my mum is stomach cancer

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my mum is stomach cancer

by hopeformum on Sat Feb 28, 2009 12:00 AM

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my mum is 49 years old. She has some stomach problems and we have gone to doctor.Doctor said according to biopsy that; she has no cancer it is just h.pilory so he gave my mum some antibitics bit it didn't work and after 3 months one night my mum began to puke and we went to another doctor and according to new endoscopy and biopcy it has been realized that my mum is stomach cancer (stage:4)

they said that the walls of stomach are very thick because of that malignant cells.and the diagnosis is=local advanced stomach cancer and also some lymphs which are located in peri gastric areas are also have some timor cells

the doctor said that the surgery (what i mean is total gast.)is risky so before operation my mum should have given chemoteraphy.

they gave my mum cisplatin,5-fu,taxotere every week on Thursdays

I really consider that if cemoteraphy really wworks??

during cemoteraphy, these timor cells do have ability to spread up?Are there any people who have the same problem?(neoadjuvant cemotherapy=before operation taking chemoterapy)

I really worried and can't sleep ,can't do anything without thinking about it?

 I wish somebody will response..sorry for my english

 

 

RE: my mum is stomach cancer

by momwithkids on Sun Mar 01, 2009 12:00 AM

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On 2/28/2009 hopeformum wrote:

my mum is 49 years old. She has some stomach problems and we have gone to doctor.Doctor said according to biopsy that; she has no cancer it is just h.pilory so he gave my mum some antibitics bit it didn't work and after 3 months one night my mum began to puke and we went to another doctor and according to new endoscopy and biopcy it has been realized that my mum is stomach cancer (stage:4)

they said that the walls of stomach are very thick because of that malignant cells.and the diagnosis is=local advanced stomach cancer and also some lymphs which are located in peri gastric areas are also have some timor cells

the doctor said that the surgery (what i mean is total gast.)is risky so before operation my mum should have given chemoteraphy.

they gave my mum cisplatin,5-fu,taxotere every week on Thursdays

I really consider that if cemoteraphy really wworks??

during cemoteraphy, these timor cells do have ability to spread up?Are there any people who have the same problem?(neoadjuvant cemotherapy=before operation taking chemoterapy)

I really worried and can't sleep ,can't do anything without thinking about it?

 I wish somebody will response..sorry for my english

 

 


Hopeformum:

First, I am sorry to hear about your moms recent diagnosis.  My wife (43 years old) was diagnosed with Stage IV in March of 07 and was in remission (no dectectable cancer) as of August of 07.  She remains on chemotherapy today and although surgery was presented as an option by one of our oncologist, the second, third, and fourth, etc. opinions we obtained ruled out surgery as the cancer had already spread. 

I caution you that although her cancer had spread to a single spot in her liver we caught it VERY early and that is part of reason she is in remission today.

Her story is below, use what info you find helpful and read as many of the testimonials on this site as you can as important information is sometimes contained in them.

Good luck and may God Bless you and your mum!

LISA

My 43 year old spouse was diagnosed with Stage IV in March of 07.  She initially presented with acute pain at her GI Junction that was relieved with over the counter prilosec and diet modification; however, we were not satisfied that the pain was simply caused by reflux and demanded an endoscopy which identified the stomach cancer.  The news got worse as further scans revealed a single tumor in her liver; they were 3cm and 4cm respectively. Wow, moving from Stage I to Stage IV sure did not take long.

She immediately started on ECF (Epirubicin, Cisplatin, and 5FU) and after four rounds (each three weeks long) the tumors were no longer detectable on scans and she was classified as being in remission.  After many second (and third and fourth) opinions it was decided not to do surgery in her case and she continued on ECF for another two months.  She experienced nausea with these treatment but a drug called Emend worked really well to decrease the symptoms. 

Post her initial round of treatments the scans were still clear and we changed her chemo regimen to Oxaliplatin and Xeloda (initially 5,000mg/day but quickly reduced to 4,000mg/day); she continued on this regimen for another 4 months before switching to just 5FU delivered every two week through her port (she was on this for the next 4 months). 

After more than a year of chemo, our oncologist suggested a break and to 'see what happens,' however our second and third opinions disagreed and she started again on Xeloda (also known as capecitabine) which she takes orally.  Unfortunately about 8 months into her treatments she developed a blood clot on her pancreas and had to start on coumadin - this was not a problem until we switched back to Xeloda which cannot be combined with coumadin so now we inject her daily with a lovenox type drug (this drug cost a pretty penny).

So here we are a year and a half post diagnosis and she remains on chemo with the advice of multiple oncologists (from Dana Farber, Sloan Kettering, Yale New Haven, and Columbia) all suggesting that she basically stay on a chemo treatment for as long as her body can tolerate it.

Through it all she has completed her Master's in early childhood education, received her teachers certificate and started back to work fulltime.  She remains in good health, has lost no weight and is motivated to continue the battle.  Initially she did have some nausea but a drug called emend took care of that, lost her hair (and has now grown it back and she used a good quality wig which helped her deal with it), lost layers of skin on her feet (this grew back to), lost some sensation in her hands and feet (feeling came back but not to where it was prior to seeking treatment).  As important as anything, her attitude has remained strong with a confidence that she can BEAT IT.  So far she has.  Praying hasn’t hurt her any either. 

That is her story so far.  She is very lucky as we caught it early and have had access to multiple professional opinions from leading cancer centers.  Also, that my mother in law (her mom) is an organizational wiz and we all have color coded binders with every test, every scan, every physician note, and every step of her treatment – this is a MUST HAVE to keep track of it all and be able to present the entire case study to physicians for their opinions (they will only be as good as the information they have to review). There are other success stories on this site.  We continue to take it a day at a time.  Since August of 07 we have had no signs of the cancer returning and sincerely hope it never does.

I hope this information helps. 

Mar 07                          Apr 07                          Aug 07                        

Diagnosed                     Starts ECF                    Scans Clear                 

Stage IV                       Chemo                          Remains on ECF          

Oct 07                          Mar 08                          Aug 08             Nov 08

Changes to                    Switches to                   Back to             Still on Xeloda

Oxaliplatin/Xeloda          Just 5FU                       Xeloda              Scans Clear

 

STEVE (aka momwithkids)

 

RE: my mum is stomach cancer

by hopeformum on Sun Mar 01, 2009 12:00 AM

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First of all thanks for your reply..I looked up the page if there is any reply and i read about other patients' stories who are fighting with this bad cancer.I also read about your wife's story and thanks God she succeeded.

We are living in Turkey and our doctor said that;

^^In stomach cancer, chemoterapy isn't absolute solution. It provides to shrink tumor cells before operation or it is used after operation  so chemoterapy is assistant treatment .but  operation (total or subtotal gast.) is absolutely necassary for definite convalescence.^^

I understood  that your wife is only treated by chemoterapy and it made progress. You have many kinds of chemoterapy treatments with different type of chemical combinations.your wife's stomach hasn't been taken?(what i mean is she hasn't had an operation?)

we use cisplatin,taxotere,5-fu and as you said we are taking Emend and it really works.

My doubt is; altough my mum in chemoterapy; these tumor cells spread..

we have 2 options:

1) Fistly my mum will be operated (total gast.) and than followed by chemotarpy

2) Firstly chemoterapy if tumor cells shrinks will be followed by chemoteray or radioterapy.

The first choice is risky because altough the cells are in stomach(what i mean is local cancer) they are very large and operation is risky.

so we chosed the second option but i have doubts if cancer makes progress altough my mum in chemo.

 thanks for your reply and your best wishes...

                                                                   Basak (from Turkey)
 

 

RE: my mum is stomach cancer

by jbnhcd on Sun Mar 01, 2009 12:00 AM

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My Mom is 49 yrs old too and also has stage 4 stomach cancer. They can't do surgery. She is on a very high dosage of chemo. She does chemo Mon for 7 hrs, Wed and Fri for 4. That schedule 3 xs a week every 3 weeks. She keeps a thing, not sure what it is called, pumping something in her for 24 hrs straight, I understand what you are going to and the sleepless nights and being scared.
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