Essential Thrombocythemia

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Essential Thrombocythemia

by Isabelle13 on Mon Feb 23, 2009 12:00 AM

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Hi I am 34 and I have Essential Thrombocythemia. Has any one else got this? If so what are you taking drug wise? I am particularly interested to hear from ET patients but especially younger ones or ones that are thinking of having children or had children whilst knowing they had ET. I want to know also how people are reacting to Anagrelide and if anyone tried the natural treatment way to see if it worked for them. Sorry so many questions!! I have post pone my anagrelide intake until I know more what my options are.

Please someone answer!?

RE: Essential Thrombocythemia

by jazzrunner on Thu Feb 04, 2010 06:07 PM

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I am 42 and was diagnosed with ET last month. My platelets were over 1 million. I am waiting on my spinal tap results to come in...they found 2 spots on my brain on the MRI. They believe the spots may just be mini-strokes...we'll see.

Anyway, I am on Anagrelide. I started with 1 pill 0.5 mg and went to 3 pills a day during the first 2 weeks. I am now back on 1 pill after the side affects hit me. My platelets have consistently gone down each blood work count(twice a week) and are now at 829,000.

The side affects I have from the anagrelide are: severe muscle cramps, mild dizziness and mild heart palpitations.

I am very interested in natural treatments, so please share any information you have on that.

I hope you are doing well:-)

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