One patient with glioblastoma still alive nine years later
by hollis40 on Fri Jan 06, 2012 07:38 PM
its amazing how they can say : no cancer seen after my mascestomy 13 lymph nodes clean, margins clear. 6 years later i have stage 4 breast ca with mets to my bones. lisen to your gut. the drs and insurance companyies make it very difficulty to feel safe. i will keep your message with my prayers. its my only safe place. debra
by Bonniee on Fri Jan 06, 2012 10:41 PM
Thank you, but that was not my question.
by Bonniee on Fri Jan 06, 2012 10:43 PM
Thank you. I am seeing my doctor today. I guess if it is going to get you, there is really nothing anyone can do. I knew a woman who went to ER with abdominal pain and bloating. She had stage 4 breast cancer and her primary breast cancer was never found.
by Bonniee on Fri Jan 06, 2012 10:58 PM
It almost sounds like BC is a systemic disease, from the start, doesn't it? I mean, does it really just affect your breast? Or does it just "present" there as a sign that your entire body is being invaded? Dr. Susan Love talks a lot about PREVENTION, something all the research money does not go to - the research money goes to screening methods and treatments. I remember her saying that if your breast cancer is "invading" the neighborhood, then, after treatment of course, you need to "change the neighborhood" How do you do that? Read "The China Study" It talks about all the high protein foods we are eating, the casin in the animal protein. Fuels cancer growth. I have become a vegetarian, no dairy and started exersizing 30-40 minutes a day - to change the chemistry in my body. No, I am not sure it will be helpful, but there is surely enough prove out there that we are all eating crap, - not real wholesome foods. So I figure it is worth a try. It's my life.
So, again, I ask my question. Has anyone had a cancer discovered that did not show up on mammogram, ultrasound or breast MRI and WHOSE CANCER MARKERS: CA 27, 29 AND CA 125 WHERE ALL NEGATIVE?
Thank you all
by mtnbiker on Sat Jan 14, 2012 06:10 PM
Yes, I had a lump in my breast size 2cm you could feel, but mammo did not pick up, my doctor and I knew it was there. Ask for u/s
by cannc on Sun Jan 29, 2012 04:59 PM
On Apr 23, 2009 12:00 AM Lindalou wrote: Hello, I'm visiting from the Thyroid Cancer message board and have a question. Did any of you find a lump that did not show up on mammogram or ultrasound but turned out to be malignant?I found a pea size lump 2 weeks ago and went to my gyno. He also felt it and sent me for a diagnostic mammogram with ultrasound. The tech, AND the radiologist could feel it but could see nothing on the ultrasound.I was relieved at first but now I'm wondering if I should still worry. My thyroid cancer was found as a fluke so I'm a little skeptical. Any advise is appreciated!
On Apr 23, 2009 12:00 AM Lindalou wrote:
I'm visiting from the Thyroid Cancer message board and have a question. Did any of you find a lump that did not show up on mammogram or ultrasound but turned out to be malignant?
I found a pea size lump 2 weeks ago and went to my gyno. He also felt it and sent me for a diagnostic mammogram with ultrasound. The tech, AND the radiologist could feel it but could see nothing on the ultrasound.
I was relieved at first but now I'm wondering if I should still worry. My thyroid cancer was found as a fluke so I'm a little skeptical. Any advise is appreciated!
I do not want to worry you, but I would not quit until you know for sure. I had several mammograms and ultra sounds and was told repeatly by several doctors that there was a lump, but it did not feel like cancer nor did it look like cancer, therefore, it was their diagnosis it was not cancer. I had this gut feeling it was something and I have the most wonderful doctor that believed that I believed there was something there. He sent me to a breast surgeon and she confirmed, along with her assistant it was not anything, but to make me feel better she ordered an MRI. Then, the roller coaster began. It turned out to be a very aggressive tumor that called for immediate surgery and a week later I was back in the hospital with a second surgery for the removal of the rest of my nodes by my left breast. This followed with several chemo treatments and over thirty radiation treatments. The good news is it has been five years this last December and I am still cancer free. I would not be here if it were not for the Herceptin drug.
I would push for further testing just to make sure.
All the best to you.
by Aranka on Mon Jan 30, 2012 01:27 PM
While I have never found a lump on my breast, I do have a very dense breast tissue, meaning that such tissue can hide evidence of cancer without revealing the signs on the memmogram. In this case you should seek a CT scan and/or MRI to further assure yourself of lack of evidence of cancer.
There are many articles and studies written on the subject of dense breast tissue.
by andrea1959 on Sat Feb 04, 2012 02:42 AM
After finding a lump on my breast in Sept 2011, I went to get a mamogram that was compared to the yearly ones I get every year as my mother had breast cancer 2 times. Shes 81 and cancer free. The mamogram showed normal. I went to my family Doctor him thinking it was a cyst and was going to extract the fluuid from my breast. I didnt think that was a good idea so I asked for a ultrasound and sure enough thats when something showed up. After 2 biopsys, I was diagnosed on Nov 2, 2011 with Stage 2B Ducto carsenoma breast cancer, ended up with a masectomey and a auxillary dissection of 16 nodes removed with one cancerous, and now half way thru chemo, now on taxol with 3 more to go.
Id get a second opinion.
by Aranka on Tue Feb 14, 2012 06:55 PM
I just had the memmogram done and have been told that my breasts's tissue is rather dense. My doctor suggested the ultrasound. I had the ultrasound and it appears that all is well. The techician who had administered the ultrasound suggested I do the MRI if ultrasound not effective. She also told me that at times doctors perform biopsies just to make sure that growth is not cancerous. Please follow up on this further and let me know the results. I'll be thinking of you.
by candee on Thu Feb 16, 2012 02:55 AM
My cancer also did not show up on a mamogram and even on the ultrasound there was doubt, but a biopsby was ordered and there it was -- it was a mass not a lump -- but a pea size lump could be something other than cancer -- I had two pea size lumps, one on my neck, and one on my upper thigh -- went to a doctor and found they were spider bites -- took the anti biotic and sure enough, they went away -- There is now quite a bit of doubt now as to whether mamograms are for real or even sufficient Have you read Suzzane Somers book Knock Out -- wonderful book re:
cancer, discovering it, and treating it, a must read.
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