HELP!!!!!Bone mets?

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HELP!!!!!Bone mets?

by more_life on Mon Apr 20, 2009 12:00 AM

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hello all! was diagnosed with stage 2 clear cell renal cell carcinoma in January 2009 the diagnosis happened aftyre a radical nephrectomy.. tumour stage 2 grade 1 it was a large tumour 15cm but still low grade as pathology says. I was and still am pregnant at the time of the diagnosis . anyway have recently been feeling really itchy all over and have a pain in my knees and legs, i keep worrying that the cancer may have spread to my bone as this cancer has an affinitiy for bones. i alsohave burning pain all over, every now and again. anyone ever had such symptoms?have had both a liver and kidney check, blood work, all is normal. can't do cat scans till after the birth of my baby in july. willinsist on bone scan as soon as i give birth. any help in the meantime?

RE: HELP!!!!!Bone mets?

by JulieUK on Thu Apr 23, 2009 12:00 AM

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Wow! You have been through it and some! To be going through cancer treatment while you are carrying a baby is an incredible achievement.

Just to say that the 'tingles' may be caused by the surgeon having to cut through nerves during the op, so may be worth asking if that could be so. I know it's SO scary wondering if the cancer is anywhere else, and knowing you can't find out until your baby is safely born.

I appreciately, obviously, you can't let CT/ X-rays near your baby, but would it be at all possible to have, say, your lungs scanned (that's the most likely place for any mets to be), if they shield the abdomen properly? Similarly, you might be able by the same token to have a head/neck scan, just in case of brain mets (though if you have no neurological symptoms, even if you do have brain mets, they would be so small as to be able to 'wait' until your baby is born). Again, could you do bone scans of your ribs/shoulders, arms and legs (ie, avoiding lumbar spine and pelvis because of your baby)?

Finally, any chance of an MRI, which, so I understand, is 'harmless' (unless you have magnetic metal in you!) However, I'm not sure if MRI can detect bone mets (my husband didn't have them, so am not well up on bone mets at all.). I assume ultrasound can't see them, or you would have had that done, as I dare say you've already seen pics of your baby by US!

Finally, may I reccoment another source of excellent informatoin on RCC, which is the email group kidney-onc which you can join on http://cancerguide.org/kofaq/. There is a huge amount of collective experience there - though I have to say I can't recall seeing anything about cancer during pregnancy (but it's been running a long time, the group, and there may well be older experience of that combination there).

All the very, very best to you, and I hope all goes well with both yourself and your baby. When are you due?

Take care, Julie.

PS - just wanted to say that although, obviously, these days obs don't like doing X-rays of a foetus, my older brother (post war) had Xrays taken of him in utero (he was breech) and he's grown up very strong and healthy! Presumably they took the Xrays (all pre US days, you see) when he was pretty close to term, and so there was least risk of development being affected. My mother always kept the X-rays, as a 'souvenier'!

RE: HELP!!!!!Bone mets?

by JulieUK on Thu Apr 23, 2009 12:00 AM

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Sorry - just realised you said 'July' as your due date. Also, just to say, could be the symptoms are just symptoms of the pregnancy, not the cancer - tricky to differentiate.

Best, Julie.

RE: HELP!!!!!Bone mets?

by jcr65566 on Thu Apr 23, 2009 12:00 AM

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O you poor love you are very brave I know some thing that well hepe you as its helps me Im on the bugwig anti-cancer diet and I also take a lot of vitamins to help fight my cancer. But Ive also read it not good to  go on any vitamin while your pregnet. I know why the pain that come and gos can you have a look at this site it will explain it better  http://www.cancertutor.com/Cancer/Budwig.html

this is a sit that shows how to make it

 http://www.youtube.com/watch?v=RSoddptWL0s

I wish you well God bless you both Ray

RE: HELP!!!!!Bone mets?

by more_life on Fri Apr 24, 2009 12:00 AM

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Hi Julie! Thanks for all your advice and kind words. I am really grateful to to have undergone surgery and stioll have a chance to have my baby after all that. Yes have had a few us scans to check out my bundle of joy. precious. Yes all the tingling and itchy symptoms are irritating,trying to hang in there till i have my baby. My dr doesn't really want to do more tests till baby is born! Will just hang in there and pray!!!!!!!!! I can't bear the thought of not seeing my children grow up! sowill fight all i can! I was relieved when pathiology said the cancver was steage 2 so these symptons are the last thing i need but will just pray it's not the cancer. the thing with a cancer diagnosis, everything becomes worrying. anyway we acceptwhat we can't change and life myust go on. thanks for all your support. How is your husbandishe the one with the cancer? Its so good to have a listening esr, cheers jackie.
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