Is Aromasin worth it?

6 Posts | Page(s): 1 

Is Aromasin worth it?

by ykwas54 on Fri May 15, 2009 12:00 AM

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I had a lumpectomy in March 2006, and was immeadiately put on Aromasin as it was hormone positive. I also had 33 full breast radiation treatments, and have been cancer free since.  I have had two more surgeries on the same breast due to seromas and nodules, all negative.

I am having all the side effects associated with Aromasin. I can't seem to find what the percentage plus is for taking it. Can anyone help me?

RE: Is Aromasin worth it?

by Maddy on Fri May 15, 2009 12:00 AM

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On 5/15/2009 ykwas54 wrote:

I had a lumpectomy in March 2006, and was immeadiately put on Aromasin as it was hormone positive. I also had 33 full breast radiation treatments, and have been cancer free since.  I have had two more surgeries on the same breast due to seromas and nodules, all negative.

I am having all the side effects associated with Aromasin. I can't seem to find what the percentage plus is for taking it. Can anyone help me?


Hi!  My name is Maddie and I was diagnosed with ER positive breast cancer in Nov. 2004.  I chose a different path than you and had a bilateral masectomy, which eliminated the need for chemo, radiation, and never ending biopsies.  I was put on Arimidex and after one year, I decided to stop taking it.  My major side effect was irregular heart beat, called SVT's, which  would cause me to pass out.  This is not a usual side effect of this drug, however, I really believe every drug put in your body has an adverse affect on your cells.  Your question should be discussed with an oncologist, but he will just give you statistics.  The docs can tell you what the increase in incidents will be with and without the drugs.  My five year stat showed with Arimidex, a 8% chance of recurrence but without Arimidex it went up to 17%.  So far, I am fine without the drugs.  I go for a CT/PET scan regularly and it still shows no breast cancer.  The interesting thing,  however, is that the CT picked up a separate cancer -non small cell lung carcinoma.  The way I view this scenario is that my decisions about breast cancer allowed me to find a lung cancer at an extremely early stage.  It is interesting to note also that I eat totally organic food - lots of veggies and fruits, little organic meat,  cook with Corning glass, not teflon or aluminum, never smoked, have not had alcohol in 30 years, exercise almost every day and here I am at 66 years of age with 2 separate cancers.  What I have realized with  my journey is you must read everything you can find regarding cancer.  Five years ago, my doc dismissed my feeling that something was wrong in my right breast.  Since my mammo was clean, she did not take me seriously.  I changed docs and pushed for an MRI, which showed a tumor.  It is the same with me pushing for the regular CT scan - both times I found the cancer, not the doctors.  I read years ago that mammograms miss many small tumors and we should push for MRI's.  That is why I am alive today.  Everyone is different and your choice should take into account the amount of bone loss you face with Arimidex.  I hope you are aware of this and are taking some meds to offset this loss.  One year on Arimidex and I had significant bone loss.  Take care of yourself and read everything you can on breast cancer.  If you live near a cancer center, such as MD Anderson in Houston, that is your best chance to get current data.  In fact they have a web site and you can register for e-mails.  Never give up and be your own advocate. 

RE: Is Aromasin worth it?

by srmac on Thu May 28, 2009 12:00 AM

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On 5/15/2009 ykwas54 wrote:

I had a lumpectomy in March 2006, and was immeadiately put on Aromasin as it was hormone positive. I also had 33 full breast radiation treatments, and have been cancer free since.  I have had two more surgeries on the same breast due to seromas and nodules, all negative.

I am having all the side effects associated with Aromasin. I can't seem to find what the percentage plus is for taking it. Can anyone help me?


I would love to know the answer to this as well.

I had a lumpectomy in Oct. 2002, chemo & 33 radiation treatments.

I have been on Aromasin for 4 years.  I have numerous side effects with the latest now including a severe degenerative disc.  However, I am a single mom and am afraid not to abide by my doctors wishes.  I did 2 years on Tamoxifen, I thought I was going to get off of my meds last year (at the 5 year of meds mark) but my doctor said they changed protocol and now want you on Aromasin itself for a total of 5 years...  I worry that next year they will say, let's just keep on going....

The sore/tired joints, muscles, aches, pains, weight gain, fatigue, etc....  and I am only 47 (I feel 77)..

Good Luck!!

RE: Is Aromasin worth it?

by ykwas54 on Thu May 28, 2009 12:00 AM

Quote | Reply

 

On 5/28/2009 srmac wrote:

 

On 5/15/2009 ykwas54 wrote:

I had a lumpectomy in March 2006, and was immeadiately put on Aromasin as it was hormone positive. I also had 33 full breast radiation treatments, and have been cancer free since.  I have had two more surgeries on the same breast due to seromas and nodules, all negative.

I am having all the side effects associated with Aromasin. I can't seem to find what the percentage plus is for taking it. Can anyone help me?


I would love to know the answer to this as well.

I had a lumpectomy in Oct. 2002, chemo & 33 radiation treatments.

I have been on Aromasin for 4 years.  I have numerous side effects with the latest now including a severe degenerative disc.  However, I am a single mom and am afraid not to abide by my doctors wishes.  I did 2 years on Tamoxifen, I thought I was going to get off of my meds last year (at the 5 year of meds mark) but my doctor said they changed protocol and now want you on Aromasin itself for a total of 5 years...  I worry that next year they will say, let's just keep on going....

The sore/tired joints, muscles, aches, pains, weight gain, fatigue, etc....  and I am only 47 (I feel 77)..

Good Luck!!

My oncologist told me I would probably have to take it for the rest of my life!  Last week my regular MD told me I may have developed Rheumatoid Arthritis, so on my own, I have stopped taking the Aromasin. I don't know for sure if the Aromasin is what caused it, but no one in my family has ever had it.  I am so tired of being sore and tired!

 

RE: Is Aromasin worth it?

by srmac on Thu May 28, 2009 12:00 AM

Quote | Reply

 

On 5/28/2009 ykwas54 wrote:

 

On 5/28/2009 srmac wrote:

 

On 5/15/2009 ykwas54 wrote:

I had a lumpectomy in March 2006, and was immeadiately put on Aromasin as it was hormone positive. I also had 33 full breast radiation treatments, and have been cancer free since.  I have had two more surgeries on the same breast due to seromas and nodules, all negative.

I am having all the side effects associated with Aromasin. I can't seem to find what the percentage plus is for taking it. Can anyone help me?


I would love to know the answer to this as well.

I had a lumpectomy in Oct. 2002, chemo & 33 radiation treatments.

I have been on Aromasin for 4 years.  I have numerous side effects with the latest now including a severe degenerative disc.  However, I am a single mom and am afraid not to abide by my doctors wishes.  I did 2 years on Tamoxifen, I thought I was going to get off of my meds last year (at the 5 year of meds mark) but my doctor said they changed protocol and now want you on Aromasin itself for a total of 5 years...  I worry that next year they will say, let's just keep on going....

The sore/tired joints, muscles, aches, pains, weight gain, fatigue, etc....  and I am only 47 (I feel 77)..

Good Luck!!

My oncologist told me I would probably have to take it for the rest of my life!  Last week my regular MD told me I may have developed Rheumatoid Arthritis, so on my own, I have stopped taking the Aromasin. I don't know for sure if the Aromasin is what caused it, but no one in my family has ever had it.  I am so tired of being sore and tired!

 


 

RE: Is Aromasin worth it?

by srmac on Thu May 28, 2009 12:00 AM

Quote | Reply

 

On 5/28/2009 srmac wrote:
yikes...  i was afraid of that.  i took have learned that i have arthritis in my right knee, left ankle and both thumbs..  i guess it just never ends but i sure was hoping the medicine would.  i will certainly have to re-evaluate that situation soon.

 

On 5/28/2009 ykwas54 wrote:

 

On 5/28/2009 srmac wrote:

 

On 5/15/2009 ykwas54 wrote:

I had a lumpectomy in March 2006, and was immeadiately put on Aromasin as it was hormone positive. I also had 33 full breast radiation treatments, and have been cancer free since.  I have had two more surgeries on the same breast due to seromas and nodules, all negative.

I am having all the side effects associated with Aromasin. I can't seem to find what the percentage plus is for taking it. Can anyone help me?


I would love to know the answer to this as well.

I had a lumpectomy in Oct. 2002, chemo & 33 radiation treatments.

I have been on Aromasin for 4 years.  I have numerous side effects with the latest now including a severe degenerative disc.  However, I am a single mom and am afraid not to abide by my doctors wishes.  I did 2 years on Tamoxifen, I thought I was going to get off of my meds last year (at the 5 year of meds mark) but my doctor said they changed protocol and now want you on Aromasin itself for a total of 5 years...  I worry that next year they will say, let's just keep on going....

The sore/tired joints, muscles, aches, pains, weight gain, fatigue, etc....  and I am only 47 (I feel 77)..

Good Luck!!

My oncologist told me I would probably have to take it for the rest of my life!  Last week my regular MD told me I may have developed Rheumatoid Arthritis, so on my own, I have stopped taking the Aromasin. I don't know for sure if the Aromasin is what caused it, but no one in my family has ever had it.  I am so tired of being sore and tired!

 


 


 

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