Astrocytoma,grade 4-survival?

15 Posts | Page(s): 1 2  Next 

Astrocytoma,grade 4-survival?

by Den_g on Tue Nov 08, 2005 12:00 AM

Quote | Reply
A very close friend has an Astrocytoma, grade 4. He had surgery to remove one tumor in April of this year. He hasn't been doing great, but then again, when you think about what he's been through, he's been doing very well. I'll be blunt. I can't get a straight answer out of anyone. What can I expect? He's like a brother to me, and I want help however I can. Thanks, and I'm sorry cancer brought you here too.

Survival

by Gagbm on Wed Nov 09, 2005 12:00 AM

Quote | Reply
Den, there is no clear-cut answer to your question as this disease affects people so differently. The statistics say median survival with a Grade 4 tumor is 12-15 months. That being said, there is a small but growing number of 5 and 10 year survivors. Indicators of long-term survival are: 1) Age <40; 2) Tumor that can be completely resected; 3) No other major health problems that interfere with treatment; 4) High Karnofsky performance (i.e., no major cognitive impairments). There are patients that don't have these characteristics and do very well, and there are patients that have these characteristics and do poorly. If you want to help your friend, one of the best things you can do is have him seen by one of the country's major brain tumor centers. These centers have a team of neurosurgeons, radiation oncologists, and neuro-oncologists that specialize in only treating brain. In addition, they offer some of the most promising clinical trials available. While there is no scientific study that proves patients of the major centers fare better than those using local doctors, virtually all of the LTGBMS's (long-term GBM survivors) we know have their treatment choreographed by a center. You can go to virtualtrials.com and peruse where the most active trials are. Good luck!

Astro

by Garland on Wed Nov 09, 2005 12:00 AM

Quote | Reply
Gagbm just gave you about all the advice that could be given now....not promising but not defeatism either. what treat is your friend on now?

Gbm Grade iv

by Debmac on Wed Nov 09, 2005 12:00 AM

Quote | Reply
My husband had surgery in April for a GBM Grade IV (Glioblastoma Multiforme Grade IV Astrocytoma). He is 54 yrs old and in otherwise great health. We were told they were able to take out 90% of his tumor. It is in the left temporal lobe and has spread over to the parietal lobe. He cannot have any further surgery. His treatment is being overseen by a neuro-oncologist at Vanderbilt University, but receives his treatments locally. I will just tell you how he is doing although as I am sure you have heard a hundred times, everyone is different and that is true. He started out with the radiation plus Temodar and then just Temodar treatment. The Temodar was not doing the job for him and his tumor grew. He is now on CPT-11 (usually used for colon cancer) and as of now the growth seems to have slowed. He is on a load of medications. He tires very easily and has alot of trouble with his speech. He is sleeping alot and really has very little stamina. He still takes care of his own medications, but seems to be getting more confused about it so I will probably have to supervise that soon. He also has become very emotional. He does go to work most days, but works in his family's business, so I think he mostly takes naps and just hangs around. Our daughters work there too so they take care of him. I don't know what to expect either, but if there is anything I can do to help you just let me know. I am sorry this is so long, but just let me end by saying that they need alot of patience, understanding, and TLC. Take care and I wish your friend the best. There is ALWAYS hope.

What to Expect

by Marmie on Wed Nov 09, 2005 12:00 AM

Quote | Reply
Hi Den, Sorry to hear you about your friend. The most important thing is to keep the faith and try to remain as positive and focused on treatment as you can. And I am sure your friend recieves great comfort by your just being there for him. My husband dx in Jan. 05 was given six months or less and we are now 11 months out and he is still doing very well. Just try not to focus too much on the statistics because they can be very depressing. There are alot of long term survivors out there. Take care and good luck. Patty

What to Expect

by Eglddad on Fri Nov 11, 2005 12:00 AM

Quote | Reply
I think it is different for everyone but I just passed the one year point. I am 41 currently being treated at MD Anderson on a trial with Temodar 1 wk on/off, my biggest side effect is fatigue, I still work, I was a pilot(they don't let me fly anymore but maybe in a few years)but I still work as a safety guy. I work out every day, still trying to lose the weight from the steroids and my wife and 4 children seem to think I'm still pretty functional. I was 40 when I had a cat scan on 10/30/04 that found the tumor and surgery on 11/03/04 70% removed. My neurosurgeon teared up when he told me that I had a GBM and the typical diagnosis. I elected to go to Houston and see if I could get something more promising. I had temodar and RT at MD Anderson and started on the trial. So far so good, no sign of growth or progression and the 30% left behind seems to be gone. Next MRI on monday

What to Expect

by Garland on Sat Nov 12, 2005 12:00 AM

Quote | Reply
Egldad...good luck on monday, we'll be thinking about you.

What Hospital?

by Rejrose on Sun Nov 13, 2005 12:00 AM

Quote | Reply
Hi, I was going through the message board and noticed that you are getting treatment at MD Anderson. Where is the hospital located? We are from Texas and are trying to locate a Doctor that is using Temador treatment. If you don't mind, can you send me the name of your doctor? How do you like him/her? Thank you, Rebecca

md Anderson Doc

by Gagbm on Tue Nov 15, 2005 12:00 AM

Quote | Reply
Dr. Mark Gilbert at MD Anderson is one of the nation's most experienced neuro-oncologists.

Gbm Grade iv

by Debby1 on Mon Feb 06, 2006 12:00 AM

Quote | Reply
Dear Debbie M Thank you for writing to the msg board and sharing your families situation. I agree... there is always hope. i just quickly wanted to ask you who you are seeing at Vanderbilt. I live in Hopkinsville,Ky which is about 7o miles from Nashville. We have been seeing a local guy but get the sense he doesn't have alot of experience with Temodar (my tumor is inoperable but this month we are one year out after RT/ Temodar concurrent and so far 9 monthly tx (5 days on/23 off) I keep hearing of different tx, and Temodar resistance, etc. Any information you could send would be helpful. Thanks and God Bless. Debra
15 Posts | Page(s): 1 2  Next 
Subscribe to this message board discussion

Latest Messages

View More

CancerCompass Survey

If you were considering traveling for cancer treatment, which headline would you find more interesting?

Get $75 for taking a research survey

We care about your feedback. Let us know how we can improve your CancerCompass experience.