I was diagnosed with aggressive natural killer cell (LGL) leukemia 6 years ago. My prognosis at that time was less than 2 months. However, I was considered to have undergone a spontaneous (and extremely rare)remission weeks after the diagnosis and have been essentially asymptomatic since that time. I am now considered to have a chronic form of NK cell leukemia.
This is a rare leukemia, and I have found no one else with this illness and limited information. Within the past 3 months, my counts and markers have begun to change.
Is there anyone else who has dealt with this leukemia and can provide guidance as I am now facing decisions regarding treatment, etc. My current oncologist leaves much to be desired. So I am also searching for a new doctor.