One patient with glioblastoma still alive nine years later
by firechief on Sat Feb 07, 2009 12:00 AM
I had my 1st 6month scan post surgery and everything was clean. The doctor thought I was doing great with a total weight loss of 20 lbs with chemo/rad and surgery. I also asked about the prognosis for stage III such as I have/had. He stated that M.D. Anderson is getting about 30% 5 yr survival rates with surgery, chemo/rad. That number drops to less than 15% without surgery. So you can see that surgery is a benefit.
He also stated that the 1-2 year period is the critical period where they see 90% of recurrences. He did say that this was only a statistic and that it did not include me. This stat was for a given number. So with each pt different, there is no sure way to get an actual stat. He said that the stats mean nothing. He did go on to say that EC is very aggresive and will have killed the majority of pts with stage III that it is going to kill within 24 months of diagnosis. These pts have a rapid recurrence and die rapidly.
I wanted the truth and he sat down with me and layed it out. So, I will go on try not to worry about. If it returns, we will deal with it then. Other than that, I refuse to worry about it anymore.
by Cyclist on Sat Feb 07, 2009 12:00 AM
Congratulations! From I have read about you in your posts, I am sure you will do fine. Are you still feeling as good as you were? Still as active?
Good Luck, KEEP MOVING, and Laugh Much,
by Ever4015 on Sun Feb 08, 2009 12:00 AM
It is good news that you are NED and I know you will continue to do fine. I got my results for my first scans tomorrow, it is 5 and 1/2 monts post op for me. I always like to read how you are doing and I don't think you have anything to worry about.
Take Care and Be Positive
by Phil_A on Sun Feb 08, 2009 12:00 AM
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If you were considering traveling for cancer treatment, which headline would you find more interesting?
Destination: HOPE. Cancer care that is worth the trip.
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