Vaginal Dysplasia

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Vaginal Dysplasia

by bkk1128 on Thu Feb 19, 2009 12:00 AM

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I have had mild vaginal dysplasia (I've had a hysterectomy) in the past but, my recent biopsies have been received this week showing severe dysplasia.  I am meeting with my gynecologist tomorrow to discuss further treatment.  Has anyone had this experience?  Do you any suggestions.

BKK-NC

RE: Vaginal Dysplasia

by cupfull_of_hope on Sun Feb 22, 2009 12:00 AM

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On 2/19/2009 bkk1128 wrote:

I have had mild vaginal dysplasia (I've had a hysterectomy) in the past but, my recent biopsies have been received this week showing severe dysplasia.  I am meeting with my gynecologist tomorrow to discuss further treatment.  Has anyone had this experience?  Do you any suggestions.

BKK-NC


I indeed have beed down this road. I was diagnosed with Stage 0 vaginal cancer, which is also called VAIN (vaginal intraepithelial neoplasia) in November 2008. It was discovered that I have multiple areas, so laser surgery was unfortunately not an option. This is a farely uncomplicated surgery with very little disturbance to everyday life and farely quick healing time. Because I was not a candidate for this, short of doing a vaginectomy, yep just as it sounds, not a good experience for an "active" individual, I was told by my oncologist that I would be doing a course of chemotherapy cream. It is a cream that is applied using a tampon, and over time should destroy the bad cells, which the body then sheds. This can take anywhere from 6 months to a year and a half. It is not the most comfortable thing. I have gotten burns and blisters from the cream as it is very caustic, HOWEVER when you consider the other possibilities I can handle it. It is scary I know, but just ask lots of questions, sign on with a great gynecologic oncologist and most of all be hopeful. I have not yet gotten a pap with "normal limits" so I do not know how long mine will be but, the important thing is that I am here for my husband and kids, and plan on driving them crazy for many more years! Hang in there, if I can do it, so can you!!!!!!!!!!!!!!!!!!     -cupfull of hope

RE: Vaginal Dysplasia

by wendylou on Thu Apr 16, 2009 12:00 AM

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I have been diagnosed with VAIN III, severe dysplasia and chronic inflammation. I had a complete hysterectomy in 1999.  My OB has only seen it once in 30 years.  He referred me to an Oncologist in Atlanta.  The appt is TWO WEEKS away and I'm scared.  I dont know what to expect or anything.  Please someone tell me how this works.

Wendylou

RE: Vaginal Dysplasia

by texasangelgirl on Mon Jun 13, 2011 02:49 PM

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On Feb 19, 2009 12:00 AM bkk1128 wrote:

I have had mild vaginal dysplasia (I've had a hysterectomy) in the past but, my recent biopsies have been received this week showing severe dysplasia.  I am meeting with my gynecologist tomorrow to discuss further treatment.  Has anyone had this experience?  Do you any suggestions.

BKK-NC

Hi was wondering how you were doing and how things have turned outl  Please help me understand this.

RE: Vaginal Dysplasia

by Lilred52 on Thu May 10, 2012 05:22 PM

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I understand because I have been fighting the Dysplasia for the last 4 years and 3 years ago I had a total hysterectomy which we thought we got everthing. I have had seven coloposcopy and each biopsy has showed severe dysplasia. I have had the laser too and now I have to go back in the hospital to have another surgery but I have been told the last alternative is the chemo which I do not want to do.  I know I may not have a choice, so I am with you in this stressful journey.  You have to make sure you make all your appointments and do what needs to be done.

RE: Vaginal Dysplasia

by Caffienabean on Sat Sep 20, 2014 08:28 AM

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If anyone is reading this, I too have to do the vaginal chemotherapy - I sure could use some insight from someone.

RE: Vaginal Dysplasia

by joy525 on Fri Feb 06, 2015 12:47 PM

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On Sep 20, 2014 8:28 AM Caffienabean wrote:

If anyone is reading this, I too have to do the vaginal chemotherapy - I sure could use some insight from someone.

Yes I can understand how you feel about doing vaginal chemotherapy. I used the chemo cream for my situation after I had a hysterectomy. I had several bouts of severe dyplasia and it was either using the chemo cream or a vaginectomy. The chemo cream  I was prescribed was fluoroplex. After using this for almost 2 weeks it was the most painful experience I have ever been through. I was raw inside with blistering redness, swelling and so much pain!! I could not even pee. It gave me such burns that I thought I was going to die. I had to go into the shower to pee because my vulva was so blistered that the pain was too much for me to handle. I tried using zinc oxide on the outside of me so it would not burn me on the outside but it seemed the zinc oxide would not stick to my skin. After all of this treatment I still have abnormal paps because I was told that the chemo cream changes your cells inside and the cells will never be normal again. Well I am still alive but I swear I would never again do that treatment. I wish there was a better alternative then what the doctors prescribe.

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