Germinoma brain tumors

I have looked too, and found nothing on the internet. My neuro oncologist says they are not hereditary, here's hoping he is right!

Hey Colin!  I honestly forgot about our discussion on here regarding whether or not the tumors were hereditary.  On one of my recent follow up appointments with my Radiation Oncologist, I asked him the same question.  He was telling me that while the tumors themselves are not a hereditary issue, the fact that we have proven to be susceptable to cancer is.  So it's in our DNA somewhere that we are more susceptable to cancer than others, and that may have been passed down to our children.

I would say just remain vigilent with your kids and make sure they know about your medical history for when they start getting older.

I have another appointment in a couple of weeks.  If there's anything else I can ask that you might be curious about, please let me know.

Brad

Hi iam 34 and at 17 had a germinoma brain tumor also,I lost 90lbs before i found out, for 6 weeks i had radiation treatment full brain and spine and had to get m.r.i done every 6 month then a year then 5 now 10. Some how i have been able to be med free now for 3 years now my thyroid is normal along with my adrenal.    

Congrats, Jerry!  Do you remember where your tumors were located?  I notice you, I guess, recovered from a thyroid condition.  I'm guessing it was hypothyroidism?  I'm curious because one of my tumors was on my pituitary gland, which led to my thyroid condition.  I'm curious if your situation was the same or similar to mine to see if I may have a chance at my pituitary recovering later on in life.

Thanks!

Brad

Hi there, 

I hope you are well.. My husband was just diagnos with germinoma cancer last week. We are a very young married couple. We are only 25 years old. I am really terrified and do not know what to do with this. All i want to know is that did you do biopsy before your doctor pronounce you with germinoma? or did they do something else? and how quickly does it spread? How long did you do your radiation n chemo? what are the side effects? You were not married when you had germinoma. Did it affect your fertility after having chemo/radiation?