First, do you know what kind of Sarcoma it is? Second, get to a Sarcoma specialist. I can't stress enough how important it is to see a surgeon who specializes in Sarcomas. Get on the web and find the right surgeon for you. If you are in the Northeast, Kettering has a teriffic Sarcoma surgical staff!
I've posted my story a few times in other threads but here it is again for you:
Hello!! My wife had a myxoid Liposarcoma removed from her right thigh earlier this year. At the time she was 31 years old and 18 weeks pregnant. In this forum I gave a private reply to the person who started this thread, but in light of the other messages, I'll post a quick synopsis of our story. In February, my wife found the lump in her leg while taking a shower. It was painless, firm (but not solid) and moveable and about the size of a egg. The progression of Drs took us to a surgeon who removed just the mass which, after three weeks and several pathologists, came back as a Myxoid Liposarcoma (tumor was 7.5 X 4 X 2.5, stage II) with a positve margin. We were referred to a a Radiology Oncologist who recommended termination of pregnancy and high dose radiation (60 cGy if memory serves me correctly). We were not going to terminate pregnancy without a second opinion. The original surgeon had mentioned that Sloan Kettering in New York sees more sarcomas than anybody. Within two weeks we were on a train to New York City (we live in South Central PA) and met with Dr. Samuel Singer. Thank God for Dr Singer!! He is one of the top Sarcoma surgeons in the country. Anyway, after we told him of the original plan of treatment as recommended by our local Drs, Dr Singer was appalled and assured us that radiation was NOT necessary and we absolutely did not need to terminate the pregnancy, we just needed a good surgery. Subsequently, my wife had surgery during her second trimester in May in which Dr Singer took a 17 X 10 X 5 cm chunk (including the sartorius muscle) out of my wife's thigh (radical resection). The pathology showed no gross or microscopic disease and Dr Singer said he'd be surprised if this thing ever came back. So, my advise to you, get to a surgeon who has experience with sarcomas and don't be afraid to get that second opinion. Do not let them do anything to your you are not comfortable with just because the Dr says so. Ours questioning and seeking of a second opinion saved our baby's life (born Sept 4) and maybe my wife's life. Please feel free to email me if you have any questions regarding our experience. My email address is --Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html--, just put in subject line "myxoid liposarcoma" so I don't lump in in with junk mail. God bless you and I truely hope and pray all goes well for every one of you!
If you have any questions, just post a follow up, I'll check in periodically to see how things are going. Hang in there and God bless!!
Greg