One patient with glioblastoma still alive nine years later
by TrixieTrix on Tue Mar 17, 2009 12:00 AM
A friend of mine was diagnosed two days ago with Kidney Cancer. They also found that he has lung cancer as well. From doing a bit of research it shows that kidney cancer can spread to other organs including the lungs. They are not too sure yet which is the primary and which is the secondary cancer. they have made it very clear that he is very sick and worst case senario they have given him 6 months.
He is having the diseased kidney removed in the next few day and they are going to start chemo straight after that.
What do you suggest we try? Do you have any advice on the support base that he needs, what to say / do and what not to say/do? Other treatments that we are not aware of?
Just anthing positive so I can pass it on. He is very down and I dont want him to fall into a negative frame of mind.
by cancergotme on Tue Mar 17, 2009 12:00 AM
by perkins7 on Wed Mar 18, 2009 12:00 AM
On 3/17/2009 TrixieTrix wrote:Hi,A friend of mine was diagnosed two days ago with Kidney Cancer. They also found that he has lung cancer as well. From doing a bit of research it shows that kidney cancer can spread to other organs including the lungs. They are not too sure yet which is the primary and which is the secondary cancer. they have made it very clear that he is very sick and worst case senario they have given him 6 months. He is having the diseased kidney removed in the next few day and they are going to start chemo straight after that.What do you suggest we try? Do you have any advice on the support base that he needs, what to say / do and what not to say/do? Other treatments that we are not aware of?Just anthing positive so I can pass it on. He is very down and I dont want him to fall into a negative frame of mind
Just anthing positive so I can pass it on. He is very down and I dont want him to fall into a negative frame of mind
I agree till him not to give up my husband also has his kidney removed and it spread to his lung a year later. He is on Torsiel right now and is still working. He has made up his mind to enjoy every day he has it is such a gift.
by susaninatl on Wed Mar 18, 2009 12:00 AM
Your friend is lucky-everybody needs real friends to face Kidney Cancer. Lots of info too! Its too hard for the patient to face the reality of the disease and look for treatment options too, so thats where you come in.
Kidney cancer OFTEN goes to the lungs-it is the most common site for metastatic disease. Your friend won't know for sure until the pathology report comes back but kidney cancer is a more likely diagnosis. It would be unusual for lung cancer to spread to the kidneys and nowhere else. (With cancer anything can happen) Cancer is never good news, but there are lots of new treatments for kidney cancer in just the last few years so the outlook is SO much more positive than just a few years ago.
My husband and I believe he is still here with me today because he got a second opinion before surgery at a major research hospital. Look at the Kidney Cancer Association's website and find a center that specializes in Kidney cancer-they have a number you can call. With surgery and the new drugs many people live for years with this disease. Some are lucky enough to become disease free even if the cancer has spread beyond the kidney.
Great treatment from the start is absolutely key. It delayed my husbands treatment a week to get a second opinion at a research center-but it made a world of difference in the decisions he made. 18 months later he's still living with cancer-but living a good life. Some on this web site and on kcalist.org have lived a good life with this disease in the background for 10 years or more. Look for posts from these long term survivors for encouragement on a tough day: Bunker, itsdaplumber, mickeral,dahliaman and pressonregardless if you two need inspiration. There are others, but these were some of the survivors who helped us see light during the dark days.
Keep posting. This site and kcalist.org are both great sites-you'll find priceless support and advice. My very best wishes to you and your friend in your fight.
PS as far as what to say:-Right now make a list of questions and ask EVERYTHING-don't be timid. For the doctor its their job-for the patient its their life. The good docs understand why you're asking all those questions.
by UKSteveK on Wed Mar 18, 2009 12:00 AM
I was diagnosed with Kidney cancer in december 2007 and I also had secondary tumours on my lungs and another large tumour on my left ankle. I was put onto Interferon which I injected 3x a week for 5 months. The tumour in my ankle started reducing straight away and the following CT scans showed a reduction in the primary and secondary tumours. The tumour on my kidney had reduced from 75mm to 30mm and there was only one tumour remaining on my lungs which they felt was probably dead.
At the end of January this year they operated to remove my left kidney and when they did a biopsy of the kidney they found the cancer had been completely destroyed. I have to go back for a CT scan in 3 months and probably will have to repeat the scan at frequent periods to check for any return but the news is very promising.
I hope my experiance gives you hope.
by TrixieTrix on Thu Mar 19, 2009 12:00 AM
Thanks so very much for your reply. It has made a HUGE impact on this situation and given us amazing hope. I am really grateful.
Thanks for the reply. You story has really given us hope. I think being told you have cancer must be the scariest thing on earth. I admire all who have cancer and are fighting it. It is such an inspiration - the fight for survival is amazing.
I am really amazed at the rresponses I have received so far, I am really happy that I joined Cancer Compass.
I think it is very sad that your friends pulled away, but I am happy that you have got such great friends and support on this site.
by mrsscott on Thu Mar 19, 2009 12:00 AM
M y husband has been under treatment for 7 years for kidney cancer. During that time, several new drugs have been introduced for treatment. He is still working and all things considered, he is doing well. There are side effects to the treatment drugs, but he handles them like a champ. We have a strong support group, consisting of our family and church group. We've been given more time than we thought we would have.The news of cancer is devastating, but it isn't necessarily the end. There are many choices of treatment and, with your doctor, you will decide which is best. A positive outlook will help things along.
by UKSteveK on Thu Mar 19, 2009 12:00 AM
I am glad I was able to give you hope. I would like to wih all the best.
by Closey73 on Wed Nov 18, 2009 06:29 PM
My Dad has just been told he has Cancer in the Kidney and on the lineing of his lungs. Just read all the notes left on this site and it was very interesting, I hope everyone on here concerned pulls through and lives happy and longful lives and thanks for a great site to learn from
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