I Have It And Don't Know What To Do!

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I Have It And Don't Know What To Do!

by JaimeLyn on Mon Mar 09, 2009 12:00 AM

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I have been to three different doctors 2 of which fired me as a patient because they said I would not go through with what they've said, the third doctor took real good care of me he had done a PAP an then said I needed a LEEP procedure done which I went through now I'm seeing a  cancer specialiest because the LEEP revealed that there was no normal cells. I had some blood work done & a CT scan which I have to wait till the 12th of this month to see whats going on an how far it has spreaded or if it's in one spot, the cancer specialiest said that the tumor was 5mm which doesn't seem very big at all I have three choices which are either radiation and chemo therapy or a historectomy, I'm so damn dumb founded that I don't know what to do anymore. I've been taken XANAX & CYBALTA do to all the stress and depresstion. My whole family has been through hell and back since all this went down, which I had found out that I had moderate cervical dysplasia in MAY 5TH of 2008 and from what the new doctor said he had mis diagnosed, I hope and pray that the tests I've had done come back with at least some good news and not no more bad, just don't think that I can handle it anymore... To all women out there please make sure to get your yearly PAPS, it just may save your life....

RE: I Have It And Don't Know What To Do!

by tammy2kids on Thu Mar 12, 2009 12:00 AM

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On 3/9/2009 JaimeLyn wrote:

I have been to three different doctors 2 of which fired me as a patient because they said I would not go through with what they've said, the third doctor took real good care of me he had done a PAP an then said I needed a LEEP procedure done which I went through now I'm seeing a  cancer specialiest because the LEEP revealed that there was no normal cells. I had some blood work done & a CT scan which I have to wait till the 12th of this month to see whats going on an how far it has spreaded or if it's in one spot, the cancer specialiest said that the tumor was 5mm which doesn't seem very big at all I have three choices which are either radiation and chemo therapy or a historectomy, I'm so damn dumb founded that I don't know what to do anymore. I've been taken XANAX & CYBALTA do to all the stress and depresstion. My whole family has been through hell and back since all this went down, which I had found out that I had moderate cervical dysplasia in MAY 5TH of 2008 and from what the new doctor said he had mis diagnosed, I hope and pray that the tests I've had done come back with at least some good news and not no more bad, just don't think that I can handle it anymore... To all women out there please make sure to get your yearly PAPS, it just may save your life....

i am just reading this now and wondering what the dr said to you today?  i have been through the same stress and anxiety you have been through so you are not alone. i am new to this message bord and am hoping to find strength in others. please write back and tell me what the dr said, i am anxious for you. i have had a radical hysterectomy and now i am waiting to start radiation on monday. just when you think everything should be behind you it turns out it isn't (in my case)

RE: I Have It And Don't Know What To Do!

by Toddb on Sat Mar 14, 2009 12:00 AM

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My sister was diagnosed a couple of weeks ago.She went to the doc every year for her pap test.She had a hysterectomy and they couldnt get it all.She just had an mri and found out that it spread to her liver.Going crazy Todd

RE: I Have It And Don't Know What To Do!

by Quincys_wife on Sat Mar 14, 2009 12:00 AM

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Dear Todd, please try and be supportive for your sister, you need to get ahold of yourself for her, go with her to her appts, hopefully she can have chemo or radiation.  She needs to see a good oncologist, that is a cancer doctor, you can do it!! Help her all you can and just be there for her, take care, keep in touch, you and your sister are in my prayers, Karen

RE: I Have It And Don't Know What To Do!

by Toddb on Sat Mar 14, 2009 12:00 AM

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Thank you,I know all to well about cancer my girlfriend died from cholangiocarcinoma, bile duct cancer a year and a half ago.I was with her at every appointment, procedure etc.My sister had her first chemo treatment friday yesterday.I live 300 miles from her now.My mother is with her most of the week.My sister is 50 my girlfriend of 7 years was 47 when she died and I will be 42.I just cant believe all of this is happening.

RE: I Have It And Don't Know What To Do!

by tammy2kids on Sat Mar 14, 2009 12:00 AM

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Todd. Did your sister have any follow up treatment after her surgery?  Just wondering because I am in the same situation. They are saying I have more cancer in my lymphnodes and I just had a radical hysterectomy 3 weeks ago. they want me to have 6 weeks of radiation. i guess i should do this.

RE: I Have It And Don't Know What To Do!

by SydsMom on Sat Mar 14, 2009 12:00 AM

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On 3/14/2009 tammy2kids wrote:

Todd. Did your sister have any follow up treatment after her surgery?  Just wondering because I am in the same situation. They are saying I have more cancer in my lymphnodes and I just had a radical hysterectomy 3 weeks ago. they want me to have 6 weeks of radiation. i guess i should do this.

If I were you, there would be no question about getting the radiation therapy.  The radiation will make you tired after a few weeks, but many people manage to continue working, etc.  Did the doctor know the cancer was in the lymph nodes prior to the radical hysterectomy?  Did you have an MRI and PET scan before the surgery?  I was diagnosed with cervical cancer 3B and had six weeks of external radiation, five treatments of internal radiation and five low dose chemotherapy treatments almost two years ago.  Right now everything looks normal and I am hoping it stays that way!  You can do this!  Good luck.

RE: I Have It And Don't Know What To Do!

by Quincys_wife on Sat Mar 14, 2009 12:00 AM

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Dear Todd, boy have you been through alot, I may need you to help me care for my husband who is 43 and has IV stage lung cancer.  He has been through radiation and will be starting chemo on the 23rd of March.  All we can do is love and support, I know that this is going to be very hard on me, loosing my husband, but I can't imagine how he must be feeling.  Right now his spirits are good, I just pray that what time he has left is the best it can be and that he gets all medical treatments that is available for him.  I will keep you and your family in my prayers, take care of yourself, you are needed by your loved ones,Karen

RE: I Have It And Don't Know What To Do!

by tammy2kids on Sun Mar 15, 2009 12:00 AM

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no, the doc did not know it was in the lymph nodes before the surgery.  i don't really understand allot of this, it is so confusing. i spoke with the radiologist oncologist and i left more confused than ever. now my gyn oncologist is on vacation next week and i have to wait to talk to her.  How do they make the decision what the best treatment plan is?  what if radiation doesn't get it all and it has already spread?  my gyn oncologist said i have cancer cells in a blood vessel and in the lymph nodes, the radiation oncologist said that my file says nothing about having cancer in my blood vessels. why is this info conflicting?  the radiation oncologist says that there is no way of knowing and no other tests that they can take for me after the radiation treatment. to make sure it is gone.   does that sound right?

RE: I Have It And Don't Know What To Do!

by teresa1973 on Tue Apr 07, 2009 12:00 AM

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I was diagnosed with stage 1b1 cervical cancer in Feb. "09"  My Gyno reffered me to a wonderful Gyn. oncologist. She told me straight up front if the cancer had entered the vagina or was stage 2 or above that  I would not even be considered for surgery. I went in for a radical hysterectomy she removed the 3 lymphnodes closest to the tumor she told me pre-op if they were positive for cancer she would just close me back up and I would have to do chemo and radiation. I was blessed and the lyphnodes came back negative. I was in surgery four and a half hrs.  and a hour and half was waiting for the pathology report to come back. She came out and told my family that lymph's were negative and she was going ahead with the surgery, that was on Thurs. I had to wait an additional 4 days for the results of the rest of the lymph's I was once again blessed for all of them to be negative for cancer. My Gyno. wanted to do a hysterectomy in Dec. "08" and my insurance denied it. My oncologist said that they actually done me a favor had he just performed the simple hysterectomy the cancer would have been a whole lot harder to treat. Make sure you always get an opinion from an oncologist.
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