Fiber-based formulations appear to lower the odds for the disease, non-fiber products seem to raise them
by Ngocdiep on Tue Mar 24, 2009 12:00 AM
I have posted previously: My father went to the emergency on feb 3, 2009 due to a sciatica nerve pain but then was diagnose with advanved stage iv renal cell carcinoma (kidney cancer). They also indicate that it has spread to the lungs and liver. The tumor size is 8"X5" on his left kidney. They have done CT SCAN, MRI, BONE SCAN, and BIOPSY. They have him on 10 radiation treatment which started on feb 12, 2009. They will also start him on chemotherapy pill, waiting for approval as we speak. He was discharged from the hospital on Feb 13, 2009 only to be re-admitted on Feb 23 to the emergency due to not able to breath. They have done a blood test and it shows his oxygen level is low enough for oxygen therapy. As of today, March 1, 2009, the doctor has him on antibiotic for an infection in his lungs and he's also starting to have pneumonia. He is currently on oxygen with Saline IV and antibiotics (levofloxacin).
As of today, March 23, 2009, my fater has been on sutent for 18 days. He seems to be getting better. He now relies on oxygen daily and when asleep, he requires to be on a BiPap ventilator machine. Does anyone have experience with sutent for stage 4 kidney cancer?
by Asli_Su on Tue Mar 24, 2009 12:00 AM
by atthebeach on Wed Mar 25, 2009 12:00 AM
On 3/24/2009 Asli Su wrote:My mother's rcc spreaded lymph node and lung in 2005 after one kidney removed in 2002 due to rcc. We found spread only Dec 2008 and immediately started Sutent 50mg. She got BT Scan showed her tumors got half size down. Hope to proceed like this. I believe Sutent will give good results on your father, good luck.
I was diagnosed with stage 4 RCC in Nov 08 with large masses on both kidneys and mets (possilbe tumors) in my lungs. The prognosis was pretty grim. Here 4 months later I am winding down on my 3rd cycle of 50 mg sutent. After the first round a CT scan showed that the tumors were beginning to get smaller and my oncologist was cautiously optimistic and we hope the next scan will be better. Although Sutent doesn't work for everyone and the side effects can be challenging, from what I have read on other sites, the drug has been a life saver for many with tumors disappearing or being reduced in size. I am just happy to still be around. Hopefully, your Father will see the same kind of results. Towards the end of the 28 day cycle, the side effects (rash, fatigue, cold intolerence, skin blisters, mouth sores, aches and pains) may intensify. However, every cycle seems different and my last one ( now) the side effects have been reasonably mild. There some things you can do to lessen them. Hang in there.
by makis on Thu Mar 26, 2009 12:00 AM
On 3/24/2009 Ngocdiep wrote:I have posted previously: My father went to the emergency on feb 3, 2009 due to a sciatica nerve pain but then was diagnose with advanved stage iv renal cell carcinoma (kidney cancer). They also indicate that it has spread to the lungs and liver. The tumor size is 8"X5" on his left kidney. They have done CT SCAN, MRI, BONE SCAN, and BIOPSY. They have him on 10 radiation treatment which started on feb 12, 2009. They will also start him on chemotherapy pill, waiting for approval as we speak. He was discharged from the hospital on Feb 13, 2009 only to be re-admitted on Feb 23 to the emergency due to not able to breath. They have done a blood test and it shows his oxygen level is low enough for oxygen therapy. As of today, March 1, 2009, the doctor has him on antibiotic for an infection in his lungs and he's also starting to have pneumonia. He is currently on oxygen with Saline IV and antibiotics (levofloxacin).As of today, March 23, 2009, my fater has been on sutent for 18 days. He seems to be getting better. He now relies on oxygen daily and when asleep, he requires to be on a BiPap ventilator machine. Does anyone have experience with sutent for stage 4 kidney cancer?
My mother has mrcc in kidney -lung and liver we are on sutent50 and we are near to finished our second circle,we also take innohep0.5 for a thromposis that she has and an other injection for the hematocrit that it is low cause to anaimia that she has.She is 57years old and athletic.Unfortunately my mother suffer a lot from back pain and the doctors here in my small island Corfu,Greece diagnose her wrong so from the kidney went to liver and lungs.I see her better with the sutent and i have read many messages that gave me hope and courage to continue helping my mother in her fight although the doctors gave as less than a year..but my dear friend only god knows when its time and not doctors.Sutent is the most tested with best results medicine and i do not know if it is working our not in two weeks we are going to do our exams but i see my mother bettter than before and i hope for the best for her and to every body out there dont give up. never give up... they need us.
by 19938 on Fri Mar 27, 2009 12:00 AM
In Jan 08 I was diagnosed with Stage IV Chromophobe Renal Cell Carcinoma. Had left kidney removed in March and was giv en 6 months to 2 years to live. Finally was able to get on Sutent 50 mg in July. I couldn't afford it so Pfizer has agreed to provide it for me. Thank God. After being on Sutent for just over 3 cycles I had heart damage, and was taken off for 6 weeks. The positive lymph nodes had started to shrink during these 3 cycles. After being off for 6 weeks I am now on 37.5 mg tablets. April 13th I will have a new Muga scan of my heart which has recovered completely during the 6 weeks off and I will have another CAT scan. I have had no other bad side affects. I feel wonderful. Oncology nurse said I am doing better on this med than any of their patients and that I was doing what they say can't be done. Living and enjoying it. I pray that this lesser dose is doing it's job. Doc has moved my life span out some. I have had great results with Sutent. Peggy
by pieper on Thu Feb 25, 2010 11:41 PM
My husband has stage 4 kidney cancer and had his kidney removed last wk. Doing good but has several spots on lungs. Going on Sutent starting today. Cost is unreal even with my insurance,trying to get help through the company. Can anyone tell me how they are doing on Sutent today? Thanks!
by anneb on Fri Feb 26, 2010 12:44 AM
Hi Pieper, my husband had his left kidney removed in November 09 and has mets in his lungs and lymph nodes around the esphoagus and has been on Sutent before he had kidney removed, he was off for 1 month after the surgery and is currently on his 4th cycle and so far some of the mets have shrunk, THANK GOD !!!! Is your husband having to pay for the Sutent? The reason I am asking is because my husband is on the research program for Sutent and he does not have to pay for it, we are very lucky, we live in Texas and we go to MD Anderson and they are wonderful !!!! You can also go to their web site and they can help you with the cost. Sutent.com
Good Luck and God Bless you and yur family
by Walking_Jim on Sat Feb 27, 2010 09:26 PM
I was dx with stage 4 kidney (clear cell) cancer in Jan 06, when left humorous bone broke due to a metastsis. I was 59 at the time. Kidney removed, arm repaired, radiation to arm. I had other mets to both lungs and to bones. One year on Nexavar. At end of year my mets were approximately same size as at the beginning. I have now been on Sutent for over 3 years and all of my mets are significantly smaller today than they were 4 years ago. The volume of my largest lung met is less than 1% of its original volume. Last CT was last Monday. Mets have remained about (within CT resolution limit) the same size for about 2 years. There is a chance that my mets have died. My oncologist and I are considering stopping the Sutent treatment in 4 months after next CT if there is no change. For me Sutent has been a life saver. Sutent has not worked as well for many other people and some people have bad side effects. However, it is the best available treatment.
by pieper on Sun Feb 28, 2010 03:03 AM
First Response has a couple of programs that will help with Sutent based on income,hopefully will know on Monday.I went ahead and paid for the first presciption because I wanted him to get on it right away. He is on day 2 now,hoping it works. And hope he can handle the side effects if he gets any.
by Godhealsbrad on Fri Mar 05, 2010 06:32 PM
I have/had Met RCC with left kidney removed and then mets to lymph nodes and vertabrae, L2. I did Hi-dose IL2 with no response and then went on Sutent. My tumors shrank about 50% but unfortunately it's not a cure. On May 11, 2009 I started taking Protocel and in June I stopped Sutent. I am now only on Protocel and my last scan showed that my lymph nodes are normal and everything else is clear. Protocel has a very good response rate for RCC.
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