lgl

Hi I'm Rob,

Diagnosed with lgl in November 08, 48 yrs old and have had blood issues since 2004. Had a car accident in 2003 and also took arthritis meds for RA. All peculiar as I have read others postings on taking RA meds and effects on liver. Anyone else have a car accident prior or RA meds prior to diagnosis? There may be a connection.

I had my first blood transfusion in March this year and second one needed 2 months later, just last week. Energy is good although after playing tennis, does affect energy level. I was told that exercising will not make blood level drop, although will feel tired. I have experienced heart palpatations and perhaps they are due to stress as they only happen at work and two times so far.

I am taking curcumin as others have mentioned the benefits. Anyone received reflexology treatments? Also eating a healthy diet and drinking goji juice every morning. Acidophillus has also been beneficial for my digestive system. Doctors say my spleen is slightly enlarged but just watching it for now.

Any thoughts or encouragement would be beneficial. This is my first posting and looking forward to hearing from others.

Laughter is good medicine

On 5/16/2009 Robert999 wrote:

Hi I'm Rob,

Diagnosed with lgl in November 08, 48 yrs old and have had blood issues since 2004. Had a car accident in 2003 and also took arthritis meds for RA. All peculiar as I have read others postings on taking RA meds and effects on liver. Anyone else have a car accident prior or RA meds prior to diagnosis? There may be a connection.

I had my first blood transfusion in March this year and second one needed 2 months later, just last week. Energy is good although after playing tennis, does affect energy level. I was told that exercising will not make blood level drop, although will feel tired. I have experienced heart palpatations and perhaps they are due to stress as they only happen at work and two times so far.

I am taking curcumin as others have mentioned the benefits. Anyone received reflexology treatments? Also eating a healthy diet and drinking goji juice every morning. Acidophillus has also been beneficial for my digestive system. Doctors say my spleen is slightly enlarged but just watching it for now.

Any thoughts or encouragement would be beneficial. This is my first posting and looking forward to hearing from others.

Laughter is good medicine

I was diagnosed in March with LGL, my white fighter count was 0.I had an 8 hour iv treatmemt, which brought it up to 700, but it did not stay..  I had a shot and it did nothing.  I began Cytoxan and Chlorosporine, in 3 weeks it came up some, then he doubled by dose to 100mg each and in aother 4 weeks I came up to 644. Go back in 2 months, wants my count at at lease 1000.  I goet tired and draggy, but I do not know how much is the meds and how much is just in my head.