I have neuroendocrine pancreatic cancer surgically removed in 1998, but found out it had metastasized to the liver in 2002 and is inoeperable. I started receiving a monthly injection of Sandostatin and am still feeling wonderful, and my cancer has not grown since February.
How much Ambrotose did you take? I have taken a little of it.
The advice about Ambrotose was very helpful.
Where did you have your liver transplant done? Do they feel that you are now out of danger?
I am considering a treatment in Houston or New Orleans with Pentatreotide and targeted radiation with Indium 111. Have you heard anything about this?
I sure appreciate your attention during this time of making decisions. Thanks.
I was approved for a liver transplant last December and I will say that it is very rare to get approved if you've had cancer. If a person's body is prone to grow cancerous cells, they assume that it will return somewhere else in the body eventually. However, my doctors ran numerous tests all over my body and couldn't find cancer anywhere else except my liver. (My original tumor was in my pancreas, but they were able to remove the entire tumor, which was about the size of a grapefruit, so they said if it came back it would be in the liver, which it was.) It is a long process to get approved for transplant and my doctors worked diligently to get me approved. They felt they could prolong my life long enough to raise my children. Even though I had the transplant, I'm not out of the woods. Like I said, if your body produces cancerous cells, it's likely to do it again. That's why I take the Ambrotose. I really feel that my cells are working properly now and that it won't come back if I continue with complete nutrition. I also cut out junk food, sugar, most red meat and drink green or black tea everyday. I have never heard of the type of treatment that you are considering, but I know that there are all different types of tumors and it's possible that the pentreotide treatment would not have worked for me. My doctors said that there were very few drugs that were really effective on the liver and they felt that any type of chemo would make me sicker. I have a cousin that is a surgical oncologist and he has a few patients with cancer that metastisized to the liver and he has them on chemo and they have done pretty well, but he said that the tumors usually come back after the chemo is stopped. I live in Louisville, KY and have an excellent team of doctors that work at the Graham Brown Cancer Center. If you're not sure about your treatment options, I would suggest doing a lot of your own research on the web, as well as get a second opinion. Cancer is different in everybody and you have to find what works for your body.
My father has pancreatic cancer. I am trying to find a success story so I can advice him with something. The cancer is on the body of the pancreas and we cannot yet remove it. They told us it depends of how the chemo will go. It has already been spread to the liver. And i am just wondering if he can take this ambrotose. Where can i found it? I am from Greece.
Thank you
Thanks for your information. The problem is that as i said i am from Greece and there is no place here to order it. I called the Mannatech company in UK and they told me that i cannot order it because they can not send anything aboard. Anyway I will try to find another way to buy it. Can i ask you something else? My father has an inoperable tumor on the body of the pancreas and he is going to take his next chemo on the 8th of December. He has a lot of pain and he feels like something is burning inside him. Did you have the same symptoms? What did you take for the pain? He is not sleeping well and to be honest I think that this has to do with his stress. His mind can never stop thinking.
I'm sorry to hear that your father is in pain. Have the doctors discussed the possibility that he may have gallstones or pancreatitis? I had some pancreatitis after part of my pancreas was removed in 2002, but after a few months it went away. Pancreatitis occurs when your digestive enzymes start eating away at the pancreas itself when it is not working properly. It can be caused by tumors, gallstones or bad diet. When I did have pain, I had to lay down and wait for it to go away. It also helped to not eat fatty foods or food that was difficult to digest. I didn't have a burning feeling, though, so it may not be the same thing. I did read on the internet that there is a medicine that can be taken with food to help with digestion which may help to prevent the pain. Check with his doctors. I will check on how you could order the Ambrotose as well.
My husband has pancreatic cancer IV. He started out with jut Tylenol for the pain. Now he's on Methadone - 2 and a half pills a day. For 'break out pain', he takes Vicadin when needed. I understand he'll be taking morphine before we lose him. This cancer is reported to be the most painful.
Hi Nicoleta - our daughter drew our attention to your discussion on your father's pancreatic cancer. My husband has been diagnosed with neuroendochrine cancer in the abdominal area including the pancreas which follows a previous bout of neuroendochrine cancer of the lymph nodes under the right arm approximately one year ago. Following surgery, radiation and chemo therapies he was declared in remission in March this year. Unfortunately, in September this year, abdominal pains indicated (and proved to be)the return of neuroendochrine cancer. He commenced a new series of chemotherapy two weeks ago. With regard to the pain that your father is suffering, my husband had a day-surgery procedure called "Celiac-Plexus Nerve Block" which blocked the nerves from which the pain eminated. The procedure was performed in the Wesley Hospital, Brisbane, Australia, and afforded immediate general pain relief. We understand that the procedure is effective for up to three to four months. Some supporting minor pain relief may be required. You may be interested in the following web site: www.vhjoe.com/Volume1Issue3/1-3-184.htm
Hope this helps.
Hello Kimgee,
Thought you and your doctor might be interested in a treatment that has, until 6 months ago, been done only in the Netherlands, but with good success (total cure) for neuroendocrine cancer metastasized to the liver.
I am going to Excel Diagnostic Imaging Center in Houston on March 27 for a treatment with Indium-111 in pentetreotide. It is radiation with high-dose octreotide that goes automatically to every tumor in your body, as I understand it.
Their research coordinator, Jennifer, can be reached at (713) 341-3239. The physician's name is Dr. Delpassand.
Marie