I'm sorry you haven't yet got any replies to your posting. It could just be that no one here can comment usefully for you, as indeed, nor can I.
I can suggest another source of information for you, though, which you may find helpful. If you are not already on it, there is a truly excellent mailing list for RCC patients, called kidney-onc, which you can join on http://cancerguide.org/kofaq/
There is huge collective expertise there, and I've yet to see a question posed by a patient that has not had an answer.
All the very best to you at such a worrying time. Julie.