This is a copy of a reply to another posting here in the CLL forum. I thought I should also add it as a new discussion too. Why not right? After reading this I would love to know if anyone here has tried some or all of the things I wrote about in the e-mail below. I am always interested in hearing about other peoples experiences especially when I hear it directly from fellow CLL patients themselves.
Hi Lisa,
Sorry it's been so long since you posted your question. I have kind of been sticking my head in the sand lately but now have snapped out of it. Yea!
I have major sugar cravings. I love me some desert and chocolate for sure. I have always been a desert girl. Skip the meal lets have desert. Yeah unfortunatly cancer loves sugar. I struggle with this a lot. When I feel down I want comfort and that is inproper foods and lifestyle.
Recently I jumped back on the proactive wagon so to speak. I have mentioned how awesome my Oncologist is and I trust him completely. I also know that there are measures I should take myself to give myself the best situation possible. I just wan't quite ready to commit.
Several years ago a very good friend told me of an Integrative / Aternative Medicine Dr she has been friends with for years. He treated her mothers pancreatic cancer along with her oncologist at Sloan Kettering. This was a very long time ago. Her mother was given less than 6mos. She had more than 5 yrs with good quality of life thanks to her Dr's. My friend gave me his number but some how I never was ready to call him till recently. I looked him up on the web. I was supprised to see how accomplished he really was. Top in his field. He was also a cancer survivor himself. This was the deciding factor for me finally calling him. I would love to give you his name but I am not sure we are allowed to do that here on the message boards. Any way I am only stating all this to show that this info comes from a very very very good source.
When I spoke to him he laid out exactly what a person with CLL could be doing to be proactive. This Is what he said.
1) Get a good juicer. Make Beet and Carrot juice. Dirnk 3 times daily. Get organic beets and carrots if not organic then peel them. ( I add an apple too)
2) Research Methyl Jasmonate. It is exspensive but it is speciically beneficial to CLL patients.
3) (this part put me off the most) Coffee Enemas daily 2-3 times. The coffee has to be brewed in an glass percolator or stainless steel. No plastic parts to touch the brewing of the coffee.
4) No dairy at all! Not feta,not skim milk, nada nothing!
This Dr. does not gain financially from anything I listed above. He is not vested in anything I listed above either. He did not charge me for his time. He offered to colaborate with my Oncologist and said he would call me in a couple weeks. I thought all this couldn't hurt and it possibly will help so what do I have to loose right? It has been 1 week and I can tell you I have more energy, before I had almost none. I don't see my Oncologist again till the end of April. I will let you know if there is any difference.
If you are interested there are a few other things I have learned lately thru talking to people while in the waiting room at my oncologist office. One is castor oil packs. They are excellent in helping lymph function, liver, spleen and it really helps keep a strong immune system etc...Who knew? Taking up Rebounding (mini trampolione) is supposed to be the most beneficial form of exercise for lymph flow and health.
All this sounds like I am some sort of health freak but trust me I am not. This does not come naturally for me at all. I like my wine, pizza, deserts and can couch potato with the best of em. I have to admit that I have not cut dairy completely out. Geez Rome wasn't built in a day.
Whew what a mouth full all that was. Sorry to drag on and on I am just really excited to share all the things I have learned recently. I'm no Dr. I am just telling you what I am trying and what is working for me. Hey if you want to talk more just e-mail me direct
--Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at
http://www.cancercompass.com/common/guidelines.html-- Take care
Becky