stage iv of rcc ?

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stage iv of rcc ?

by heavenbound on Wed Mar 11, 2009 12:00 AM

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My brother has RCC and is now in stage 4. The Drs. has given him a year or less to live. He was put on Sutent last week. I've been reading the side effects of this med. here and it sounds horrible. My question is; if he has a yr. or less, than why bother going through the side effects and what does the drug do? Will it give him longer than a year? will it just ease the pain of cancer? I have so many question's. Is there a site I can go to that is informative? I'd appreciate any info on this. Please say a prayer for him, his name is Earnest. God bless you all and good luck.

RE: stage iv of rcc ?

by perkins7 on Wed Mar 11, 2009 12:00 AM

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On 3/11/2009 heavenbound wrote:

My brother has RCC and is now in stage 4. The Drs. has given him a year or less to live. He was put on Sutent last week. I've been reading the side effects of this med. here and it sounds horrible. My question is; if he has a yr. or less, than why bother going through the side effects and what does the drug do? Will it give him longer than a year? will it just ease the pain of cancer? I have so many question's. Is there a site I can go to that is informative? I'd appreciate any info on this. Please say a prayer for him, his name is Earnest. God bless you all and good luck.

Sorry to hear about your brother. My husband also has stage 4 RCC and they just started him on Torsiel. It was that or Student. It this works for your brother it may prolong his life. It seems some people get along better on Student than others. I will say a prayer for you and your brother and hope you get alot of responds on this.

 God Bless U

 

RE: stage iv of rcc ?

by carl74 on Thu Mar 12, 2009 12:00 AM

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On 3/11/2009 heavenbound wrote:

My brother has RCC and is now in stage 4. The Drs. has given him a year or less to live. He was put on Sutent last week. I've been reading the side effects of this med. here and it sounds horrible. My question is; if he has a yr. or less, than why bother going through the side effects and what does the drug do? Will it give him longer than a year? will it just ease the pain of cancer? I have so many question's. Is there a site I can go to that is informative? I'd appreciate any info on this. Please say a prayer for him, his name is Earnest. God bless you all and good luck.

Sorry to hear about your brother Earnest. Did he have a nephrectomy? That is usually the first line of defense. Doctors are only guessing as to longevity and most will refrain from making that prognosis unless pushed to do so. I have been Stage 4 for more than 4 years, Thanks be to God.

Cancercompass is a nice site but the kidney cancer list on ACOR.ORG has more than a thousand survivors/caregivers who offer lots of good support and recommendations. I would join it as well.

RE: stage iv of rcc ?

by heavenbound on Fri Mar 13, 2009 12:00 AM

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Thank you both for responding. As I continue praying for my brother, you are in my prayers as well. Living with stage iv for 4 yrs. is very incouraging. I just feel so helpless and trying hard to hold back anger because of the way he's been treated. My brother is an inmate, in Arkansas.  In Aug. of 2006, he developed chest pains and was sent to the infirmary. He was put on asprin. The pain continued and finnally after a month they took him to Little Rock for test. During these test, they found a small spot on his right kidney. When they took him back to discuss the test with him, he was told he had kidney cancer as well as 3 major blocked arteries. The prison and CMS (Cummunity Medical Service, in the prisons over the state of AR.) was made aware of his medical condition. The drs. in L/R wanted to take care of the heart first. Let him heal of that and then take care of the kidney. The drs. would make an appointment for heart surgery, CMS would cancell. When Earnest, would mention the spot on his kidney, CMS would tell him not to worry, it's only a mass. No medication was given for this.

In July of 2007, he became ill and in Aug. ( a year later) was finnally allowed to have heart surgery. I give God the glory because its unusual for the prison to do this. This a year later and still no med. was given for the kidney. 

After heart surgery, he was given an appointment to come back 3 months later to take care of the kidney. Again, CMS would cancell appointments time and time again. It's only a mass, they would tell him, don't worry.

In April 2008, he became very ill. He was taken to L/R for test. When he went back for the results he was told the cancer had spread from the kidney to his right lung. They allowed him to have surgery and on the 26th. day of June ( almost 2 yrs later, when the spot was first detected), the drs. removed his right kidney, the lower lobe of his right lung and shaved 3 layers off  his back muscle. He was on the table so long, the drs. closed him up and made an appointment  for 30 days later             (in July) for a follow up surgery on the artery. Again CMS cancell appointments. It's March of 2009 and no follow up surgery has been done.

As of today, he has a spot on his left kidney and multiple spots on his left lung. Last week he was finnally given medication, for the first time, for his kidney. Sutent.

CMS, knew for almost 2 yrs. he had kidney cancer and didn't do anything. No treatments or medication of any kind. I believe if they had treated or even removed the kidney when the small spot was first dicovered,  he would not be going through what he's going through now. I feel as though CMS, has placed a premature death sentence on my brother.

I'm trying hard to keep my faith and yet so angry with CMS, for their uncaring attitudes toward inmates. His free-world dr. and the CMS dr. has agree'd that Earnest, has a yr. or less.  By the two agreeing, my brother falls under an act that is called ACT290, which states an imate that has a yr. or less may be released. That paper work is in process now. My brother is a lifer with the possibility of parole. We've prayed for years for his release, but not this way. So I question myself, what did I miss? did I not pray right? ? ?  I don't know.  My prayer now is; God, You use this situation with Earnest, to get him out of prison and home with his family. Once you have accompished this, Lord heal his body, totally, completely and may that healing manifest from the top of his head to the bottom of his feet. In Jesus name and to You and You alone, I give  the glory!

If anyone is reading this, that has a loved one in prison, you must know, he or she , has no voice. You must be their voice.  Make sure they put you on their medical information release form. CMS, does'nt have to tell an inmate anything. If your loved one calls or write's home and says he or she is sick and the infirmary won't doctor them, that's when you step in. You become their voice. Call the prison and the Medical Facility.  Chances are, you will be put off, lied to, shiffed to one phone number to another, but don't give up. Call your State Rep. if nessecery. E-mail or write your Gov. and explain what is going on. Unless the family gets behind loved one's, a serious sickness will go un-treated. And remember, don't give up. I know it's only by the grace and mercy of God, that Earnest, got the surgeries he did.

I will continue to pray, that a cure for RCC is found soon. We don't know what tomorrow holds, but I know who holds tomorrow. His name is Jesus.

I pray the blessing's of Abraham over you and your families.

RE: stage iv of rcc ?

by surysurender on Fri Apr 17, 2009 12:00 AM

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May God give you all the strength . My wonderful fater passed away
with RCC stage 4 last month. It was a rollercoster ride for the entire
family. My dad was diagnosed on Feb 4 2009 and he passed away on march
27 2009 , guess the cancer was very agressive. The doctor put him on
sutent for a month, he showed excellent results for the first month
,but after that it was a study decline, the cancer had reached his
brian and even radiation did not have much effect. 

             
               I wish everything goes well with  your father, I knwon
how helpless you might feel right now, but really we have to gain as
much strength as possible to face this dreaded diseases. Please let me
known if you need any information regarding suten. God bless

RE: stage iv of rcc ?

by BengtH on Fri Apr 24, 2009 12:00 AM

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I was diagnosed with RCC stage IV in January 2009. The doctors recommended Sutent. I am now on my second month of taking Sutent. So far I have not had any of the bad side effects of Sutent. All I have noticed is that the urine turns brown.

I still have my kidney with the cancer on it. I also have tumors all over my bones. However no sign of cancer in the lymph nodes.

My doctors are not sure if I should remove the kidney or not. There is currently a study going on to determine if there is an advantage to removing the kidney or not when you are on Sutent. I have to wait for about two month to get the result of the study.

Good luck to all of you.

RE: stage iv of rcc ?

by ilovejohn519 on Fri May 29, 2009 12:00 AM

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On 4/17/2009 surysurender wrote:

May God give you all the strength . My wonderful fater passed away
with RCC stage 4 last month. It was a rollercoster ride for the entire
family. My dad was diagnosed on Feb 4 2009 and he passed away on march
27 2009 , guess the cancer was very agressive. The doctor put him on
sutent for a month, he showed excellent results for the first month
,but after that it was a study decline, the cancer had reached his
brian and even radiation did not have much effect. 

             
               I wish everything goes well with  your father, I knwon
how helpless you might feel right now, but really we have to gain as
much strength as possible to face this dreaded diseases. Please let me
known if you need any information regarding suten. God bless


I can certainly related to your story, my mom was diagonsed in Dec with stage IV RCC which spread to her pelvic bone which caused bone fractures was put on sutent for 28 days but in the meantime did have radation for the pelvic but spread to her brain when we had her admitted to the hospital on March 25 well sadly to say things went down hill from there and she passed away 1 day after her 70th birthday. Did your father fall into a coma after it spread to his brain, because my mom was not right after it did, she was awake for a bit after the inital hospital admit but never really was right after that.

I hate this disease so much, it's only been 4 wks since she passed away and I was doing okay until this past few weeks I guess it's all starting to hit me that she's really not coming home and it's the hardest thing I've ever had to deal with. 

 

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