Stage IV Non-Hodgkins Lymphoma relapsed.

I have a tumor in my stomach that is 17 cm long and 9 cm wide. It encompasses my whole right side of my stomach and is wrapped around my hip. I just went through 22 treatment of radiation. They said I need to wait a month to have a catscan to see if it is gone. Done anyone know if that is true as it seems like a lump is forming on my hipline. My tumor grew this large in a month and a half.

Thank you

Paul

On 5/14/2009 retasueus wrote:

I have a tumor in my stomach that is 17 cm long and 9 cm wide. It encompasses my whole right side of my stomach and is wrapped around my hip. I just went through 22 treatment of radiation. They said I need to wait a month to have a catscan to see if it is gone. Done anyone know if that is true as it seems like a lump is forming on my hipline. My tumor grew this large in a month and a half.

Thank you

Paul

Hello, Paul!

If you don't wait a month or so, the scan will most likely show false positives. I know how hard it is to wait. I have Stage III NHL. If you are really anxious, I would call your oncologist. I will be thinking and praying for you. Best wishes,

Pam 

On 5/14/2009 KYPam wrote:

 

On 5/14/2009 retasueus wrote:

I have a tumor in my stomach that is 17 cm long and 9 cm wide. It encompasses my whole right side of my stomach and is wrapped around my hip. I just went through 22 treatment of radiation. They said I need to wait a month to have a catscan to see if it is gone. Done anyone know if that is true as it seems like a lump is forming on my hipline. My tumor grew this large in a month and a half.

Thank you

Paul

Hello, Paul!

If you don't wait a month or so, the scan will most likely show false positives. I know how hard it is to wait. I have Stage III NHL. If you are really anxious, I would call your oncologist. I will be thinking and praying for you. Best wishes,

Pam 

Thank you Pam. I appreciate the information. I just wondered if it was true, so I guess it is which makes me feel better.

Thank you and I will pray for you also,

Best wishes to you too.

Paul

 

 

 

 

Yes Paul, its true. I have stg 2 NHL of my left sinus. The radation oncologist told me 8-12 weeks after before they will do the PET scan again. I am jut starting my radiation and am wondering how the side effects will be. Are you tired?

pearliegirl

On 5/19/2009 pearliegirl wrote:

Yes Paul, its true. I have stg 2 NHL of my left sinus. The radation oncologist told me 8-12 weeks after before they will do the PET scan again. I am jut starting my radiation and am wondering how the side effects will be. Are you tired?

pearliegirl

Hello:

Thanks for the answer. I did find out that my doctor wanted me to wait a month before a new pet scan. It has been almost a month now.

I had 22 treatment of radiation and didn't really have any side effects until the last week. I was nauseated and tired but I had also been through a blood stemcell transplant in March which was a month long process which didn't work as my tumor was growing before they gave it to me and you have to be cancer free for it to work.

Make sure you do your own research too. A lot of doctors won't tell you the latest treatment if their office or hospital doesn't do it. There is a type of radiation called cyperknife which is suppose to be a lot more exact and shorter in duration but so many hospitals don't have it, as it is a very expensive machine. I know a couple of hospitals and the Cancer Center of America has it in Tulsa, OK.

I couldn't have it because my tumor was too large. I have the aggressive type of NHL.

Good luck on your treatment and hopefully since they got yours earlier, it will be easier to treat. They can give you medicine for nausea before treatment everyday if you do have that side effect.

Paul