets_husband on Thu Feb 05, 2009 12:00 AM
On 1/28/2009 Steve 8310 wrote:My son has Pancreatic Cancer and has now fluid which needs to be drained. Does anyone know HOW PAINFUL this process is and how often it needs to be done? His Cancer has been very painful even though he is on Pain Patches and Hydrocodone for breakthrough pain.
I'm so sorry to hear about your son's condition and pain. My wife Janet fought the demon for 20 months and passed away last month on January 9th. despite the whipple, chemo, radiation, more and more and varied chemo (which stopped the migration in the lung and liver) the soft tissue remained active and in October she found that it had spread to the colon and subsequent chemo for this (oxalplatin and 5FU) were ineffective. She began to rapidly fill up with fluid in the abdomen and required paracentesis (needle and vacuum bottle) five times at about a 4-5 day interval. Just before she passed we were able to have a drain put in (pleur-x) which would have avoided the dreaded time spent waiting for a 20 minute procedure at the hospital (sometimes up to 10 or 11 hours) which drained so much energy. We should have had the drain put in right away -
I pray that your son's pain and suffering will be small and that your own pain as a caregiver is manageable. God works in strange ways - I was laid off in mid-November and was therefore able to stay with my wife full-time until her passing, which was peaceful. She was determined not to let the cancer get her down and was especially thankful that it was her and not her sons that were afflicted.
God bless your son and yourself.
by helgoland on Thu Feb 12, 2009 12:00 AM
Having any family member/ loved one suffer with a terminal illness is no easy feat. Although I did do everything I believe I possibly could with my Mom...I still second-guess some decisions. Should I have done this? Should I have not done that? Those type of thoughts still disturb me. Also, just the idea that she would get this terrible disease bothers me. My Mom was one of the ones you described who experienced very little pain. She took a Tylenol 1 on her final day but she had no pain...it was more of a preventative. In fact, she was still walking around the house and eating very small amounts of food! However, she was starting to throw-up small quantities of a brown liquid and therefore we decided to go to the ER the following morning. Sadly, she passed away in the evening. However, it was very quick, unexpected and we believe painless. She was at home in her favourite chair with all the Christmas decorations surrounding her. I left the room to turn-down her bed and when I returned; the Angels had been there for her. I mourn and grieve her every day. Yes, I did what I could to make the last 4 months more 'pleasant' for her; but the pain of my loss is very real.
I am relieved to hear all that you are doing for your loving son. This will give you strength.
P.S. I am fortunate to have a collection of dvds of my Mom with family starting in 2003. It is wonderful to see and hear my Mom when she is healthy and happy. Our last dvd was on her birthday less than 2 weeks before she passed away. What a memorable evening that was...
When you track a discussion, you will get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to track this discussion?
If you stop tracking this discussion, you will no longer get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to stop tracking this discussion?
We care about your feedback. Let us know how we can improve your CancerCompass experience.