help me

hello friends
my father have a primary liver cancer (HCC),he has not a pain in liver and diagnose 3 month ago,he lose weight 20 kilo but after use nexavar he was a fat about 8 kilo,my father at 65 age
he use nexavar (about 57*2 pill),he was a weak,the size of tumore about 80 cm,
I have 3 qusetion that help me,
1-when he must use nexavar?
2-doctore said that nexavar could shrunk tumore,I'm not sure!!!I don't know??
3-when he die?(optimistic)

 

On 5/12/2009 jojo wrote:

hello friends
my father have a primary liver cancer (HCC),he has not a pain in liver and diagnose 3 month ago,he lose weight 20 kilo but after use nexavar he was a fat about 8 kilo,my father at 65 age
he use nexavar (about 57*2 pill),he was a weak,the size of tumore about 80 cm,
I have 3 qusetion that help me,
1-when he must use nexavar?
2-doctore said that nexavar could shrunk tumore,I'm not sure!!!I don't know??
3-when he die?(optimistic)

Dear JoJo.

        I am sorry to here about you dear dad.

        you asked about the use of nexavar. may be you should ask your doctors about when your dad should take nexavar.

I have read that nexavar is very good for liver cancer.your doctor will help you with this.

JoJo no one now when thay will die  or how long I will pray for  you and dad God Bless and stay strong.

 

On 5/12/2009 jojo wrote:

hello friends
my father have a primary liver cancer (HCC),he has not a pain in liver and diagnose 3 month ago,he lose weight 20 kilo but after use nexavar he was a fat about 8 kilo,my father at 65 age
he use nexavar (about 57*2 pill),he was a weak,the size of tumore about 80 cm,
I have 3 qusetion that help me,
1-when he must use nexavar?
2-doctore said that nexavar could shrunk tumore,I'm not sure!!!I don't know??
3-when he die?(optimistic)

Hello JoJo, My father was diagnosed with HCC in July of 2008. At first we thought he might be a candidate for a surgery resection, but after another MRI, it was discovered that the cancer had moved to one lymph node. At that time, my father started on Nexavar. His doctor at UCLA cancer canter started him out on 400 mg 2 times per day. This dose became too hard on him by December (he was vomiting and had loose stool). He did have an MRI done in december 2008 and the tumors DID shrink and there were NO NEW Tumors (he had three with the biggest being 8 cm). We were so happy! Unfortunately, on Christmas day, my father had a very mild stroke (NOT related to the medicine) and had to stop the medication. He passed away on April 5th, 2009. He was 65 when diagnosed and 66 when he passed. There have been very encouraging statistics about Nexavar, so if it is working for your father, he should continue. My dads doctor has one patient on Nexavar for two years and is still going strong. As far as prognosis goes, you really can't predict, since every single person has their own will. It's just been over a month since my father passed and looking back. I did notice his behavior changing towards the end, but because I was with him everyday, it wasn't obvious to me at the time. He spent more and more time in his room, he didn't want to come out to the living room and watch TV with me. He didn't want to go outside with me anymore, or have friends over to visit. Finally, he didn't want to eat "heavy" food and ate mostly broth and water. This journey is hard. I will keep you in my prayers and just remember to enjoy every minute that you have with him while on this earth. My father also went through a period when he was very angry and down right mean to me. It was weird because I have three other siblings and he wouldn't say mean things to them when they came to visit. If you are the closest one to him, be prepared and if this does happen to you, know that your father loves you very much and he "chose" to share the most difficult journey of his life with you and this is a blessing. However - I will tell you that there were times that blessing became overwhelming and I had to take a break and get out of the house for a while....Also remember to take care of YOU.

My husband has hcc. He is on Nexavar. He started it April 28th. I do not know if it is helping or not. He is very tired and stays in bed most days. He is eating very little and is itchy most of the time. As far as we can tell he has not had any reaction to the Nexavar. I had to take him to the hospital on Thursday as his stools were black and tarry and they had been for a week but never told me. They said he had a bleeding ulcer. The Doctor at Emerg asked him if he had a DNR and if his affairs were in order.  He is eating very little and I do not know how much time he has left. We have accepted the fact that he will not get better. He wants so much to do some thiings like fish with his 5 year old grandson but i do not think this is going to happen. He is trying to make sure that everything is in order for me, he worries about me not himself. He does get a little aggrivated with things but I know he does not mean to. I understand what you are going through.  The oncologist told him around the beginning of March that he had 3-6 months to live but that the Nexavar may give him a few more months. I have found the time is going so fast and that in a few weeks it will be 3months since the diagnosis. All I can tell you is enjoy any time you have left with your Dad, even if he seems to be hard on you he needs to vent and he thinks you are the strongest person to handle it. Just be there for him and love him for the time you have left. No one can tell when the end is near. I will keep you and your Dad in my prayers as I pray for my husband. He is the best through this all he has had such a sense of humour.  We have nurses that come to our home and they all want to be the one who comes to see him. Hang in there and just deal with things day by day. That is all you can do.

DEAR suzette

thank you for your opinion before you saied about nexavar,I look up on the internet!I call to doctor after read your massage and doctor saied that stop nexavar for a week,he is better now.you said your husbent in end stage!whats the meaning of end stage?and I live in iran please explain the veggis!whats this???another question is about   treatment in austria!do you heard about valedayman institute and dr alishahi??????I have a phone number of this doctor and can talk with him:0043223473038 I heard that sombody have lung liver and have a good result for this treatment,maybe your father get better and improved!!!!!!!!!!!!!!!!!!!I  told my father thay have a another illness like flu!dont tell him he have a cancer.he do his job like before but he always nag that i'm a weak!I tell him lie because i think it's better!
thank you very much,have a best wishes to you and your husband,I wish your husband back to his ordinary life az soon az possible, GOD BLESS. HAMAN (YOUR MY OPTIMISLY FRIEND)

Dear 2dayhope4u
thank you to understand me!i appologize you and have some question,i realy love my father and think you love too.exactly  my father result of biopsy is lymphomena like your father. My father now is better.i woudent tell him have a cancer because i think  it was better than tell him you have a cancer and you will die!!!!!!!He goes to his fair car every day.one day he saied that i'm not simillar to man have a cancer why you protect me much???...please answer to this question.thank you very much,
1-my father have no pain in liver .is your father has a pain???
2-after use nexavar my father have a sore mouth !is your father have???
3- is your father have a another treatment for liver cancer????
4-do you heard about valedayman institute and dr alishahi in austria??????
5-my father could'nt walk correctly before use nexavar,is your father could walk?
 6-in blood test he have high esr(sedimention rate=120),do you know about your father esr????
Have a best wishes to you and your father,i'm haman and live in iran,myfather tumore is about 8cm and was 65 years old,now he use 57+10 nexavar(2 week was'nt eat) when his tumor shrink?
God bless you and your family.   Haman

 

On 5/17/2009 jojo wrote:

DEAR suzette

thank you for your opinion before you saied about nexavar,I look up on the internet!I call to doctor after read your massage and doctor saied that stop nexavar for a week,he is better now.you said your husbent in end stage!whats the meaning of end stage?and I live in iran please explain the veggis!whats this???another question is about   treatment in austria!do you heard about valedayman institute and dr alishahi??????I have a phone number of this doctor and can talk with him:0043223473038 I heard that sombody have lung liver and have a good result for this treatment,maybe your father get better and improved!!!!!!!!!!!!!!!!!!!I  told my father thay have a another illness like flu!dont tell him he have a cancer.he do his job like before but he always nag that i'm a weak!I tell him lie because i think it's better!
thank you very much,have a best wishes to you and your husband,I wish your husband back to his ordinary life az soon az possible, GOD BLESS. HAMAN (YOUR MY OPTIMISLY FRIEND)

Hi  Haman I am so sorry that I did not tell you the way that you could under stand. I will try again.I am so pleased that you have a phone number of a doctor. I do hope that he can help you.I don,t no about valedayman institute i have not hear of this place.

if you give your dad some multivitamin it will help him  vegetables give your dad lots of them you can all so do Green vegetable juice.he can drink them it will help clean his liver and he will feel better.

my husband is in end stage that means that our doctor have no more treatment for him as he has had lots of treatment already.the doctors have told us that my dear husband will not live from this cancer.

Haman i am sorry that you and you dear dad are up set try to strong so that you can help your dad you sound like a very loving  person. please look after your self

I will be here for you . God bless   Dear Friend     Suzette

 

Hello,

You should get your father on nexavar asap!  It works!  He takes two tablets a day/ 1 hour before meals.  (Then increase after they re-scan)  Which will usually be 2 tablets, 2 times a day.

Side effects are diarrhea.  So, you take 2 imodium's before meals and this will help a lot. (Take the 2mg regular doses, not the new improved/for gas/etc.)   On weekends you don't take the Nexavar. (2 Days off).  This will not interrupt the therapy.  It gives the body time to relax, and keep some of the good foods in the system, such as your fruits and veggies.

Give them anything to keep the weight on them.  

Eat lot's of Bananas, for cramping or ask your Dr. for Qualaquin 324 mg.

Cramping will hit them hard.  Take it at night and increase up to 3 times a day.

 The attitude is so important, positive thinking and knowing that you are beating the disease.  I is a fight that can be won.  Thanks to God, we are winning!

hello friend

my name is haman.thank you for your answer,i have some question about nexavar,

first:i live in iran i by nexavar about 3000 doller.how much is it in your country?

2-if you use nexavar do you have a side effect like score in mouth?

i apologize you,and so sorry about that question,we fighting,we winner!!!!!!!!!!!!!!!!!!!thank you. god blese

On 5/19/2009 jojo wrote:

hello friend

my name is haman.thank you for your answer,i have some question about nexavar,

first:i live in iran i by nexavar about 3000 doller.how much is it in your country?

2-if you use nexavar do you have a side effect like score in mouth?

i apologize you,and so sorry about that question,we fighting,we winner!!!!!!!!!!!!!!!!!!!thank you. god blese

Hello - We live in the USA and the cost of the medication here is about $5,000 a month. There are programs available for those who can not afford the monthly cost of the medication. The program is managed through the drug maker "Nexavar". Our doctor did tell us that one of the side affects of the medication is sores in the mouth, on the hands and/or feet. I would check with his doctor for what to take for the mouth, as my father did not have this reaction. One of the previous replies came from someone talking about immodium and nausea and loose stools..these recommendations were right on target and the same we used for my fathers symptoms.