Temodar

On 1/12/2005 Helenlee wrote:

Dear Darla, My husband was diagnosed with glioblastoma two years ago in Oct. He had surgery and a month of radiation and athe tumor returned. He began an experimental drug (Monoclonal Antibody 45 ) at Hahnemann Hospital in Philadelphia and the tumor seemed to stop growing. He also started taking Temordar. This was Jan. 2003. In March the surgeon felt the tumor has to come out becasue of its location. During the surgery he had gliodel wafers inserted in the now empty tumor bed. However he contracted an infection in the next few weeks which nearly killed him. So he had to have the bone plate removed and teh wafers washed out. He survived and after another surgery to implant a stent to control fluid on his brain and then some PT, he recovered. He started the temodar again in August 03 and took the experimental drug again in Sept. He has been tumor free ever since and except for a diet and supplements through a nutrtionist in Utah and Temodar every month, he has had no further problems with the cancer. He is in a small class of people with this cancer and at almost 75, he is some kind of a miracle to me. If you want any information about the docs we are consulting with, Iwould be happy to give you more inforamtion through this email site. Sincerely, Helen L.

On 4/16/2008 viking31 wrote:

What is the contact info of the Utah Nutrionist?

Hi,

I am also looking for the Utah nutrionist, did you ever get any info from anyone? if you do,  please post it , my houband was dx with GBM 4

in April. thank you'

shay

On 4/16/2008 viking31 wrote:

What is the contact info of the Utah Nutrionist?

HI,

Did you  get the info for the Utah nutrionist?

if you did, please post it.Thank you

my husband dx with GBM IV in April, 08