My 2.5 year old son's AML relapsed (CNS and marrow) eight months ago. He was born with AML (congenital) and had a BMT back in 2006. After several months and two rounds of chemo he was still not in remission. This was six months ago that we went home - his marrow was aplastic - he was neutropenic - and he was recovering from a cranial tap to drain subdural hygromas.
Although we went home to only have a few weeks of "quality of life", now it is six months later and his marrow has finally recovered - and there is no cancer in his CNS fluid either!
We did quite extensive herbal therapy in the past six months - now that he is in remission - we are leaning against CNS radiation (the normal path).
Medical details are on our blog: www.jaymun.com/journal/2009_02_02
Any thoughts on this situation?