Average Rating:Rating
Rate this Discussion: rate!

Neuroendocrine Cancer

Switch to Single View
Records 21-30 of 44
Pages: 1 2 3 4 5 Next
Subject: 8 Year Cancer Survivor and Ambrotose
Date: 10/04/2006
Hello, Abbysmom, Kimgee, Tigerlillygal, Nicoleta, Downunder, Shilpi, and Anyone else. This is my first time at the site. I am an 8 year cancer survivor!!!!....using all natural treatment. I was diagnosed with stage three of three stages of adenocarsonoma breast cancer...the fastest and deadliest kind which had already spread . After surgery, I postponed the chemo and radiation because I was so ill from pneumonia, adrenal exhaustion, hypoglycemia, pernicious anema, allergies, and osteoarthritis and looked for ways to get healthier, first.

That led me to doctors and treatments from Oklahoma to Denver, but I have overcome the cancer and regained my health. I not only survived....I now thrive after years of illnesses.

Besides my own success, I personally know of such results with lung, bone, brain, and pancreatic cancer. If anyone wants more information of using Ambrotose and getting it at the lowest cost, I know how to do so. You may email me --- Message edited by CancerCompass staff: for personal protection, email address and phone number removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ----and ask for Linda. Blessings to all.
Subject: New Treatment in Houston
Date: 10/16/2006
Marie, I am looking for clues and answers. How did your treatment go and would you recommend it to someone in the same circumstance?
Ellie
Patient
Patient
Tigerlillygal
Recommend this Message
Subject: Treatment at Excel Diagnostics in Houston
Date: 10/16/2006
Hello, Ellie,

The treatment in Houston seems to be a blessing, at least to me. Before the first treatment I was experiencing confusion, headaches, and very bad muscle cramps. All of those were gone in a month or so and have not come back. My blood work was pretty good before treatment, but now is perfect and there was shrinkage of some of the tumors.

I also have a Sandostatin injection every month because my tumors have receptors for it, and having those receptors to carry the radiation into the tumors is also necessary for the Houston treatment. To find out if you have them,you will need an Octreoscan.

In July, I had a second treatment (three months later), but have not yet found out the results of that. The FDA has not yet approved a third treatment, because they are waiting to see how patients do on the first two. I still feel fine and am functioning well.

Also, my insurance paid for everything! Yes, I would recommend the treatment to anyone who meets the conditions for having it. Best wishes. Marie
Subject: my Grandfather Was Just Diagnosed
Date: 10/24/2006
My grandfather was just diagnosed with neuroednocrine pancreatic cancer and although I am a nurse I don't know that much about it. My family is really frightended and looking towards me for advice. I wish I could help them. What kind of prognosis is there for him? What kind of treatments are available? His physician says the tumor is inoperable, but I don't know why they can't do a whipple procedure. Any inisight or information would be greatly appreciated, thanks.
Patient
Patient
Tigerlillygal
Recommend this Message
Subject: Your Grandfather
Date: 10/27/2006
Dear Mandi,

Don't feel bad not knowing much about this disease--I just attended a conference in Portland, where there were about 20 specialists in this from all over the world, and they said most oncologists don't know very much about it, either, because it is so rare they very rarely see it or hear about it. It is good that they even diagnosed your grandpa.

Did his doctor suggest an Octreoscan? It could tell you if he has receptors for Sandostatin, which helps greatly to control the formation of scar tissue in bloo vessels as well as generally control the cancer. Besides that, if his tumors do have receptors for it there are several treatment options such as a radiology treatment at Excel Diagnostics in Houston, TX.

There is also a clinical trial which will soon be done in many cities in this country with RADIANT 001, which is a similar to the one I just mentioned, but does not require one to have the receptors. Also, 5Fluorouracil is a chemotherapy treatment that helps some people.

There are five subtypes of this cancer, and each one is managed a little bit differently. You can find out a great deal from the website
www.Carcinoid.org They sponsored the conference I mentioned, and I think they even plan to make all the doctor's talks available on line. I had two radiations treatments in Houston, and they seem to have no side effects, at least for me. You may know that this type of cancer is very slow growing, but of course, the prognosis depends where it is. When I had the pancreatic tumor removed in 1998, they told me I had probably had it for 10 or 15 years. If it had been impinging on an artery or another organ, though, it would have caused more problems sooner. My islet cell cancer has metastasized to the liver and is inoperable because there are many small tumors in both lobes. If it is confined to one lobe, sometimes they can do surgery. This may also be his situation with the pancreas, I don't know.

If you have any questions please feel free to contact me again. Best wishes to you and your grandfather. I still feel fine and am functioning well.
Caregiver
Caregiver
Karina62874
Recommend this Message
Subject: Neuroendocrine Tumor
Date: 12/05/2006
Hey all! I read all of the messages about the people's experiences with these neuroendocrine tumors. Let me tell ya' my story and we can trade info or what not. My husband was diagnosed in 2001 with a neuroendocrine tumor in his pancreas. It was in the head of his pancreas and was pinching his bile duct closed causing him to jaundice. This is the symptom that brought it to our attention. The doctors here in TN told him to go home and get comfortable there is nothing they can do for him. Someone told us about MD Anderson in Houston. We went there and they did the Whipple procedure and removed the tumor. All went great there but they discovered it had metastisized to his liver. Numerous tumors in his liver. MD Anderson suggested the treatments a couple of you were talking about at Excel in Houston, but at the time they weren't doing it and we went to the Netherlands. We went there 4 times for 4 treatments. They were done about every 2 1/2 months. His last treatment was almost 5 months ago. His last scan showed there wasn't any shrinkage, but that there had been no growth to the tumors since his scan in January so that is great news! The only problem he is having right now is VERY low blood counts, but they are improving. He is working everyday so it hasn't effected him too badly. I have never heard of the Ambrose and am definitely going to look into it. PLEASE guys, keep posting messages with updates and if I can help pass any info along please let me know.

Take care and God bless!
Karina
Patient
Patient
Tigerlillygal
Recommend this Message
Subject: Results of 2nd Excel Diagnostics Treatment
Date: 12/06/2006
I had 20 tumors metastasize to the liver four years after removal of a pancreatic tumor. I now have 3 small tumors, and one lobe of the liver is free of tumors after the 2nd treatment at Excel Diagnostics in Houston.
Caregiver
Caregiver
David on Long Island
Recommend this Message
Subject: RE: 8 Year Cancer Survivor and Ambrotose
Date: 12/13/2006

 

On 10/4/2006 Survivor8 wrote:

Hello, Abbysmom, Kimgee, Tigerlillygal, Nicoleta, Downunder, Shilpi, and Anyone else. This is my first time at the site. I am an 8 year cancer survivor!!!!....using all natural treatment. I was diagnosed with stage three of three stages of adenocarsonoma breast cancer...the fastest and deadliest kind which had already spread . After surgery, I postponed the chemo and radiation because I was so ill from pneumonia, adrenal exhaustion, hypoglycemia, pernicious anema, allergies, and osteoarthritis and looked for ways to get healthier, first. That led me to doctors and treatments from Oklahoma to Denver, but I have overcome the cancer and regained my health. I not only survived....I now thrive after years of illnesses. Besides my own success, I personally know of such results with lung, bone, brain, and pancreatic cancer. If anyone wants more information of using Ambrotose and getting it at the lowest cost, I know how to do so. You may email me --- Message edited by CancerCompass staff: for personal protection, email address and phone number removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ----and ask for Linda. Blessings to all.

Greetings 8 Year Cancer Survivor and Ambrotose (Linda)

my Mother in Law recently has been diagnosised with Neuroendocrine cancer, which they think started in her appendix and she several metatasis in her liver.  This cancer is very rare and slow growing and she currently does experience any of the major symtoms on a cronic or consistant basis.  For this we are greatful.  However, we and the Doctors still are not sure how quickly or stable her cancer is .  If it growing or not.  We have heard about Ambrotose from this  web site along with other unsolicited people in our area, simply in conversation.  I am interested in purchacing Ambrotose for her and you stated that you have a source that can it at half price.  Can you either call me or provice me with this information?  

--- Message edited by CancerCompass staff: for personal protection, email address and phone number removed.  Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ----

  In addition, what if anything do you know or have research about similiar glyconutrients such as: Glycomannan, nutratose, GlycoBalance, Limuplex and Immuno Plex?

I would be gratfull for your responce and input anything you might be able to share with me and my family.  I hope you continue in good health and that you enjoy a very Happy and healthy Holiday Season! 

Thanks for your time, Sincerely, David

Subject: RE: Ambrotose
Date: 12/16/2006

Hello.  I look forward to any information you may be able to provide for me concerning Ambrotose and your experience with it.  I have a client in my hometown who mentioned it to me just last week.  I was having lunch with a little girl suffering from brain cancer, in very high spirits, but undergoing serious treatments.  He wanted to mention it to me as he knows several people who have had magnificent results with it when there were no more places to turn.  If and when you have a moment to share, I would certainly appreciate a response.  I am hoping this may be something from which my little friend can obtain great benefit.

thank you very much,

Carola

Subject: RE: Ambrotose
Date: 12/18/2006

Hi.  My story is quite lengthy and I have several posts under liver cancer, supplements and probably some other subjects under the name kimgee.  In 2002, I was diagnosed with a large pancreatic tumor that needed to be removed.  Surgery was done, tumor had spread to liver, tumors were burned off liver, but was told they would recur because of the liver regenerating. I also accidentally had a hole burned in my esophagus from tumors being burned off the liver.  Prognosis was not very good for the cancer or the esophagael problems.  I prayed for an answer and Ambrotose showed up at my door two days later by a dietician friend of mine.  Began taking it in fall of 2002.  I was told it would make me healthier by supplying my cells with nutrients that we no longer get in our modern day diet and strengthen my immune system.  I was told that many people with cancer had had great results with the supplement.  My husband and I spent weeks researching the supplement, the company, as well as all types of nutrition information regarding cancer.  (I believe that all of the chemicals and preservatives in our food and environment have caused our cells to work inefficiently, thus keeping our bodies working properly.)  I noticed increased energy in a matter of weeks, and after 2 months, I felt better than I've felt since I was a teenager.  (I'm 41)   My liver tumors began recurring, and I had several procedures done to remove them, but they kept coming back.  After being cancer-free everywhere else, I convinced my doctors (after months of begging) to be considered for liver transplantation.  I finally convinced the doctors that I was a good candidate, was tested and approved, and had a liver transplant in 2005.  Had complications with esophagus, deadly virus, a ruptured colon from a feeding tube, and almost died twice while being in the hospital for 2 1/2 months.  I was taking Ambrotose from 2002 - 2005, up until I went into the hospital, even though my doctors told me not to because they didn't really know what it was.  When they did the transplant, they said the old liver showed evidence that my body was fighting the cancer, because the tumors were being walled off.  As soon as I was home, I went back on a full-line of the Mannatech products and have been doing great ever since.  I'm on very low doses of anti-rejection medicine, never had chemo, esophagus is healed, my monthly labs are spectacular and last CT was clean.  I have everyone in my family on Mannatech products including my kids.  My aunt was diagnosed with Multiple Myeloma last year and was very sick.  I got her started on large doses of Ambrotose, and she called me last Wed. and said her recent tests were all clear, blood work was perfectly normal, and her bone lesions were gone.  She feels great!  A lot of naysayers will say the product is worthless and doctors don't support it (unless they've had personal experience with it or have had training in alternative therapy), but most people who have used it have gotten miraculous benefits from it.  It's been a miracle for me and my family.  Some people are not open to the supplements because of the cost and because Mannatech only sells them through distributors or online.  (They are the only company that has a patent on the products and they sell worldwide.)  I don't push the product on people, but I feel like I have to share what I've learned and what has worked for me in hopes of it helping others like it has me.  If you need more info, please feel free to ask.  You can get more info on glycoscience.org.  I hope this helps your friend.  It seems to work especially well on young people. 

Records 21-30 of 44
Pages: 1 2 3 4 5 Next
Switch to Single View
close




Sending...
Required Fields All fields are required.
close
User is No longer Ignored
Show messages from this user
close
Report Abuse
Anonymous Note to Administrator:

Reporting
Latest Messages Show More
post whipple gas pain Posted by Uticap on 07/06 06:14:06 PM
RE: Compression Bra Posted by trehouse60 on 07/06 06:13:00 PM
RE: The Cancer Treatment Posted by Dlynn1210 on 07/06 06:12:55 PM
RE: Stage 2 colon cancer Posted by Arnold on 07/06 06:06:49 PM
RE: Bullied by doctor to Posted by roula on 07/06 06:02:56 PM
RE: apricot kernels Posted by Shemay on 07/06 05:57:48 PM
RE: GLIO IV FIRST SEIZURE Posted by Jan42006 on 07/06 05:55:55 PM
RE: no appetite from chem Posted by tinglyfingers on 07/06 05:55:06 PM
RE: Stage 2 colon cancer Posted by Bobbygene on 07/06 05:54:45 PM
RE: questionsssss Posted by hopeinshallah on 07/06 05:46:35 PM
RE: Stage 3 colon cancer Posted by 2ndtimer on 07/06 05:45:26 PM
Prostate Cancer - 3D Medical Animation