Temodar

Has anyone had any experience with this oral chemo pill? I have a grade 2 astrocytoma of the brain and I am on the first cycle of Temodar. Surgery and radiation were ruled out as treatments because of the size and location of the tumor so we are hoping that the chemo will work.

I was diagnosed with a glio and operated on in September. I did 37 treatments of radiation and then also took Temodar. My tumor came back and I had a 2nd brain surgery in April. They have planted radioactive seeds.

I just had surgery 3 1/2 weeks ago - now I'm starting radiation next week. I have been given only two options for chemo after - Temodar and a clinical trial. I guess I'm wondering what the story is on Temodar.

I do not have insurance coverage for Temodar. Does anyone have any info on obtaining Temodar from online pharmacy?

Hi, Just a little message for you and everyone else that may want to know. I had astrocytoma stage three brain cancer non operable. I went through 7 weeks of radiation along with 120 mg of temedor. After the radiation the doctor upped my temedor to 350 mgs per day for 6 months then they dropped me to 250 mgs for 6 months. After that they kept me at 240 mgs. All togethter I was on temedor for 2 years and 3 months. They only gave me 6 months to a year to live but something was working right because I am going on 3 years this June 2005. I suggest that you watch what they give you for the anti puke pill. They gave me this one pill and it did not help. The pill that helped me was Anzemet tablets or kytril. Hope this can help everyone about temador. any other questions that I can try to answer I will be more than happier to help. God Bless and good by ed from bullheadcity

Dear Mark,
My husband has been on Temodar for two years. He is in his 70's and had a glioblastoma removed two + years ago. He has also had an experimental drug at Hahnemann Hospital in Philadelphia which we feel has also made a big difference in his survival and recovery. And we work with a nutritionist in Utah for diet and suplements.If you are interested, please let me know and we will give you further information.

We hope you are doing well.

Sincerely, Helen L.

Dear Darla,
My husband was diagnosed with glioblastoma two years ago in Oct. He had surgery and a month of radiation and athe tumor returned. He began an experimental drug (Monoclonal Antibody 45 ) at Hahnemann Hospital in Philadelphia and the tumor seemed to stop growing. He also started taking Temordar. This was Jan. 2003. In March the surgeon felt the tumor has to come out becasue of its location. During the surgery he had gliodel wafers inserted in the now empty tumor bed. However he contracted an infection in the next few weeks which nearly killed him. So he had to have the bone plate removed and teh wafers washed out. He survived and after another surgery to implant a stent to control fluid on his brain and then some PT, he recovered. He started the temodar again in August 03 and took the experimental drug again in Sept. He has been tumor free ever since and except for a diet and supplements through a nutrtionist in Utah and Temodar every month, he has had no further problems with the cancer. He is in a small class of people with this cancer and at almost 75, he is some kind of a miracle to me.

If you want any information about the docs we are consulting with, Iwould be happy to give you more inforamtion through this email site.

Sincerely, Helen L.

Dear Donald,
My husband was diagnosed with this cancer two years ago in Oct. He has made a long journey with it and the story is interesting. The best part is he is still alove and tumor free.

He takes Temodar once a month - for five days and does well on it. He has taken two doses of a monoclonal antibody 45 - in trials at Hahnemann Hosp. in Philadelphia. We feel this is what has made the biggest difference.

He is also working with a nutritionist in Utah and takes supplements which all work on building his immune system and against cancer cells. The nutritionist lectures at NIH on her research regarding diet, supplements and this cancer.

I would be happy to share any information you would be interested in.

Sincerely,
Helen L.

We wish you well in your journey.

Dear Helen,
My Husband was diagnosed with Glioblastoma On November 12, 2004. He is 46, He is currently undergoing treatment at Sloan Kettering in NY.
We are going the traditional Temodor/ radiation treatment right now. he is at a temodor dose of 150mg.
We did have one round of the the intra-arterial chemo at Stony Brook, but Joe really hated it. Although it is still an alternative for future consideration. I am very interested in the information you mentioned. It sounds like your husband is doing great!
I look forward to hearing from you.
Lea M

Hello Helen,
My name is Milko. I live in Germany, so please excuse my english.
My sister, who lives in Montana, was diagnosed in February 2005 with Glioblastoma Multiforte.
I would like to help her with every Information availiable. Since last week she takes TEMODAR, besides radiation.It may help her if you are willing to give information about your Temodar-Experience...or other treatments.
This cancer is really the worsted thing that can happen. My thoughts are always with you.
So, if you dont mind answering...I would be very thankful.

Best wishes and hugs
Milko