16 Days Post op rc

Had my bladder removed in March 2006. It's been a really slow recovery. Still can't eat right I
have become very sentative to the smell of foods.
I'm just wondering different people out there are recovering and what there going throught

Hi,

My husband had his bladder removed in January of this year. He has a neobladder. He was in the hospital for 5 days and at home with a cathedar for 2 weeks. His recovery went very well; he went back to work part-time 5 weeks post-op. He regained daytime continence quickly, however he is still struggling at night. My husband's surgeon attributed Shawn's quick recovery to his age (28) and the fact that he had no other health issues than the cancer.

Shawn received chemotherapy before his surgery causing him to lose about 30 pounds. He has a good appetite, but is not gaining much weight. He weighs a whopping 150 pounds. He has not complained that the smell of foods bother him, but some of his tastes have changed. Things he used to love he can do without now.

I am sorry you are having a slow recovery. What do you mean by slow, what troubles are you having? Do you have a neobladder? Where did you have your surgery? Please don't forget that you are only 3 months post-op. I had to remind myself that this is a major surgery and everyone responds different. How old are you? I found this website to be very informative when my husband was diagnosed. There are a lot of nice people that can share there experiences with you. If you have any specific questions about my husbands recovery, I would be more than happy to answer them.

Good luck! Stephanie

Hi Tim,

How are things for you & Kathy? Shawn & I are doing great. He hasn't had any problems. His ankle healed fine after falling off the ladder and the sexual side effects seem to have worked themself out as well. We go back to see Dr. Koch in August for a CT scan & follow up. Shawn is still struggling with nighttime, but other than that our life is normal. We are going to Hilton Head next week.

What is going on with you?

Hi Tim,

How are things for you & Kathy? Shawn & I are doing great. He hasn't had any problems. His ankle healed fine after falling off the ladder and the sexual side effects seem to have worked themself out as well. We go back to see Dr. Koch in August for a CT scan & follow up. Shawn is still struggling with nighttime, but other than that our life is normal. We are going to Hilton Head next week.

What is going on with you?

Hi Steph,
Great to hear that all is working out for Shawn and you, the night time thing will come around soon I hope. I have gone back to normal don't even think of the surgery anymore. I don't know if I told you that I had a form of MD called polymyositis it has been in remission for the past 6 years but seems to have comme back for a visit. I had my first of what will be many nasty tests today I am very weak can only lift about 30 pounds and sore like I have worked out. it thinks that my muscles are damaged so it sends out an enziem that eats the tisue but thats life one log after another to jump over. I am sure I will be reporting good news shortly I just need to get the right meds going.

Take care
Tim & Kathy

my mother had rc surgury & formed neo bladder but after 10 days leakage in abdomin was not controlled & she had infection & again gone for re surgery to remove leakage . now after surgery on 7 th day againg unine is coming from abdominal drain. she was 55 years old & no foods given from 22 days . Mucas also coming from urine. Infection is minor.
I do not know what is to be done further & how to come out from this situation as i cannot trust my surgeon after this problem.
can you guide in this regards to give post op tips.

Pankaj
India.

Hi Pankaj,
I am sorry your mother is having a rough time of it,the mucous will be with her for the rest of her life the intestine that they used to form the neobladder produces the mucous so this is to be expected, but if she drinks plenty of water it should not be a problem.Please go to
www.acor.org and click on the mailing list tab then click on the "B" and go to the bladder cancer cafe and sign up there you will find many women who have had RC's done. Has she started to eat yet?
If I can help any further please contact me.
Good luck
Tim

Hi
No she was not allowed to start the foods/liquid.
Water is allowed less by dr. from last 2 days more urine & infection is coming from abdominal drain as may be suprafobic catheter get chock up due to mucus. what your doctor can suggest in this situation? what i really do to save her.
money is also shortfall for me.

rgs
Pankaj

Hi Tim,

Remember me? I am wondering how you are doing? If I remember correctly, you just passed the 1 year anniversary of your surgery? I hope life is treating you & Kathy well and that the problems you were having with MD have subsided.

Everything is going great with us. I remember when Shawn & I were going through this terrible ordeal, you mentioned that your life was back to normal & some days you didn't even think of the surgery. I thought you were crazy, but you were right. We have moved on & hardly think of it. Until we get the hospital bills, that is!

Anyway, just wanted to let you know that I think of you often & hope you are doing well.

Happy Thanksgiving. Stephanie

Of course I remember you!!!!!!!Your ears must have been burning, not more than an hour ago I was talking to Kathy on the phone and we were asking each other about you guys.what a trip!!! I am doing much better now I just had my one year check up and all is good I don't go back untill April. I am so glad you guys are doing well.
Happy Thanksgiving to you and please keep in touch.
Tim