LEEP and possibly allergy

6 Posts | Page(s): 1 

LEEP and possibly allergy

by endurance on Tue Apr 07, 2009 12:00 AM

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I just had LEEP procedure Monday for CINIII (from my pap) and CINI from the biopsy. I really didn't want to have it done but I also RELLY didn't want it to turn to cancer either! These past two days have been nerve racking for me. First off the LEEP took way too long, about an hour and thats because she hit a blood vessel and had to stop the LEEP to put in a few stitches. My Doc said she had never seen anybody bleed so badly, needless to say, this was not very comforting. My doc also told the nurse that the machine was making a funny noise like she has never heard before. Everything was uncomfortable and scary. At first afterwards I wished I went under completely so I had no memory of them numbing me (which gave me a very tingly and dizzy feeling ALL over) stitching me and scraping me. I know you were not supposed to feel anything, but it was seriously disturbing. Well, it wasn't until later that night after everyone in my house had gone to bed and I was having some constant pain in my vagina that I decided to take a look for myself. Something wasn't right, I had several tears in the vagina, about one inch long. There was nothing in the paper work to justify this, I was scared. So I paged the on call at my doc and sure enough it was my doctor. I woke her up out of bed at 3:30 in the morning. But I didn't care, I was livid, told her everything! She thought it could have possibly been the speculum but wasn't sure. Needless to say she had never seen anything like that before. She was going to have her nurse call me in the morning to set up an appointment.
My husband was very supportive and convinced me to take some benadryl to sleep. Early this morning I got a call from my nurse and had set up an appointment later that morning with my doctor. I made a few phone calls, and talked to some people in the medical field that I trust and found out it could be something worse. She said nothing they did should have caused lacerations on or in the vaginal and it probably wasn't the speculum but it could have be the electrical current! Something may have been wrong with the machine, and the electrical current may not have been concentrated onto the cervix and may have spread throughout the vaginal walls. Could this be true, OMG this is awful. This was supposed to take care of a problem not create one. This wasn't in the deal, I feel SO VIOLATED!
I changed my doctor app after hearing what it could possibly be, I no longer trusted her. I wanted someone to see it through fresh eyes, I needed a second opinion. After much persistence I got an appointment with one of her partners. She took a look for me and found that the tears were not only tears, it was my skin falling off. All the skin in vaginal was sluffing off! It caught her off guard, and since she had never seen anything like it before she wanted a third opinion. Another doctor came into the room with more experience, she "thinks" it maybe an allergic reaction to the topical ointment they put on after the LEEP to stop the bleeding, but is going to look into things. Of course they took a culture, tested for streip and gave me a script for pain med, antibiotic and lidocaine. I have another follow up (no charge) on monday. I'm debating on going to a new office all together, I'm terrified I can't trust them. I don't know what to do. Has anyone ever experienced something so awful?

RE: LEEP and possibly allergy

by SydsMom on Wed Apr 08, 2009 12:00 AM

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If all of these doctors work together, they are going to stonewall you and give you a million different reasons why it wasn't something that the original doctor caused.  They will cover up for each other.  I would suggest going to another doctor, one who is affiliated with a large facility or teaching hospital, who would have seen just about everything under the sun.  Good luck.

RE: LEEP and possibly allergy

by endurance on Wed Apr 08, 2009 12:00 AM

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Will do.

RE: LEEP and possibly allergy

by herenow on Fri Apr 10, 2009 12:00 AM

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I am so sorry you were violated this badly. If you did not want LEEP, did the doctor even discuss the other options? It may be your doctor should have done cold knife cone biopsy. Did the doctor even show you the lab report and give you a thorough explanation of your condition? It makes me angry when I see how many doctors there are who are just not ethical enough and caring enough to educate their patients enough to make an informed decision. We hire them to save our lives, and part of doing that is to fully educate us, first. I'm glad you are using that doctor, anymore.

I, too, was violated by a badly botched LEEP, and of course, doctors want to protect each other in the "fraternity." So, they try to pretend the end results are the cause of something else, and it's usually your body that is supposed to be at fault. I had the ex-doctor's nurse tell me I was having a herpes outbreak, which proved a lie. And a third doctor told me it was because of my depleted estrogen level, which proved a lie. At the time my ordeal began, I didn't even know the LEEP was botched. I just put my inability to heal from the LEEP to it being the wrong procedure for me. I have metal allergies, and nobody told me LEEP involved a piece of hot metal that burns out part of the cervix. That was definitely part of it, but of course, insurance companies like it so much because it's cheap and doctors like the quick money they make from LEEP, so nobody bothered to fully explain what it was to me. But even when I ended up in ER because the pain was so terrible, I never heard from my doctor. The nurse called three days later, and rudely told me nothing was wrong with me. I ended up in ER a second time and still never heard from the doctor.

It wasn't until I found an out-of-network doctor to diagnose the cause of my pain that I learned the LEEP had been botched. After getting the OR notes, I learned how bad it was. The loop bent, and rather than replace the loop the way he was required, the doctor continued hacking out my cervix in pieces. I don't know how he did this, but the right vaginal side was diagnosed as pulled and irritated, and my pudental nerve is inflamed. However, he was initially nervous he might be called as a witness in a lawsuit against the ex-doctor, so he didn't want to admit how bad the surgery went. I have never wanted to sue the ex-doctor. I just want to get well!

Earlier in the year, I went to an in-network doctor because I was hoping to get a referral to an in-network physical therapist to help me with the pain. I was also hoping she would work in conjunction with my out-of-network doctor to help me get well because he is two hours away. Unfortunately, she either knew the ex-doctor or his clinic director, or she saw he was in her network and wanted to protect her colleague. But she clearly had a conversation with somebody before I arrived. When she walked into the room, without introducing herself and before she had closed the door, she began screaming at me. She felt my case had been properly managed! This turned into quite a shouting match between us, and I told the front desk I refused to ever be seen by her, again.

I recently called the hospital where the surgery was done so that they could pressure the ex-doctor to tell me what happened, as he could give me the information I need to get well. He still won't talk. But I learned from the billing department I had received stitches. I still have no idea what body part got stitched, as I was under general anesthesia when the LEEP was done.

I am telling you this because I understand how violating and upsetting it is to have trusted a doctor, only to have been brutalized. It is sad that the only doctor who wants to help me get well is an out-of-network doctor. But this ordeal has caused me to not trust doctors, anymore. I don't know who is the butcher and who is protecting the butcher. So far, everything the out-of-network doctor has said has proven true. But my inability to trust doctors has been so destroyed, I have to research everything he tells me before I can believe him.

Unfortunately, the "fraternity" is more than likely not going to tell you the truth. So, you must be your own best advocate and get a complete copy of all the records in your file. This includes the notes from the surgery. More than likely, you will be charged. But it will be money well spent. You will also have to report the doctor to the medical board. The state I'm in has a website and I spoke to one of the regulators. He helped walk me through the forms.

If there has been damage that requires corrective surgery, though, you may have to also get a lawyer. But more than anything, please fight for yourself until you get the truth. Please feel free to also send me a private message if you want to. My LEEP happened in November 2007. I still haven't healed.

RE: LEEP and possibly allergy

by herenow on Fri Apr 10, 2009 12:00 AM

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I'm sorry to take on another post, after my first one, but I realized I wrote " I'm glad you are using that doctor, anymore." What I meant to say is I'm glad you aren't using that doctor, anymore.

Something else I want to add is that if your biopsy was so much different from the original PAP smear, your doctor should have done additional tests to make sure you actually needed surgery and to make sure you had the appropriate surgery if you needed it.

Again, I'm sorry you were that badly violated by a doctor.

RE: LEEP and possibly allergy

by Kamilei on Sat May 02, 2009 12:00 AM

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I don't know how you are doing at this point and time, but this sounds like a Mal Practice suit if I ever heard one. I hope that you have had time to contact a Lawyer about al the pain and suffering you are enduring....If not...start looking and do not ever step foot into the same Clinic again...This is unacceptable and you should be compensated....Ultimately, I hope you have found a good Dr now and are getting well..

Our thoughts and prayers are with you

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