I am 42 and was diagnosed with ET last month. My platelets were over 1 million. I am waiting on my spinal tap results to come in...they found 2 spots on my brain on the MRI. They believe the spots may just be mini-strokes...we'll see.
Anyway, I am on Anagrelide. I started with 1 pill 0.5 mg and went to 3 pills a day during the first 2 weeks. I am now back on 1 pill after the side affects hit me. My platelets have consistently gone down each blood work count(twice a week) and are now at 829,000.
The side affects I have from the anagrelide are: severe muscle cramps, mild dizziness and mild heart palpitations.
I am very interested in natural treatments, so please share any information you have on that.
I hope you are doing well:-)