Women who don't have BRCA mutations could have other high-risk genes that affect treatment choices
by Lil_Sis on Thu Apr 09, 2009 12:00 AM
My sister was dx with multiple myeloma in October, 2008. She began oral treatment until her numbers are at a level where they an proceed with a stem cell transplant. Because her insurance required a second opinion she met with a second oncologist. At that appointment the doc said he didn't feel confident to say she actually had MM. He found a lump under her right arm and said her spleen seemed enlarged. He recommended a CT of her abdomen.
Well, we just got the results back today. Her lymph nodes and spleen are just fine, however, they found a mass on her left kidney. Her lower lobe. It is 11cm in size (appx. 4") The urologist seemed very positive and said for us not too worry. He couldn't say if it was cancer. They will remove the kidney and send it to biopsy.
Has anyone had a mass on the kidney and not have it be cancer? We are devestated. My sister is dealing with blood cancer and we are hoping this is not kidney cancer as well.
by Twiddles on Sat Apr 11, 2009 12:00 AM
I don't know whether a mass on the kidney is always cancer, but I can tell you that not all masses are cancer. I know personally, because 3 months ago a mass was found on the tail of my pancreas. My mother died of pancreatic cancer 2 years ago, and of course I feared the worst. Last month I had the tail of my pancreas, my spleen, and my gall bladder removed. The mass was a little larger than a golf ball. The biopsy came back negative!! It was NOT cancer!! The doctor said, though, that this mass would have eventually become cancerous if it had not been found and removed in time.
Your sister is lucky if she's had a CT scan and only showed the kidney mass. That would mean if it is cancer, at least it hasn't already spread to the lungs or elsewhere. If caught in an early stage, there is a much better prognosis. My husband has kidney cancer but was already stage IV when we discovered it.
by Lil_Sis on Sat Apr 11, 2009 12:00 AM
Thanks for replying to my message. I am sorry your husband is battling stage IV kidney cancer. My heart goes out to you. I am so scared for my sister. Our family has been through so much since July when at that time my dad was hospitalized. He went in because he was concerned about swelling in his legs. After running tests they discovered her had stage IV lung cancer which metastasized to his liver, kidney and adrenal glands. He dies exactly three weeks later. Then, in October my sister is dx with multiple myeloma. Now she may have kidney cancer????? I don't know how much more our family can handle.
I am concerned that her mass is cancer because reading info online states that 90% of the time, when a mass is solid and is greater than 4 cm it is most likely cancer. Her mass is solid and is 11 cm. They will remove her entire left kidney even though the mass is in the lower lobe. The doc said it is growing upward towards a main vessel and would not recommend trying to cut it out. He said she can live a lift without restrictions with one kidney.
If your husband has stage IV, does that mean it spread?? Did her have to have his kidney removed?
Thanks again for your response.
God Bless and Happy Easter.
by mrsscott on Sun Apr 12, 2009 12:00 AM
Having a kidney removed is a major surgery, but we are able to live just fine with only one kidney. My husband had his kidney removed 7 years ago for kidney cancer and has moved along okay without it. He has been on various treatments for the cancer, but his remaining kidney seems to be quite functional. I understand the devastation of cancer in one family. My mother-in-law died a month ago today of metastatic breast cancer. My brother has had a recurrence of melanoma after 10 years. My sister-in-law is a thyroid cancer survivor. It's a horrible thing, this cancer. I have found, however, that it has made us draw close together.
I hope the Lord gives you peace as you endure this battle.
When you track a discussion, you will get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to track this discussion?
If you stop tracking this discussion, you will no longer get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to stop tracking this discussion?
We care about your feedback. Let us know how we can improve your CancerCompass experience.