Sutent

Hi,

My husband found out he had kidney cancer that had spread to the chest area two and 1/2 years ago.  He started Sutent and has been on it all this time.  His tumor has shrink about 3cm. The others have remained the same.  The sutent makes him very sick.  He feels better the 14 days he is off.  A lot of nights he has to sleep sitting up. He said if it keeps him alive it is worth it.  Hope it is helping others.   

My husband was on Torisel for 8 months, and it recently stopped working.  He started Sutent 6 weeks ago, and he's having CT scans next week.  I sure hope this next round of scans shows improvement.  It is so encouraging to view the messages here and see that some people have had 2 years on Sutent with no progression in their cancer.  Every day is a gift. 

Nancy

On 5/6/2009 Twiddles wrote:

My husband was on Torisel for 8 months, and it recently stopped working.  He started Sutent 6 weeks ago, and he's having CT scans next week.  I sure hope this next round of scans shows improvement.  It is so encouraging to view the messages here and see that some people have had 2 years on Sutent with no progression in their cancer.  Every day is a gift. 

Nancy

Yes, you are right everyday is a gift.  We are on many prayer lists.  We go South in the winter for 5 months just like normal.  We try not to chang anything.  He does get tired easy from the Sutent but he does most things he did before.  The expense was bad before we got him on my insurance.  He had Humana and it did not pay much.  We are so thankful we could change him.  I hope the Sutent works for your husband.

Pat 

My best to your husband and you. I have stage 4 in both kidneys with mets in my lungs.I am on my 5th cycle of sutent and it has helped dramatically.. the tumors have shrunk and I do believe it has kept me alive or at least has improved the quality of my life. Hopefully, there are some things that can help your husband get through the cycles -- the side effects can be terrible -- but most can be helped with medications.  I am sure that folks on this list have their favorites.. ask your oncologist.

I agree with Nancy, Everyday is a gift.  

steve

On 5/7/2009 atthebeach wrote:

My best to your husband and you. I have stage 4 in both kidneys with mets in my lungs.I am on my 5th cycle of sutent and it has helped dramatically.. the tumors have shrunk and I do believe it has kept me alive or at least has improved the quality of my life. Hopefully, there are some things that can help your husband get through the cycles -- the side effects can be terrible -- but most can be helped with medications.  I am sure that folks on this list have their favorites.. ask your oncologist.

 

I agree with Nancy, Everyday is a gift.  

steve

Bless you steve, hope the sutent keeps working for you.

Pat

Thank you to everyone for all your good thoughts, wishes, and prayers.  I feel a connection to you all....we're like family....all struggling with the same evil villain - cancer.  I've been up since 5 a.m.  Couldn't sleep.  I just lay awake in bed with my mind going a million miles an hour.  I am so worried about Dave.  He's scared.  He wants so badly to live, yet the prognosis is so bleak.  We go through this every time the CT scans are drawing near.  The last scans showed one of the lung tumors has nearly doubled in size, and Dave is very worried about that.  We're hoping the Sutent will beat it back down and keep it under control.

I am so thankful that Dave has had a good 10 months now since he was first diagnosed.  The doctor didn't think he'd survive more than a couple of months, and here we are....10 months later.....still fighting.  So, I am thinking, let's have another 10 months and then another after that! 

Thanks to you all for your kindness and for letting me vent!

Nancy