Portal Vein Clot

View all Bile Duct Cancer Discussions Post A New Discussion

8 Posts | Page(s): 1

I had a whipple 5.07, and was back at work within 2 1/2 months. I did have to have an incisional hernia repaired in 5.08. I've felt fine, though I don't think I will get back to the energy level and general wellness that I had before all this happened.
My latest is that the doctor has found that I have a portal vein blood clot. I bein treatment with warfarin (coumadin) and a week's(?) worth of twice daily injections of lovenox.
All this happened today. I have no symptoms, feel fine. Has anyone else had this issue and how is it goig? I'd loe any information you can share.

Quote | Reply

krissy66

hello my name is krissy what is that? my dad had the whipple 2 weeks ago, just trying to get all the information about the sugery , any symtoms or pain? thanks krissy

Quote | Reply

nja8007

The biggest issue I had after the surgery was extreme fatigue. It's so much more than tired ever was. I was able to eat, but didn't feel much like doing so and there were a few times that I didn't eat and became so weak that I could barely lift my head from the pillow. Make sure that your dad eats and eats healthy. The doctors recommended Ensure, but I hated the taste. I was able to tolerate Carnation Instant Breakfast ad so made sure I drank a glass or two a day. I don't know what sort of schedule of chemo and/or radiation, but I worked through both. I scheduled the chemotherapy on Thursday after work and took off Friday and stayed in bed for some or all of the weekend. I don't mean to make this sound like a walk in the park. This is serious surgery and it takes a long time to recover. One thing is not pushing to hard or thinking that everything will be as it was. Take care of your dad and yourself. and best of luck and love to us all.

Quote | Reply

krissy66

hi there its krissy say what is the differance form chemo and radiation? do they both make you sick? i know he has to have something done when he is healed from the surgery

thanks

Quote | Reply

nja8007

Hi Krissy, This is just a layperson's understanding. I really suggest you begin talking with your dad's doctors or find someone at the hospital's support center who can help you and your family. With chemotherapy, a specific drug is given intraveneously; in my case once a week for 3 weeks, 1 week off then 3 more for 21 total. Each treatment took about 1 hour at the hospital. With radiation you get a dose targeted in the area and it took less than a minute each time; 5 days a week for 6 weeks. Everyone reacts differently to treatment & your hospital should discuss the possibilities before treatment. Go with your dad and take notes so you'll now what to expect. Hang in there, kiddo.

Quote | Reply

krissy66

thank you so much i know i have been asking alot of questions on here, but sometimes i feel like this is only place i can go. im in wisconsin and he is florida. my little brother aged 22 is the only mostly talking care of him. my stepmom really has not been doing anything. my dad used to do all of the cooking banking working and paying all the bills. it freaks me out not to be there with him too help. im going down in may. right now dad says he doesnt want anyone really around. he just doesnt feel good. im my mom hes ex wife we are all friends and i know she has been stopping bye with soup and stuff but doesnt want to interfere. im just trying to get as much info so i can call with what i know. i feel sorry for my dad. if i was there i would be cooking and helping out. this stinks. i would be making fresh squeezed juice and making all kinds of stuff for him. my stepmom just really isnt doing any cooking or anything. sorry to vent im just frustraded. i think i might make some stuff and freeze and maybe try to send it there!!! thanks for listening. i hope your doing better

lots of love

krissy

Quote | Reply

nja8007

Krissy - Don't ever feel bad about the way you're feeling. This is tough any way you look at it. How old is your dad? I was 57 when this journey began for me and I am doing pretty darn well. Ask any questions, and if I can answer, I'm happy to do so. As for the not-cooking stuff, I didn't have much of a taste for anything for a long while. I actually couldn't stand the taste of water! Encourage your brother to get Ensure or Instant breakfast, fresh fruit, ice cream, pudding, jello or whatever else your dad will eat. Toast worked for me too. Go and see your dad and feel free to email any questions. Hang in there Krissy

Quote | Reply

nja8007