Women who don't have BRCA mutations could have other high-risk genes that affect treatment choices
by mishelley on Wed May 20, 2009 12:00 AM
Hi all, new to here. I was hoping someone could give me advice or their experiences with having the laser tx or aldera cream. I was first diagnosed in 2004, mild - moderate VIN, had a wide local excision of left labia minora.
Welp, you guessed it. The crap is back. Started having constant UTI's, BV and yeast infections. I went to my GYN and he did a colposcopy and it turned white in the same area as before. He took 2 biopsies and I just found out Tuesday that it is back and is mild dysplasia. He said he did not want to do the surgery this time and referred me to a gynocologic oncologist because I have already had a previous surgery in this area is what he told me and he did not feel comfortable doing the surgery this time.
I have an appt. with gyno onc. doctor June 1st, (Not soon enough). I am scared to have another surgery, (I know how bad it hurts) and I am also scared because there is only so much down there that they can take and i don't want to be mutilated any more than I need to be. Unless you have been through it people cannot understand how emotionally damaging this is. It's not like the doctor is removing your appendix, it's part of your vagina they are cutting away. Then there is also the chance that it will come back, and from what I've read, IT DOES no matter what you do. It may take years. I honestly can't imagine living with this for the rest of my life, always living in fear that it will return. I am 38yo. My boyfriend of 2 1/2 years is extremely supportive and he said he will be right beside me through all of this. Thank God for him!
From what I have read on here the cream seems too painful and lengthy, I have sensitive skin anyways and i can't imagine putting cream on my vagina even after it is swollen and inflammed with blisters and sores! Yikes, no way!
Sorry so long, just had to vent for a minute. this is a subject that is almost impossible to discuss with someone and have them understand if they have not gone through it themselves.
When you track a discussion, you will get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to track this discussion?
If you stop tracking this discussion, you will no longer get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to stop tracking this discussion?
We care about your feedback. Let us know how we can improve your CancerCompass experience.