Newly diagnosed HPV/Mild dysplasia

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Newly diagnosed HPV/Mild dysplasia

by SiLLa1439 on Sat May 16, 2009 12:00 AM

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Hi everyone. I'm so glad to have found this message board because who better to understand me than others going through the exact or similar situations?!

I'm 24 yrs old and recently found out in the beginning of the year that I have HPV after going in for a routine pap. I actually wasn't due for my regular pap yet until May of this yr (my last pap came back negative), but I was dating a guy for about 6 months and had my reservations about the relationship. So it was more of my own intuition telling me to go in, especially because I just graduated from nursing school and figured I should be aware of & on top of my own health. So after being hit w/ the hpv dx,my Dr. told me i had abnormal/atypical cells of the cervix, but it was NOT cancer. I think the second she even mentioned the word "cancer" the tears just started pouring down my face. Her advice was this "sit & wait" game that I have read about; come back in 2 months for another pap to see if the hpv infection had gone away and also to focus on building up my immune system. So after 2 months had passed, I went in for another pap which i just found out a few days ago was still positive for HPV (not a shocker) and that my cervical cells changed a little more and I now have mild dysplasia. I have a colposcopy scheduled for this coming week, but I've never felt so scared and helpless in my entire life.

Of course its difficult to deal with this news on your own, so i decided to tell 2 of my closest friends. One giving amazing advice & wisdom being that she has gone through a similar situation, & the other who just beats me with comments like "you're fine, you're going to be fine, everything will be fine". Which i really have to say gets on my last nerve because there is that slight possibility that everything will NOT be fine. I know that friends dont always know what to say and its just a tough situation, so im glad that i have some moral support. But i have to say that i feel like I'm at my all-time low. I think it's so unfair that i have to go through something like this, and the "guy" is probably completely unphased by it.

I do have hope for everyone else going through this and I will keep everyone in my prayers. We all have to try and stay positive for our own well-beings. I have read almost all of the postings and I am so grateful to everyone for writing because I have taken a piece from everyone's stories and put together a solid piece of hope for myself.

Hope to hear from some of you soon....

Priscilla

RE: Newly diagnosed HPV/Mild dysplasia

by dollyrusso on Sun May 17, 2009 12:00 AM

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HI priscilla,

 

I understand how scared you are because I went throught the same thing at your age.  The Colposcopy will take care of it :-) Its a very quick procedure.   The important thing is to get your PAP done every year from now on because this may be something that comes back. I know because mine did (unfortunately I didn't do my paps every year).  Cervical cancer is very treatable if caught early but right now I have an agressive grade 3 Squam. Cell Carcinoma and will be having a radical hysterectomy next week. Totally preventable too. ugh.  Anyway, hang in there :-) You'll be just fine.

RE: Newly diagnosed HPV/Mild dysplasia

by cas44 on Thu May 21, 2009 12:00 AM

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I was recently dignosed with hpv/moderate dysplasia. It's true that no one really can understand what your going through unless they've been there. I've become completely depressed and have no desire to even get out of bed in the morning, not to mention the man I've been with for 3 years and the one who gave it to me has ignored me since I told him the news. I guess its his own guilt or whatever. Now I have to have the LEEP next week and no one to take me, my best friend is out of town, so I'll be going through this all alone too! I'm so disgusted that a man can do this to you and then walk away and live his life while we will have to deal with it for the rest of our lives. I told myself today, I'm gonna be strong and take control of this. A positive attitude gets you everywhere! Good luck to all!

RE: Newly diagnosed HPV/Mild dysplasia

by Patbear on Fri May 22, 2009 12:00 AM

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I have had abnormal pap smears for about 2 years now since I was diagnosed with HPV. My doctor kept telling me to wait it out and didn't make it a big deal. About 4 months ago I went in for my regular colposcopy and again she said everything was the same and I could go back to my regular yearly pap smears. A week later, after I was relieved and thought everything was fine, I get a call from her saying that it's not what she thought and that she was going to refer me to an oncologist in the area. So I went to the oncologist who specialized in women's cancers. He was a very nice man and showed me exactly where the "pre-cancerous" cells were accumulating and told me that instead of removing them (because they would probably return) that I should just wait until they get worse and then decide what procedure to do. I go back in 3 months, I know he specializes and knows what he's doing, but I feel like why wait 1/2 year to see how much the cells have grown and then take action? What if it spreads too far and a more invasive procedure would need to be done? I feel for every women who goes through any experience like this. It's very hard to talk about with family and friends. Cervical cancer seems to still be the cancer that no one really talks about because it's mainly caused by an STD. The numbers that show how many women have HPV are amazing, you would think that with the gigantic number of women experiencing the same problems that we would be able to talk about it more openly. I wish the best for all of you. And I hope you seek out and find the support that you need. I'll be here doing the same.

RE: Newly diagnosed HPV/Mild dysplasia

by bmanderso on Wed Jul 15, 2009 12:00 AM

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I'm 18 years old and have been diagnosed with HPV and mild dysplasia. When I was first told the news about it, I took it quite lightly because I didn't know how serious this really was. But once I started reading up on the internet and really thinking about my condition I started to get really worried. This was my first pap, and I had been sexually active with the same guy for 3 years prior to it...so the thing that concerns me the most is the possibility that I've had this for 3 years but have never known. I have a colposcopy tomorrow and I'm so scared. I truly don't feel like I deserve to go through this. People can try to re-assure me all they want, but I'm still so frightened that it will be the worst case scenario. What if it's really bad and I have to have those advanced procedures done that make it difficult to have children? I honestly don't know what I'll do if I can't have children. I've been worried sick about this for months, and not knowing is WAY worse than knowing. The waiting period is going to be so awful. I'm just so regretful that I wasn't smarter and more careful with my sex life. I feel so stupid and ashamed that I could be so naive as the think something like this couldn't happen to me. If I could say one thing to the women and girls in the world it would be to PROTECT YOURSELF no matter what.

RE: Newly diagnosed HPV/Mild dysplasia

by organic_girl on Thu Oct 22, 2009 12:00 AM

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Three years ago I had an abonormal pap and got diagnosed with precancerous cells Edno carcinoma in situ HGSL and was recommended a cone biopsy where they remove a chunk of your cervix that can lead to preterm labor etc. I decided not to do the surgery and dove into alternative medicine checking progress w routine paps. I stopped drinking for 3 months and now only rarely drink or on special occasions. I at very clean, mostly organic NO processed crap, no bread (flour turns to sugar)I focus on having a stress free life and try to get lots of sleep. I take lots of vitamins and supplements and juice vegetables. I avoid sugar(unless fruit) and coffee (acidic). According to alternative medicine perhaps mds, cancereous cells feed on sugar and also thrive in an acidic body. Google alkalizing foods. You can buy a ph testers from your local health food store and make sure you are alkaline. like 7.2ish under 7 is acidic. Now 3 years later, I went from having precancerous cells to only having mild dsyplasia and mild squamous cells which the doc said was nothing to worry about. She did say to freeze the cells so I can not have to deal with this anymore which # years ago I was too far advanced to have the freezing as an option. Also if you need a uplifting book to read get "you can heal your life" by louise hays. My doc is an md who believes in alternative medicine so I get the best of both worlds. Docs advice was following protocol to take green tea extract pills 2am and 2pm, folic acid 1o mg per day, 1000 time release vit c, estrodim 1 am and 1pm. Also if its not in your multi vitamin, zinc is great for your immune system. Good luck!! and dont stress you will all be fine as long as you take care of yourselves!!
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