can't get PET scan

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can't get PET scan

by 41gram on Thu Apr 09, 2009 12:00 AM

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So many of you recommend a PET scan as a good diagnostic test  and discuss getting one.  Medicare (my primary insurance) will not pay for it and the test is very expensive.  I'm frustrated and disadvantaged by this policy.

RE: can't get PET scan

by Burdick on Thu Apr 09, 2009 12:00 AM

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On 4/9/2009 41gram wrote:

So many of you recommend a PET scan as a good diagnostic test  and discuss getting one.  Medicare (my primary insurance) will not pay for it and the test is very expensive.  I'm frustrated and disadvantaged by this policy.

That is hard to understand.  Medicare paid for mine.  Have you signed up with Medicare?  If you have, I would ask the doctor why they won't pay. If he prescribes it, they ought to pay.  If he won't prescribe it, get a second opinion.  My understanding is the Medicare Advantage is much less good than traditional Medicare.

RE: can't get PET scan

by ladyjogger31 on Thu Apr 09, 2009 12:00 AM

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Hi, I was told that you have to have ct scans first in order for the insurance company to pay for a Pet scan.I have asked for pet scans and told that ct scans are more reliable, because pet scans can light up sugar  as hot spots.Good Luck!

Hugs,Terry

 

RE: can't get PET scan

by PigNm on Thu Apr 09, 2009 12:00 AM

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On 4/9/2009 ladyjogger31 wrote:

Hi, I was told that you have to have ct scans first in order for the insurance company to pay for a Pet scan.I have asked for pet scans and told that ct scans are more reliable, because pet scans can light up sugar  as hot spots.Good Luck!

Hugs,Terry

 


Hi I was told when I was scheduled for a Pet scan but never went through with it due to CT scan showed the growth on it. But anyhow, I was given a special diet to go on for 48 hour prior to Pet scan, No sugar or caffiene and other things I cannot remember. It was a strick diet and I had trouble with it and could not go through the 48 hours on it. I then had ct scan and they found the problem, so I did not have Pet scan.

Just a note. Nancy

RE: can't get PET scan

by Annette1 on Thu Apr 09, 2009 12:00 AM

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This problem has been resolved, although it may take some time for the insurance companies to catch up with Medicare/Medicaid. Please read the recent announcement below:

The Ovarian Cancer National Alliance Plays Significant Role in Advocating
PET Scan coverage for Medicare Patients

Friday, April 3, 2009 (WASHINGTON, DC): The Centers for Medicare & Medicaid Services (CMS) announced its decision earlier today to cover Positron Emission Tomography (PET scan) for ovarian cancer patients.  In contrast, many other cancer patients who receive care through Medicare will be covered for only one PET scan as part of initial treatment strategy development.  Those patients can receive subsequent PET scans from Medicare only through a large clinical trial designed to collect data for a process known as Coverage with Evidence Development (CED).  Ovarian cancer is an exemption to this decision and ovarian cancer patients will be able to access PET scans whenever their providers determine that it is medically necessary in the context of subsequent treatment strategy.  The Ovarian Cancer National Alliance worked diligently with CMS and the cancer community to ensure that CMS's decision supported ovarian cancer patients and is pleased with the resulting decision.

CMS already provides full coverage of PET scans for nine types of cancer: breast, cervical, lymphoma, melanoma, non-small cell lung, colorectal, esophageal and head and neck cancer.  This coverage will be continued. 

The Ovarian Cancer National Alliance was the only cancer patient advocacy group to testify at the Medicare Evidence Development and Coverage and Analysis Group meeting in August 2008. Cara Tenenbaum, Senior Policy Director for the Ovarian Cancer National Alliance, participated in the hearing.  Tenenbaum noted that, "Our organization supports all evidence-based medicine and believes PET scans are a proven method for ovarian cancer patients when it comes to treating women who need restaging and or monitoring for recurrence or response to treatment. CMS's decision today will aid doctors and patients in having a full and accurate measure of ovarian cancer, not only assisting with more accurate treatments, but ultimately helping to save lives."

The National Oncologic PET Registry (NOPR) was a driving force behind the recent CMS decision because it proved thorough medical evidence that PET scans play a significant role in treating patients with cancer. The NOPR data showed that one-third of its PET scans led doctors to a change in treatment. For ovarian cancer patients, the data from the NOPR supports what patients already know - that PET scans are incredibly useful for restaging and monitoring recurrence: 
    • Overall, for the more than 4,500 ovarian cancer patients who had PET scans through the NOPR for any reason, approximately 40 percent had a change in treatment decision based on the results of the test. 
    • More than one-third of ovarian cancer patients who were enrolled in NOPR had a change in management from non-treatment to treatment, and 7 percent went from treatment to non-treatment.
    • Of the women who received PET scans for staging purposes, 43 percent had a change in management. Of those who received PET scans for restaging, 37 percent had a change in management. And, of those receiving PET for recurrence, 44 percent had a change in management.  
        The decision reads:
        CMS has reviewed evidence on the use of FDG PET imaging to determine subsequent treatment strategy in patients with ovarian cancer. CMS has determined that the available evidence is adequate to determine that FDG PET imaging improves physician decision making in the determination of subsequent treatment strategy in Medicare beneficiaries who have ovarian cancer, improves health outcomes and is thus reasonable and necessary under§1862(a)(1)(A) of the Act. Therefore, CMS has determined that FDG PET imaging is nationally covered for this indication for this tumor type.

        According to the American Cancer Society, 21,650 American women were diagnosed with ovarian cancer in 2008 and 15,520 died from it.  Ovarian cancer is the deadliest gynecologic cancer and the fifth leading cause of cancer death among women in America.  There is no reliable early detection test for ovarian cancer, a tumor which seeds and spreads easily throughout the peritoneal cavity.  It is often difficult to measure response to treatment, the spread of the disease and possible recurrences. PET scans were considered so effective by doctors, that almost as many ovarian cancer patients were scanned through the NOPR as prostate cancer patients, even though there are 11 times more prostate cancer diagnoses per year than ovarian cancer diagnoses.

        To learn more about the CMS PET scan announcement today or if you have additional questions, please contact Cara Tenenbaum, Senior Policy Director for the Ovarian Cancer National Alliance, by phone at 202.331.1332 or email at ctenenbaum@ovariancancer.org

        RE: can't get PET scan

        by Donna_Gayle on Thu Apr 09, 2009 12:00 AM

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        Thanks, Annette, for the info on PET scans.  My first PET 3 years ago was denied because at that time ovarian wasn't covered.  However I also had had breast cancer, and after we appealed, they paid for it.  Now they pay for a PET every time my Dr. requests it, but she only does it when she feels she needs to.

        I think it is up the the Dr. to make sure this happens.  A PET definitely shows where the cancer cells are.

        RE: can't get PET scan

        by 41gram on Fri Apr 10, 2009 12:00 AM

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        Thank you Annette and everyone who responded.  I have exhausted all conventional treatments in two years and three months and am waiting to see if there is a clinical drug trial or radiation to try next.  The radiologist I saw mentioned that a PET scan would be useful before starting treatment.  I am relieved to learn that it may not be another battle to get one. 

        Pat

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