Neuroendocrine Lung Cancer

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Neuroendocrine Lung Cancer

by kzfamily on Tue Mar 31, 2009 12:00 AM

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On February 4th, I posted this message asking for information. 

 My husband has a rare form of lung cancer neuroendocrine.  It is a fast growing cancer.  When he was diagnosed he had 5 spot 4 in his lungs and 1 in his neck.  He is at stage 3b the doctors give him 8 to 10 months.  He has been through 4 sessions of chemo which have been very hard on him.  He had a CT scan last week we went to the doctor's Monday hoping that there had been a significant change but unfortunately it was not much.  The one in his neck has shrunk alot however, the original spots have only shrunk a little, one of them went from a 5.3 to 4.8.  The quality of his life while on chemo is not good he has gotten to the point that he sleeps as many as 18 hours a day.  He never feels good. 

Now the question is does he do 2 more rounds of chemo and 6 weeks of radiation and be miserable to add a couple of months to his life or does he stop treatment have a shorter life with a better quality.  Please let me know what you think.  This is a very hard decision to make and we want to make sure we see all sides.  Thank you for your imput.  

 I received an overwhelm number of response which were all so helpful.  I wanted to undate everyone on my husband's condition.  My husband did do the 2 addtional rounds of chemo and last week started radiation.  Yesterday we went to the doctor's to get the results of the CT scan he had last Monday.  Unfortunately the news was not very good.  The chemo stopped working.  The chemo was very successful in shrinking the tumor in his neck however, and the cancer has not spread that we can tell by the test.  However, the chemo was not as successful on the tumors in his lungs.  There are 4 tumors in the lungs two have stayed the same size and 2 have grown in the last six weeks to double the size.  He has also developed tremors in his hands and legs.  He had a scan of the brain last month and it was clear.  I'm not sure where we go from here.  We see the radiation doctor Thursday.  Originally they were saying that he was not a candidate for radiation because of the size and type of cancer he has.  However, because of his age they were going to hit it with everything they had.  They assumed the chemo would shrink the tumors so the field of radiation wouldn't be so large.  Now that the field has grown I'm not sure if they will continue.

 Any advice please would be helpful.


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