new here. i have severe cervical dysplasia and im 19

well, im sure everyone hears everyones stories on sites like these...but here i go anyhow.

my name is kim and im 19. freshly engaged. set to be wed on 090909 :) unfortunately we ran into some obstcles while trying to conceive. we started trying last sept/oct 2008. i had my routine pap in oct 2008 and nothing was wrong. no std's. nothing. after trying for 5-6 months with no luck i decided to visit my doctor again in march 2009. had a pap done and got the results. LSIL was what my results were called. my dr then scheduled me for a colposcopy on april 17th. we then recieved the results from that procedure and they'd progressed to moderate dysplasia. my dr then scheduled me for a leep. just had that on may 8th. got my results back yesterday. they showed severe dysplasia! but my doctor thinks she got all abnormal cells with the leep but im still worried she didnt. guess i'll have to wait and see like she told me to do to see if my first pap will come back normal or not....im very worried that if we wait a month it could become invasive if she didnt get it all. i was wondering if i should have the cone biopsy done? just to ensure she got it all,but i also want kids in the future. im only 19! but you know if its really severe enough my life is way more important and i could adpot kids and cope in healthy ways if i cant have kids...i just want to make sure that i am healthy first and foremost!

do any of you think i should have the cone?

also have any of you had pain from a leep last, i think its, 6 days afterwards?

i also smoke alot and my dr knows that and i know i should quit and im trying to try to quit....lol. its just hard with the extra stress being the reason why to quit smoking....

I think you need to get a new doctor, and I think you need to look at all of the lab reports. With those resutls, the doctor should not assume anything. This is not to frighten you, as I realize you're already upset. But getting at least a second opinion could put your mind at ease, at the very least. It would definitely get you actively involved in what is best for your healthcare, which is very empowering.

well i am going in to my doctors today at 345 and am going to discuss everything i fear and have concerns with and view my reports and paperwork. i will update when home.

I still think you need to get a new doctor and get copies of all of your lab reports. Something about the way the doctor isn't educating you puts up a red flag. It's not easy to have to find a new doctor when we're feeling vulnerable and frightened. But sometimes it's necessary. I found a new doctor, after the ex-doctor who botched my LEEP sold me down the river, and I got lucky. The new doctor believes in thoroughly educating his patients before recommending anything. That's what we all need.

so i went to see my doctor today to understand everything better and what my results specifically showed was
in the 12-3 oclock area of the cervix it was severe dysplasia/cis
in the 3-6 oclock area it was mild dysplasia
in the 6-9 oclock area again severe dysplasia/cis
in the 9-12 oclock area moderate dysplasia/cin ii
according to the doc the margins on the 3-6 and 9-12 were clear and the other two were not, but that the cells edge was basically right on the outer part were the loop durring the leep went through and that IF there were any cells left that the carterizing ball used after the procedure should have burned the cells not removed. i feel a little better but i still dont like the "unknowing" for sure if its gone. i have my actual follow up appt on june 10th and then a my first pap 3 months later i think...?! but i dont wanna wait that long its like kinda aganizing...ok not that bad, but you know! haha. anyways thanks for the support all. now i just gotta hope everythings gone and try to quit smoking asap!

something a lil off topic, being unemployed has sucked for my fiance and i both, but i finally got a job today. lame mcdonalds, but you know in a small town like mine a job is a job. no joke! so a lil stress relief there. maybe i can relax a lil more........

I'm sorry you are going so much, in addition to address CIN. I'm glad you found that job. Have you considered moving to a larger town, with more opportunities?

I do have a question for you. Did your doctor do an ECC? That's where the doctor scrapes out tissue from the endocervical canal to see if there is any dysplasia there.

As much as I hate LEEP, due to personal reasons (I didn't need it, but the first ex-doctor wanted to make quick money, and the second ex-doctor horribly botched it.), it was obviously the right surgery for you. But before she recommended LEEP, did she check, first, to make sure there wasn't any dysplasia in the endocervical canal and the endocervical glands? That would determine whether or not she should have done "top-hat" conology or even cold knife. Again, I'm not trying to frighten you. But this would give you more information that would take away the mystery. Not knowing full answers is often the scariest. Knowledge is always power.

well before the leep i was being told i had mild-moderate dysplasia and did the leep BECAUSE it extended into the canal. the results however showed the severe dysplasia, in the 12-3 and 6-9 o'clock areas but on the outer side not the canal side. as far as i know no specific ecc was done to my knowledge? what is it? a procedure or test for the tissue taken for samples?

 about the moving thing, my fiance and i have no car, we totaled it in a smow storm mid dec 08 and our insurance had just lapst the day before so we have had no car. i walk to appts and will be walking to work ugh! so we have no transportation, were on unemployment and food stamps unfortunately cuz i hate them!! so the job cuts the food stamos and now its just the fiances unemployment. we have just enough each month for rent, cell phones, utilities, and foodish.......kinda sucks.

Hello my story is simular to yours. I am turning 20 in less than a week. I thought you would like to know your not the only one with Severe Cervical dysplasia at age 19....

I am originally from Houston, Texas. I moved up to cincinnati, ohio in January 2009. But before I did I had gone to the doctor for my anual check up in either November or early December of 2008. And I had nothing wrong that they could detect with my Pap and routine blood work. My husband and I were just dating at the time. I went to the Doctor and got another Pap done in March 2009 cause I started to have issues with what I thought was Ovarian Cysts due to PCOS that I have been diagnosed with since age 12. They found High-Risk HPV and Mild Cervical Dysplasia. So the Doctor referd me to a specialist. I was scheduled to see him exactly a month later in April. When I went to see him he did tests of his own, yet anoter Pap and Blood work. He discoverd it had then progressed to Moderate dysplasia there fore he scheduled me to come back in two weeks for a Cervical Biopsy. Two weeks later I recieved those tests results and it showed Severe Dysplasia. But due to issues at my husbands job he had to quit and we moved to be closer to his family in Mount Vernon, Ohio and we were only living off of my Social Security Disability check. We decided before that to get married though. We got married by his parent's place on September 6th, 2009. Being that we moved to a town in the middle of nowhere that was four hours away from my doctor we had to transfer and I figured it would be good to get a second opinion anyways because he suggested I get the Cone Therapy done. I now see a doctor here and one week ago on November 2nd, 2009 the doctor advised I get a Cryo done where they freeze the cervix. He said my choises for my situation being that I wanted to have kids one day were prety slim on options. He basically put it that the Cryo was the less advasive of them and for me it was either attempt to do it and try to get rid of the dysplasia or get cancer and never be able to have a kid. Because for other treatments they each have higher and higher risks of creating a bigger chance of not having a kid. Also the more treatments done that are faild treatments not only have there individual 'damage rate' for lack of better term but adding more and more faild treat ments only increases the chance of not concieveing a child ever. Well the for the first 24 hours I had no discharge which I was said to have a little for a few weeks with mild cramping. Not to mention durring the Treatment he said he had been desribed to by women that it feels like heavy menstral cramping and a little bit cold. but to me it felt like the up most excrushiating pain. I couldn't stop screaming and crying it felt like my insides were being gutted out from between my legs. Well, after the 24 hour he said I could take a bath and soak in warm water but I had to wait at least 24... so i did and as soon as i got out it felt like a gush of fluid and a sharp pain... well on to wednesday and thursday the pain died off and the discharge evend out. all through friday and saturday not bad on discharge and no pain. This past Sunday 6 days from the cryo. at about 6:30 pm I got the most horrible feeling again just like the one I described durring the procedure only worse. I ran to the rest room thinking that was all it was just use the rest room... and again a big gush of water only this time it felt as if a fourth to a half a gallon of water was tipped over and pored out of me, like water falling from a big water fall and the agonizing pain continued. So I called the after hours line and was advised to call first thing in the morning which was yesterday morning to get fitted in the same day. I did when I went in yesterday, he examind me and asked me about my symptoms I was experiencing. Basically as he put it he has never seen someone my age with such severe dysplasia to undergo that treatment EVER... Let alone never has he seen any one come in with in a week with complications such as mine. He said with in 7 days of the treatment, in any case, he has NEVER seen it inflame so bad an swell with so much discharge as I started having 2 days ago. He prescribed me a really strong Antibiotic and really strong pain medication due to the severity of it. And Is having me call every day this week for a check in to let him know what's going on.

I as well have to wait 3 months my next appt is set for Febuary 2, 2010. To add to that I just lost my disability check last week and the only income we have at the moment is Food Stamps. My husband and I don't work because we are both disabled. With in the next five to ten years he will be completely blind. My check was discontinued due to our marriage and the only way I can get it back is if he get's approved for his disability check since he has been disabled since birth, just like me and because he applied before we got married. It's really rediculous cause with my check gone so is my only means of paying for my medical expenses if they take away Social Security Disability the Medicare goes with it to. Also with that said I talked to my case worker at the welfare office and she said I don't qualify for Medicaid because we get food stamps and our limit is already at it's highest it can be for two people. Also because Ohio's State Aid Budget has been cut way to tramendusly due to the new Stimulus Plan the Government is putting into effect.

I can see what you're saying about being scared of the unknown and stuff. For all I know with no income or insurance due to the new government plan at the first of December my husband and I will be homeless and I won't have the chance to even get to see my new results 3 moths from now. Not to mention My first wenter in Ohio since I moved here from Texas. I was homeless once in Texas durring the wenter and almost died of hyperthermia... I'd hate to be homeless here. It's as if no matter what good I try to do in my like it just seems like im gonna end up dieing either way... wether it's homeless in the winter here or not getting medical treatment. Not to mention my immune system is already abnormally low to an extreame degree the way the Doctor put it the issues are progressing really fast to an abnormal amount. Worse than he has ever seen.