I was recently diagnosed with multiple bilateral paraganlioma. The doctor said because they are slow growing they are benign but he can't do surgery due to the risk to my RLN. He told me I "could chose" to have radiation therapy to stop their growth. Because they have caused a paralyzed vocal chord I was going to have surgery bringing one of the chords over. He order more tests and a biopsy of a nodule on my thyroid. Now I've been diagnosed with thyroid cancer and will be having it removed.
The point of this whole story is to give you the big picture. I need to know what to do next. Should I contact an oncologist first, deal with the paraganlioma with a vascular specialist, see an endocrine specialist or wait until after the surgery to deal with everything. I'm currently being seen by the Head and Throat surgeons at UCLA and while they seem to be great a diagnosing the problems they don't seem to be able to coordinate all the varying problems which appear to be related. Does anyone have any advise?