Temodar

I too am very interested in learning all I can about the dietician/doctor in Utah. Can I please ask someone to send me this information so I can help my Mom? God Bless.

December 8, 2006:

I lost my wife Bonnie on Oct 20, 2006.  When they went back in the second time to check for further growth, there wasn't any noticeable growth.  They removed some scar tissue, from the radiation, but the Temodar apparently did it's job.

Dear Helen,

  I had surgury in the last week on a glio in my frontal lobe and would love to get the info on the Utah nutritionist you mentioned.  I am very interested in keeping the correct nutritional balance in the body to fight this as best I can.  Thank you for any help you could be on this matter.

 Sincerely, Hal

My father has a similar diagnosis to yours.  Just wanted to see how you are doing now.  He has only been on the Temodar for 2 months and just finished radiation.

Hi,

I am responding to your message below-  my wife had a GBM removed 12/06 and we interested in treatments and nutitrition info.  she has had temodRtemodar and radiiation so far. 

thanks ~  mike pierce

On 1/12/2005 Helenlee wrote:

Dear Mark, My husband has been on Temodar for two years. He is in his 70's and had a glioblastoma removed two + years ago. He has also had an experimental drug at Hahnemann Hospital in Philadelphia which we feel has also made a big difference in his survival and recovery. And we work with a nutritionist in Utah for diet and suplements.If you are interested, please let me know and we will give you further information. We hope you are doing well. Sincerely, Helen L.

 

Hi Helen,

I just read an '05 message of yours on Cancer Compass. My Dad was diagnosed 2 weeks ago with GBM and is starting radiation and chemo this week. My Dad is 67 years old and a great believer in natural remedies and supplements. I was wondering if you could provide me with the name of the nutritionist you work with in Utah. I live in Connecticut and have just begun immersing myself in this very scary subject area. Any help you can provide is greatly appreciated.

With mank thanks,

Barbara Gannon

 

On 1/12/2005 Helenlee wrote:

Dear Mark, My husband has been on Temodar for two years. He is in his 70's and had a glioblastoma removed two + years ago. He has also had an experimental drug at Hahnemann Hospital in Philadelphia which we feel has also made a big difference in his survival and recovery. And we work with a nutritionist in Utah for diet and suplements.If you are interested, please let me know and we will give you further information. We hope you are doing well. Sincerely, Helen L.

 

 

Hi Helen and everyone, My sister had a oligodendroglioma brain tumor removed five years ago.  In April of this year she was diagnosed with a GBM and had surgery at MD Anderson in Houston on May 15.  She had 20 days of radiation and was taking Tremodar chemotherapy pills.   The doctors discontinued the pills because they said you stop taking them after you are finished with radiation. Is that true?  And Helen, if you don't mind could you please tell me more about the nutritional supplements and the experimental drug your husband is taking.  Thank you so much.  I will keep all of you in my prayers.

I have the same issue. I was able to receive it from the manufacture through there commit to care program you can call them and they can help you.1(800)521-7157 they are very nice people. Please let me know if it helps and my God bless you I will pray for you.

Your friend,

Denise4633

Quite interested in the diet and nutrition info/site for cancer.

My son has DSCRT a tumor similar to Brain tumors where Temodar is being used.

Thanks

Bill