Recently diagnosed

I have  just been diagnosed with Large granular lymphotic leukemia. In Feb Ihad a rountine blood test and my white cell infection fighting cells were 0. should be1500 to 2000. The dr.took me off of plaquenell that I took for RA.. Did not help. Had bone marrow test and lots of blood tests, the went an had an iv of gamma globulin that took 8 hours.  It brought it up to 700. So he gave me a shot of pegogen not spelled right, went bak in a week and it had come from 700 dwn to 400.  Now I am on cyclosporine and cytoxan.  I go b ack in 3 weeks to see if this brings my white fighters up.  I have felt fine and had no symptoms, if not for the routing blood test I would not know anythng was wrong....but they tel me I cnanot have zero white infection fighting cells or I will end up sick

 I went thru shock , and fear at the bone marrow test, and now also at these drugs that read like they can cause all kinds of things.. If my count does not come up in3 weeks, I am going to scream.

  thank you for listening

Hi, I had lgl for sixteen years and was never treated with anything, tryed many herbs and vitamins, in 2005 I got rid of this insane disease using 3000 mg vitamin C, or more at times. 200mg of COQ10, and 1500mg of olive leaf extract,   taking this each day,  started feeling  better in 2 to 3 weeks, it takes time, just stay with it. God bless, Longbow    p.s. I get my olive leaf extract at Swansons health products, they are on the web, its only 11.00 dollars a bottle.

You were on plaquenil for RA? Get tested through IGeneX and/or Fry Labs for Lyme Disease and coinfections like bartonella/mycoplasma. These bugs are hard to detect with most ordinary blood tests, false negatives are common. This goes along with the other poster's recommendations that you take CoQ10 and olive leaf, along with C. CoQ10 kills some parasites, and I believe olive leaf is antiviral.

Join lymenet for more info.

Also, are you living close to high-tension power lines or a cell phone or wifi tower or antenna?

www.antennasearch.com

These exposures to electromagnetic radiation has been linked to the development of leukemia. You might want to research this for yourself. 

Audio Archives - Audio Interviews with Top EMF Researchers:

http://electromagnetichealth.org/audio-archives-and-more/#pa

Attitudes to the Health Dangers of Non-Thermal EMFs:

http://www.powerwatch.org.uk/news/20080117_bevington_emfs.pd

Bioinitiative Report:

http://www.bioinitiative.org/report/index.htm

I do not live near any high tension power lines or any of the other stuff.

Hi,

Sorry to hear of your Dx. Try not to worry too much, LGL can most often be managed. Cyclorsporine takes a few months to start working. I first took C for a year and got no results until the end. I had to stop because it shot my blood pressure up too high.  My Absolute Neutrophile Count (ANC) has been under 600 for two years now. It can fluctuate drastically. I am now on Methotrexate for a year, yesterday my ANC was 500, not great but at least it has been stable for a while. Seems like you might have caught it early, so keep good records and do some research. Also it would not be abnormal to get second or third opinions. LGL is very rare and most doctors don't know alot about it. Hope your counts get better soon and you stay infection free!!!

TjTeresa