Healingafter a cone biopsy

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Hi, I had a cone biopsy done on April 10th . My Gyn/Onc dr. did a cold knife biopsy because I had adenocarcinomas carcinoma in situ. They told me after that they got all of this. I say this because my gyn said it was cancer . My oncologist says it is not cancer and everything I read about it says it is cancer. I will need to have a hysterectomy after having this done.

My question is this.. I didn't bleed much after surgery.it was 11 days after that the bleeding started and has not stopped. I seen the oncologist on May 4 th because I passed the stitches and bleeding was so bad. They put more of that medicine on my cervix that stops the bleeding. I don't know the name of it. It looks mustard yellow. Well now I have the nastiest discharge ever I don't know if this is normal or not. I have called the oncologist office and the nurse now sounds like she is getting tried of me calling. The discharge is black w/ coffee grounds. I was aware of the coffee grounds, but the rest of this I can't take anymore. If some out there has had this happen to them and can let me know I"m not going crazy that would be wonderful. I also still have sharpe shooting pain in my cervix.

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babies

Typical doctors response "one says it's cancer and one says it is not". Seriously?!?! I am so beyond frustrated with doctors, but I won't get into that. I did not have a cone biopsy but I had a colposcopy (with a biopsy) and a LEEP. I had the same yellow mustardy gross discharge after the colposcopy. My doctor said to expect it and the dark coffee grounds stuff was the stuff they put on for clotting and part scab over the part they cut out. I would definitely keep calling the doctors office and who cares if the nurse is annoyed. It's your body and you are in charge of it and if she gives you attitude tell her your concerns and I would hope she would do the same thing if she was in your situation. I am afraid that although I have had these 2 procedures, they are going to tell me that after all this I will still have to have a hysterectomy. Which is fine with me but skip all the in between procedures and costs and get down to it! Hang in there. Keep bugging your doc if you have questions.

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whatnow

Thank you for your reply. The only thing that scars me now is this it is black .. I think the medicine can turn that color not sure. I had a leep done Feb.08 and remember the medicine from that,but nothing like this. I may call my gyn. because she is the one they want me to follow up with in 3 months. She will also be the one doing to hysterectomy. I can't wait for all of this to be done with.

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babies

So why did you have a cone biopsy after the LEEP. I am trying to figure out why my doctor told me that regardless of the results I do nothing until another PAP in 6 months. Did you have to wait that long to find out if everything was okay? And why did they do a cone and now determine you need to have a hysterectomy? Why didn't they determine that before doing yet another procedure? I feel like I am going down the same road you are on (for some reason). All these procedures yet the same end result. Definitely call your doc. Remember what Dr. Oz (yes from the Oprah show) says, it's your body and you have to take control because the doctors won't. You know when something is just not right. Keep pressing them until you feel comfortable with the answer. Hang in there :)

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maureenk

what they likely put is 'monsel's solution', which contains ferric sulfate, and acts as a hemostatic agent. the oncologist i was seeing also used it after my biopsies. i had minimal discharge the first couple of days, and days following, it got progressively heavier. it took a total of 9 days for it to clear, and on a day or two, when a large chuck passed, i actually had some bright red blood passing. i also called my doctor with the same concern. the physician assistant stated that if i was bleeding heavily, as in soaking a sanitary pad every 2-3 hours, then she would worry. but it was like a regular menstrual flow for me, and definitely more brown with coffee grounds than blood. it eventually passed, and i'm back to normal now.

i would continue to call your doctor if you are concerned.

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whatnow

Ok here is my story from the beginning. I went in on Nov.12,2007 for my pap. That came back abnormal.I had atypical squamores cells (asc-us).I then had to have 3 biopsy's. The results from that came back serve dysplasia cin3 and had to colposcpoy w/ 3 more biopsy's.Then my Dr. said I had to have the Leep done to remove all of the abnormal cells. So Feb.28,2008 I had the Leep done. I had to go back 5 month later for another pap July 2008. That pap came back normal. I had to go back 6 months later for another pap that was in Jan.09.. That pap came back atypical glandular cells. Which is not good. I had to go in March 09 to have a D&C done to see where the cells where coming from. That came back that I had adenocarcinomas carcinoma in situ.This was on the endometrial canal.( the upper part of your cervix). My Gyn, said it was cervical cancer.When I went to see the oncologist he said No this is not cancer ,but we use to call it cancer,but if you look this up it says it is cervical cancer. So he wanted to do the cone biopsy to see if it was invasive or not. I asked why can I just have the hysterectomy w/out the cone biopsy. He said that If they did the hysterectomy w/out checking this first then my chances of having to do radation & chemo would have gone up if it was invasive. So i had the cone biopsy done to see if they could just cut all of the cancer out. They said they got all of the cancer,but I have 20% chance of this coming back in the next year or so . So I have to still have the hysteretcomy to make sure this doesn't come back. They will be taking out everything including my cervix. (what little I have left).So I hope this helps.. If you have anymore questions please ask.

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babies

Thank you for sharing your story. I'm so sorry you've been going through this for so long. My results sound similar except that I am in the beginning stages. I had my PAP 3 weeks ago and it came back abnormal with high grade cervical intraepithelial neoplasia (grade III). They did the colposcopy a week later with 2 biopsy to confirm it was HGSIL (which it was) but negative for cancer. I went in last week for the LEEP and now am waiting to find if my margins are clear or not. Doc said to go back in 6 months for another PAP regardless of the results. So now we wait. Did you call your doc? Hope you are feeling better.

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whatnow

Just make sure that you keep up with the re paps.. I know they say the leep is 95% cure ,but it can come back as you can see. My dr. did tell me that it is not unusual to have a abnormal pap after having the Leep. I have not called my Dr. because I have no voice and I looked up the medicine and it does turn black when mixed with blood. So if it doesn't go away by Monday I will call.

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herenow

The black stuff is Monsel's paste. Your doctor should have told you what to expect. Please don't go back to that doctor. You should also be followed up within three to four months.

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WantsKids

Babies.. You should have another PAP well before 6 months. You can always request this if your doc doesn't tell you to. I think mine said every 3 months for a while. You should also have a follow up a few weeks after the procedure to see if everything is healing properly.

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