Ovarian Statistics

My sister was disgnosed with ovarian cancer (Lining) over two years ago.  Her tumor marker when diagnosed was 6000.  The treated her using chemotherapy and the marker reduced to 30.  She only stayed in remission for 3 months, not long enough to have the surgery.  Her doctors say she must stay in remission for 6 months to have the surgery.  She continued with another typed of chemo and she is now being treated with a sixth different kind of chemo treatment because of the markers not responding or many complications such as blood clots, white cel and platelet problems.  Does anyone know of another that has gone through such a treatment plan and finally it works and they go into remission long enough to have the surgery?

I woul really like to hear from as many as would respond please.

hi! i am particularly puzzled by this: we mostly had surgery before chemo! unless the tumors are so big they're inoperable? maybe she should get a second opinion from another hospital or oncologist or gyn/onc (last is preferable); keep us up to date please! i know there was a study where they first did chemo, then surgery, but i cant believe it should take 6 months! harriet

 

On 5/17/2009 onemircleplease wrote:

My sister was disgnosed with ovarian cancer (Lining) over two years ago.  Her tumor marker when diagnosed was 6000.  The treated her using chemotherapy and the marker reduced to 30.  She only stayed in remission for 3 months, not long enough to have the surgery.  Her doctors say she must stay in remission for 6 months to have the surgery.  She continued with another typed of chemo and she is now being treated with a sixth different kind of chemo treatment because of the markers not responding or many complications such as blood clots, white cel and platelet problems.  Does anyone know of another that has gone through such a treatment plan and finally it works and they go into remission long enough to have the surgery?

I woul really like to hear from as many as would respond please.

This sounds very dificult.  I know of a case where the cancer spread was very invasive and the woman was unable to tolerate surgery and/or infusion type chemo.  She was extremely thin and has other health issues.  She is taking an oral chemo. A second opinion is always a good thing; is there a teaching hospital you could go to?  You need to know which organs the cancer has spread to and the risks for surgery. Keep us posted on your search for help.

Annes

 

I agree with Harriet and Annes regarding a second opinion.  I have never hears of a case even similar to this.  In my case it was "operate ASAP ad begin chemo ASAP.  The markers don't always tell the true story.  Has she has any scans?  Good luck and keep us posted.

Gayle

 

On 5/20/2009 Harrietg. wrote:

hi! i am particularly puzzled by this: we mostly had surgery before chemo! unless the tumors are so big they're inoperable? maybe she should get a second opinion from another hospital or oncologist or gyn/onc (last is preferable); keep us up to date please! i know there was a study where they first did chemo, then surgery, but i cant believe it should take 6 months! harriet

Thanks so much for responding.  I will even make it more puzzling for you.  She has had two opinions plus a visit to another specialist at the Siteman Cancer Center in St. Louis MO. All three work with each other to discuss her rare type of Ovarian Lining Cancer and she just  puzzles them even more each week. I will keep you posted.  We go back again tomorrow to have more fluid drained of her abdoman and hopefully her blood counts will be high enough for a chemo treatment so these cells can start going down again. Thanks Pat

 

On 5/21/2009 Annes wrote:

 

On 5/17/2009 onemircleplease wrote:

My sister was disgnosed with ovarian cancer (Lining) over two years ago.  Her tumor marker when diagnosed was 6000.  The treated her using chemotherapy and the marker reduced to 30.  She only stayed in remission for 3 months, not long enough to have the surgery.  Her doctors say she must stay in remission for 6 months to have the surgery.  She continued with another typed of chemo and she is now being treated with a sixth different kind of chemo treatment because of the markers not responding or many complications such as blood clots, white cel and platelet problems.  Does anyone know of another that has gone through such a treatment plan and finally it works and they go into remission long enough to have the surgery?

I woul really like to hear from as many as would respond please.

This sounds very dificult.  I know of a case where the cancer spread was very invasive and the woman was unable to tolerate surgery and/or infusion type chemo.  She was extremely thin and has other health issues.  She is taking an oral chemo. A second opinion is always a good thing; is there a teaching hospital you could go to?  You need to know which organs the cancer has spread to and the risks for surgery. Keep us posted on your search for help.

Annes

 

Thanks so much for responding.  I will even make it more puzzling for you.  She has had two opinions plus a visit to another specialist at the Siteman Cancer Center in St. Louis MO. All three work with each other to discuss her rare type of Ovarian Lining Cancer and she just  puzzles them even more each week. I will keep you posted.  We go back again tomorrow to have more fluid drained of her abdoman and hopefully her blood counts will be high enough for a chemo treatment so these cells can start going down again. Thanks Pat

 

 

On 5/21/2009 Donna Gayle wrote:

I agree with Harriet and Annes regarding a second opinion.  I have never hears of a case even similar to this.  In my case it was "operate ASAP ad begin chemo ASAP.  The markers don't always tell the true story.  Has she has any scans?  Good luck and keep us posted.

Gayle

Thanks so much for responding.  I will even make it more puzzling for you.  She has had two opinions plus a visit to another specialist at the Siteman Cancer Center in St. Louis MO. All three work with each other to discuss her rare type of Ovarian Lining Cancer and she just  puzzles them even more each week. I will keep you posted.  We go back again tomorrow to have more fluid drained of her abdoman and hopefully her blood counts will be high enough for a chemo treatment so these cells can start going down again. Thanks Pat

 

I was diagnosed with stage III ovarian cancer and my ca125 came back at over 5,000 upon discovery.  I am seeing Dr. Janet Rader - she is located in the same building as Siteman - up on the 13th floor, I believe.  I went to Barnes for the debulking surgery in January and am now doing chemo.  Since I live on the Illinois side of the river, I opted to do chemo close to home, but Dr. Rader is my cancer doctor.  She good!!  My latest CA125 test which was last week, came back at 198.  I've got a long way to go, but I'm getting there. 

Hope this helps! 

 

 

On 6/3/2009 GinnyJo wrote:

I was diagnosed with stage III ovarian cancer and my ca125 came back at over 5,000 upon discovery.  I am seeing Dr. Janet Rader - she is located in the same building as Siteman - up on the 13th floor, I believe.  I went to Barnes for the debulking surgery in January and am now doing chemo.  Since I live on the Illinois side of the river, I opted to do chemo close to home, but Dr. Rader is my cancer doctor.  She good!!  My latest CA125 test which was last week, came back at 198.  I've got a long way to go, but I'm getting there. 

Hope this helps! 

 

We ll the jorney for my sister came to an end on 7/7/09.  She had been hospitlized since May 27th and one thing happened after another. Infections, extremly high pottasium and than extremely high phophastes and other electolyte problems.  She went in about 85 lbs and started collecting fluids in her lower extremities and ended in ICU.  Her one and only kidney went into acute kidney failure.  They did a nephrestomy and that would not drain the urine and went on to dialysis.  That also was not removing the fluids due to her no longer having any muscle in her body.  She said she felt like a prisoner in her body and felt she had no quality of lilfe as she was bed ridden for that last 3 weeks and not getting better.  She could no longer keep food or drink down.  When she was first diagnosed she was told she had ovarian cancer of the lining.  What I did not know is that it has alreday metastized in her peritonial area.  MJ entered into hospice July 1 and entered into the Lords kingdom on July 7th.  Thanks to all responces  PS she was under the care of Mercy Cancer and Dr. Much at the Siteman center.