My mom has just been told her sarcoma spread from her leg, where it returned after a 5% chance, to her abdomen, and now her lungs. They wont operate b/c they say with the cancer in her lungs there is too much risk of anesthesia. I think this is ridiculous to tell someone to just deal with a ton of pain which is basically uncontrollable for more than 24 hours at a time. They had her on morphine for a while but that caused 2 hospital stays of 4 days each while they had to insert a catheter and she couldnt do a BM. They finally switched her after I complained to the doctor on call that this wasnt working, I had driven 12 hours to be with her the day before. He switched her to methodone and dilotid, which was every 4 hours and if she missed the dose by 20 min she was in agony for hours. Now they have her on a 8 hour does but it still is not working well. All she does is sleep and they have basically told her so sorry, its in your lungs now, this is very bad stuff nothing to be done. I think this is a crock of beans but since I live in Florida and they live 12 hours away in VA there is not much to be done. I need some advice on things to ask. Shes always in pain and if shes not in pain shes sleeping. She said shes tired of sleeping and going to the bathroom, she wants to go back to work because she is a counselor at a middle school and she feels the kids need her. What do I do? I need to talk with the Dr's but they dont seem to care. Any suggestions?
Buttercup