advice?

4 Posts | Page(s): 1 

advice?

by anniegr8ful on Mon Apr 27, 2009 12:00 AM

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within the last 2 months we had a diagnosis of metatstaic liver cancer advanced, we cant find the primary cancer however pathology tells us it is a small cell cancer.3 quarters of my liver is filled with cancer.it is not curable or opperable. chemo worked for 3 weeks then marker levels started to go up. Doctors give 3 weeks without anymore treatment or very aggressive treatment that they call a hail mary......odds of blood transfusions, infection, etc..... are almost a given and what do i want to do? any suggestions? oppinions?  ALL WELCOME!

THANKS!

IF I CAN TRY TO BE OF HELP TO ANYONE PLEASE DONT HESITATE

RE: advice?

by lccakes on Tue Apr 28, 2009 12:00 AM

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My mother had small cell cancer of the lung which metastacized to her liver.  She had "too many lesions to count in her liver".  She got accepted into a trial involving amrubicin and did wonderfully.  Everything was shrinking and she had very little side effects compared to her first round of chemo involving platins.  She did 8 rounds of amrubicin and had shrinkage with each one.  However after the 8th one, she got pneumonia and missed her 9th session by 3 weeks which knocked her out of the study.  She then had to switch to topetacan which did nothing and then taxol which did nothing.  I hope Amrubicin is approved by the FDA soon because it was a wonderful drug for my mom for the ten months or so she was involved with the trial. 

Good luck to you. 

RE: advice?

by lccakes on Tue Apr 28, 2009 12:00 AM

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Go to clinicaltrials.gov and do a search of amrubicin.  Wasn't sure if you had that info.  I am sending prayers your way. 

 

RE: advice?

by CancerStrike2 on Sun May 03, 2009 12:00 AM

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On 4/27/2009 anniegr8ful wrote:

within the last 2 months we had a diagnosis of metatstaic liver cancer advanced, we cant find the primary cancer however pathology tells us it is a small cell cancer.3 quarters of my liver is filled with cancer.it is not curable or opperable. chemo worked for 3 weeks then marker levels started to go up. Doctors give 3 weeks without anymore treatment or very aggressive treatment that they call a hail mary......odds of blood transfusions, infection, etc..... are almost a given and what do i want to do? any suggestions? oppinions?  ALL WELCOME!

THANKS!

IF I CAN TRY TO BE OF HELP TO ANYONE PLEASE DONT HESITATE


Ask the doctors to lay out on options (worst, the impossible and the best, possible solution, etc.)  Take all what they offer - plasma tranfussion, antibotic, feeding tube on food milk to let ur family member get well/strong first prior go on aggressive route, vitamin fluid, but not too much of IV sodium fluid ok...

Good luck!

V

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