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Help! Need to Talk to Someone

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Subject: RE: Help! Need to Talk to Someone
Date: 07/13/2003
I have had MM for nearly 4 years now, I chose not to have the stem cell transplant. I read up on it considerably before my decision. I have mixed alternative measures with conventional ones with close monitoring. I have not gotten any better but my decline has been slower than many others. In regard to your husband's mental response, some of it is most likely protective for you; he doesn't want you to see him in pain or looking so bad. He should change his posture about 4 weeks into treatment, hopefully. I had a friend who succumbed to MM after 2 1/2 yrs. who didn't want to talk to me about his bout or return calls. Don't give up, don't let his response affect your love or care for him. If you do not have him on any prayer group, get him on a list. I believe this has helped me more than any other thing. I have people praying for me and my wife all over the world and I know it has sustained us in our battle. You are already in one prayer group I know.
Subject: Hey
Date: 04/28/2005
Heya, don’t worry he most probably doesn’t want you there because he doesn’t want you to see the state he mite be in? I am not being nasty or anything but if your really concern on wondering if you actually think he doesn’t want to see you again then why don’t you just make a secret visit and just speak to him, but to be honest I don’t think it is anything to do with him braking up with you or him not wanting him to see you, it is the fact that he doesn’t want you to get any more upset about what has happened then you are now!! And he doesn’t wanna see the state he is in!!!! Okay so quit worrying and get it sorted lovey lol
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Subject: RE: Help! Need to Talk to Someone
Date: 01/06/2007

 

On 6/3/2003 Rosemarie B. wrote:

Hi, my name is Mike and my wife has Glioblastoma multiforme (Brain Tumor). I had to do a lot of understanding of what she had and have a lot of hope so we can make it through this together. We have been married for 34 years and I will not let this stop my hope and believe that we can make it. It is very hard to keep looking at the good side when others tell you can't beat this, but you must not let your belief in God and you doctor get away. We have days when it is very hard to know what we have to face but look at the good that has happen in your life so you think of that not the bad things. You have to be the strong one for now and not let him think you will not be there at all times for him, he will get depressed a lot and needs some one that will say no I’m here always for you. I do think the cancer meetings at most hospitals are very good to attend and we go every month and meeting people like us with cancer so we know how many have been told they will die and have been here for 5 or 6 years and still doing fine. I will take your letter to our next meeting on the 18th and you will probably hear from a lot of them so you need to know there are a lot of people out here just like you that do care for you and your husband. I believe the mind has a great part in making it and times will be hard but plane when we get through this what we will do then not look at what if. I have most wonderful wife in the world and will not let her go now so we need each other more now then we did before. We are making plans for when she gets done with her radiation so we can make a short trip some place and spend some time doing some thing together. We do not forget that she has a brain tumor or that it is bad but we know a lot has been good so far too. I have to do a lot of reading on cancer to find out what is going on and the hope that there can be people make it that is how I found you letter out here and so get out and take with people and keep him updated so he knows that a lot of prayers are there for you two. We have a lot of people praying for use and I will see to it they put you in there too. I do want you to know others have are out there and do care to but can not feel what you do when this happens to you so do give up just believe that (God) Doctor and you and him can do it. Mike & Rosie


Hi

I will start by saying that i am very proud of you for hanging in there i know what you are going through as my partner of eighteen years has the same  the highest form grade 4 and diognosed terminal like you i am strong but sometimes i do break down  but never in front of here ect it is very hard to see the one you love fade a bit more  every now and again i don't know about you but it's all the little things i miss.  Everywhere i look i can see here doing the things she used to do ect ect but all the time now she is in bed and i care for her now fulltime as i have done for the last 9 months because we love them so much we will do anything for them.  People around me keep saying that you should get more help but as i feel that only i can do the things she needs.. I do have ashley care twice a day but by the time they arrive i have done everything anyway as that is how i do things coz i love my lesley so much i am there for her no matter what, and i do look at her when she is sleeping and still talk to her as she sleeps aswell  as i know she here's me coz of the smile she gives me somtimes ...I just hope that i can go on being strong for her...

                Regards....Terry
 

 

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