Follicular Lymphoma

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Follicular Lymphoma

by rcfp74 on Wed Mar 18, 2009 12:00 AM

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I was diagnosed with Follicular Lymphoma in my duodenum in July or 2008. I had no symptoms and felt great, (still do). I went to an oncologist who ran tests, bone marrow, P.E.T. Scan. No evidence of it anywhere else. (This is after being diagnosed with breast cancer (lumpectomy got it all) in Jan. My oncologist wanted to just to the watchful waiting. ( My husband and I did not really like this idea even though it is in early stages) I sought the opinion of 2 other oncologists, one here in AK and one in Alabama that was recommended to me. The doc here recommended 8 doses of Rituxan and then a repeat endoscopy 3 months after the first treatment. The one in Alabama recommended R-CHOP, I opted for the Rituxan on it's own. The plan was, if Rituxan alon did not work then we would do the R-CVP. Well, the pics shows that the nodules were not there anymore, however the biopsy shows that it is still there. Now, Do I continue with Maint. on Rituxan only or go with original plan and do the R-CVP? Anyone else, have this cancer that went through treatment that was satisfactory? My oncologist says that he would stage it at 1E whatever that means! Thanks in advance of any help or opinions..
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